another happy customer.

That is fantastic news! And time is of the essence! A delay of 3-4 minutes can double the amount of time it takes me to abort a hit.

So glad it's helping, a neat feeling to know you're not helpless against the beast!

Joe

Wonderful, glad to hear it worked!  

Now, I must get on the ball and hound my GP.

o2 ROCKS!!!!! Yet another success story, love it!

When I go to bed, I set my O2 tank next to the night table.  I wake up 1 1/2 hours later with an attack starting,  I turn on the tank and start sucking.

BTW - I leave the regulator and mask connected to the tank all the time and just turn on/off the tank valve.

Quote:


The UK home oxygen people dropped off a couple of big black topped with white ones - have to admit was not something I envisaged being part of the relaxing decor but do I give a damn about decor when it hurts...nope.

I will ask hubby to move it right by my side of the bed and see if that saves some time tomorrow morning and see if I can find a low level light so I can see what I am trying to do without waking him up if possible.
Boy can you tell that I am new to all this.  

O2 is my friend  , I wish we'd have had it years ago, read and learn. I too am impressed, check the site from time to time, I still pick up some pointers, thank god we have this place. Best of luck.

Baer

The whole thing went a lot better this morning.

Still no letter from the hospital, still cannot get sumatriptian auto-injectors form GP withourt said letter.
Tried calling clinic- got their answerphone.

Cried.

Counted remaining maxalt melts.

Ordered more O2 from NHS home supply firm; cancelled everything for the weekend as I am now too flipping tired to want to play and dare not promise to do anything as the maxalt does not help with the mid morning nasty and that one is making me feel dreadful the other three are better behaved- I even crawled up to the GP to try and sort out a short prescription for over the weekend until the headache clinic re-opens.
The wretched dragons [receptionists] were not helpful. A headache is not enough to warrent an emergency appointment with another doctor. My GP was not in and no one else would take responsibility for prescribing without the hospitals letter. They suggested going to A&E.
Its going to be a long weekend but at least this weekend I have O2.
Going to try again Monday but I could have done without having to try and keep re-inventing the wheel.

At least the O2 has been sorted and I can re-order it myself as and when needed.

You have o2 for the weekend, that is very good. You also have us here to lean on and even if it is to vent, that is ok too.

Clusterville is always open 24/7, so you are never alone with this. Hang in there!

Hi Dyno,
Health wise I am fine- I just get those headaches.
I cycle between severe chronic migiraine, goodbye 4-5 days a week and episodic cluster. I also think a small gnome with hobnailed shoes and assorted cultlery and flamethrowers who thinks my TMN is its personal trampoline as the migriane switches into cluster and back again.

My GP got a tad jumpy after the neurologist expressed his opinion on NOT  sending me through to a consultant neurologist sooner. As I am female a none smoker and rarely drink the GP was treating me as if I only had migraine. He has been kindly asked by the hospital not do anything more without the say so from the headache clinic till they have sorted things out more.

The letter arrived on Saturday far too late to get a weekend prescription from anyone and the thought of camping in A&E when I had O2 at home made me cringe - been there done that before it has to be a truly awful headache to make me go as they always check for meningitisis before doing anything else.

Ghastly Saturday tried to go out with my younger teens and mistimed it only had maxalt with me so ended up crying on the floor whilst my eldest daughter went and blew her pocket money on a bag of ice and a strong coffee from SB for me. 
Not fun Sunday - took communion at church then paid for it more than normal. Not doing that again.
Was a tad terse with the dragons at the GPs this morning but I have been given an appointment to finally see my GP later this morning.
I have all the hospital letters together and I am not budging without that topiramate and certainly not without the sumitriptain injectors.

IF the homeoxygen turns up and replaces the O2 and I can get hold of the other drugs I am going to try and be more organised and get to Uni for tonights lectures. I felt so tired and in too much pain to want to even think of trying last week.
Could cheerfully throw in the towel in trying to study with this, it makes doing almost everything very hard work.

Managed to read OUCH's PDF on O2 use. That has helped a lot.
Sent husband out to buy more ice packs and strong coffee. 
I even remembered to put ice packs in the freezer to pack round the sports ice packs for tonight. I have Redbull and a flask for strong coffee ready to go.
Sick of this thing trying to rule my life so I am going to push yell and kick for what I need to make life more bearable.
IF I feel truly awful the Hospital is down the round from the Uni.

Got new O2 bottles.

Got the prescription.

The pharmacy has had to make a special order for me but will deliver them to my home just after 4pm. *at last*.