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Can anyone recommend an alternative to imigran inj (Read 4344 times)
andyregan
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Can anyone recommend an alternative to imigran inj
Feb 26th, 2009 at 12:29pm
 
As above, my husband is 4 weeks into a cycle and is taking imigran injections up to 3 times a day (too many I know!!).
He has tried O2 but doesn't seem to be getting any relief so I was just wondering if anyone could recommend an alternative to imigran that works just as well and as fast as I have a really bad feeling that the injections are going to prolong this cycle!
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« Last Edit: Feb 26th, 2009 at 12:29pm by andyregan »  
 
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ClusterChuck
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Re: Can anyone recommend an alternative to imigran inj
Reply #1 - Feb 26th, 2009 at 12:45pm
 
You are right to be concerned about his imitrex (imigran) usage.  That many shots, day in and day out can only lead to problems.

My suggestion would be oxygen, but you say he tried it and did not have any luck with it.  Could you elaborate on how he used it?  What I have found, is that when some one says that oxygen did not work for them, it is usually because it was not being used properly.

Please tell us the flow rate, type of mask, etc. that he used.

Chuck
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andyregan
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Re: Can anyone recommend an alternative to imigran inj
Reply #2 - Feb 26th, 2009 at 1:11pm
 
I'm not sure of all the medical jargon to use, but he has a regulator on his o2 and he puts it to between 10-12 if that makes sense, he has a mask but it is not the right one and we cannot seem to get the right one here in Ireland so he is taking the o2 straight from the hose.
He sits taking the o2 for about 10 - 15 minutes when he feels an attach coming on but it usually gets so bad that he has to take an injection.
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Margi
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Re: Can anyone recommend an alternative to imigran inj
Reply #3 - Feb 26th, 2009 at 1:24pm
 
You might want to try Zolmitriptan or Zomig as it's marketed here in Canada and the states.  My husband uses it in the nasal spray form and it aborts usually within 10 minutes in combination with O2.  

We found Imitrex caused him to have way more attacks in a 24 hour period and left him with a lot of side effects.  Zomig is also a triptan but much gentler - lower dose too.  I just checked the box and these sprays are in 5 mg doses, whereas Imitrex was 20 mg (also nasal sprays).  Wonderful stuff - it's become our magic bullet and, at most, Mike only needs to use one a day.  He's been in cycle here since November and is starting to taper down now but, even when he peaked in early January it never got as bad for him as when he was using Imitrex.  Nasty stuff.

Just re-read your second post and although Mike has had some success huffing O2 straight from welders' O2 hose, it was a marked improvement when he went to medicinal oxygen with a non-rebreather mask.  we did need to get a prescription for the mask though (not sure why when you can buy enough Aspirin over the counter to kill yourself but, in Canada, you need a script for the mask AND the oxygen   Shocked). 

I'm not sure how it is in Ireland but you can order these masks online and also EBay - there's a bookmarked post somewhere about them.
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« Last Edit: Feb 26th, 2009 at 1:26pm by Margi »  

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Ray
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Re: Can anyone recommend an alternative to imigran inj
Reply #4 - Feb 26th, 2009 at 1:30pm
 
Hello:

I can understand the frustration.  There are many ways to attack the problem, each way with it's plusses and minuses.

The BEST way would be to get the RIGHT oxygen equipment, and perhaps someone on your side of the "pond" can direct you to "OUCH UK" and provide their expertise within your health care system.

That being said, it sounds like hubby is not getting enough flow at 10-12 liters per minute, the higher the rate of flow, the better it works!

It would be good to get a headache specialist working with your husband to try to prevent these headaches.  Very often, verapamil or lithium is used.  Quite often a prednisone taper is used to allow the other medicines to begin to be effective.

One plug for those "energy drinks" like "Redbull" with caffeine and taurene are helpful if downed right at the onset of a headache attack.  Some people here can abort most headaches with that.  Others find comfort holding something cold over their eye, I would recommend frozen peas in a thin cloth bag to help ease the pain.

Your husband could try using 1/2 injections of the Imitrex as many here, including myself, find to be just as effective.

That's about it for me, I hope others can offer more concrete answers to you.

Wishing you well,

Ray
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andyregan
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Re: Can anyone recommend an alternative to imigran inj
Reply #5 - Feb 26th, 2009 at 1:49pm
 
thanks for all your replies guys  Wink
I'm finding it hard to get a doctor that understands what my husband is going through - his last doc was giving him nasal sprays that he prescribed to his son who suffered from migranes!!
His new doctor will more or less give him anything that he wants but it's left up to me to do the research on what might work (only from this website did I discover Imitrex and this is his first year using them to great affect thank god).
I will check out the OUCH Uk website and see if I can get a proper O2 mask and tell him to up the dosage he's taking, in the meantime i'm going to try and figure out how to give half injections with the injector pen.

Thanks again for all your help, as always invaluable xx
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gizmo
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Re: Can anyone recommend an alternative to imigran inj
Reply #6 - Feb 26th, 2009 at 2:01pm
 
As long as he uses Imitrex / Imigran check the Imitrex Tip on the left.
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Pixie-elf
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Re: Can anyone recommend an alternative to imigran inj
Reply #7 - Feb 27th, 2009 at 12:18am
 
andyregan wrote on Feb 26th, 2009 at 1:49pm:
thanks for all your replies guys  Wink
I'm finding it hard to get a doctor that understands what my husband is going through - his last doc was giving him nasal sprays that he prescribed to his son who suffered from migranes!!
His new doctor will more or less give him anything that he wants but it's left up to me to do the research on what might work (only from this website did I discover Imitrex and this is his first year using them to great affect thank god).
I will check out the OUCH Uk website and see if I can get a proper O2 mask and tell him to up the dosage he's taking, in the meantime i'm going to try and figure out how to give half injections with the injector pen.

Thanks again for all your help, as always invaluable xx


Well, if you mean the doctor doesn't understand the severity of the pain your husband is in... My suggestion? Let him see a full blown cluster. Best way to make a doctor understand...

Bob_Johnson has posted to quite a few folks a list of medications that have been used for this. I don't know if you've come across it, but you may want to PM him and ask about it, print it, and take it to your husband's doctor. If he's not getting some kind of prophylactic treatment, he may want to try it. There's a LOT of things that can be done on that end, it just takes finding the right med.

I also don't know if Lifegas, or the CH.com store ship the masks that're made for cluster sufferers, but if either do, and you have a hard time getting the proper one, I'd suggest going with that.

Some places also sell regulators online if you can't easily get a higher one than 10-12. You might want to get a 25lpm one just in case. A lot of sufferers have had more success with that, than with just 15lpm. Quicker abort times and all...

Anyways, I hope you guys find something that helps soon....
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Re: Can anyone recommend an alternative to imigran inj
Reply #8 - Feb 27th, 2009 at 1:21am
 

The nasal spray can work as well as the injection without causing too much rebound.

The key is to use it early, as soon as the pain starts to build.

The injection works in 2-3 mins and the nasal spray works in 5-7 mintues.

Another choice for abortive treatment that can work well for many is Zyprexa. It comes in tablet or wafer form and the usual dose is between 5 to 10 mgs. It takes between 7 to 15 mins to work and it can be quite effective for those lesser hits.

Do give oxygen a go though, its the best abortive.
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andyregan
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Re: Can anyone recommend an alternative to imigran inj
Reply #9 - Feb 27th, 2009 at 6:40am
 
Well he tried the imitrex tip, which was quite hard to do (he found it hard to stab his thigh with a needle and didn't really know how far to put it in) but it worked anyway, he reckons it might have took a little longer to work though.
He also tried the red bull which had no affect (other than to gag!)
He's at the docs at the moment to get his blood tested for his testosterone levels - hey anything is worth a shot!
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Katie
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Re: Can anyone recommend an alternative to imigran inj
Reply #10 - Feb 27th, 2009 at 12:15pm
 
I strongly suggest getting your GP to make a referral to a neurologist preferably one with an interest in headache disorders as your husbands are not responding well to available treatments.

If your N. Ireland Ouch can help if your S. Ireland I am pretty certain the health system is different but OUCH UK may be able to put you in contact with someone who can help you steer through the souths system.

Right now I have an understanding why its so darn tempting to use too much imigran. Embarrassed Poor bloke. Hope the docs can find something that gives more relief for him soon.




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