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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Help!!

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Help!! (Read 1129 times)

Kimmie

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OW!!

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Help!!
Feb 23^rd, 2009 at 2:08am

its almost 1am here. havent eaten much in a couple days 4+ kip 8's a day. took 3 20mg nasal imitrex to abort...now out. TERRIFIED of going to sleep. I feel as if the prescribed meds PLUS otc pain meds are chewin my stomach up. Trying to keep the humidity at 40-50%. Trying to find that "majic" temp setting. I have a constant shadow just enough to let me know its still there...waiting. My CH began only 4 days ago and already this bad? Im going to batten down the hatches now. got some wet rags on standby and coffee. I also feel a bit twitchy- i feel as if the trex is interupting my SSRI (PAXIL). Somebody out there pray for me Cry

To accept the challenge is the destiny of leadership.

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Bob P

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Shut up Bob!

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Re: Help!!
Reply #1 - Feb 23^rd, 2009 at 6:32am

From the Trex info:
Quote:

Serotonin Syndrome
The development of a potentially life-threatening serotonin syndrome may occur with triptans, including treatment with IMITREX, particularly during combined use with selective serotonin reuptake inhibitors (SSRIs) or serotonin norepinephrine reuptake inhibitors (SNRIs). If concomitant treatment with sumatriptan and an SSRI (e.g., fluoxetine, paroxetine, sertraline, fluvoxamine, citalopram, escitalopram) or SNRI (e.g., venlafaxine, duloxetine) is clinically warranted, careful observation of the patient is advised, particularly during treatment initiation and dose increases. Serotonin syndrome symptoms may include mental status changes (e.g., agitation, hallucinations, coma), autonomic instability (e.g., tachycardia, labile blood pressure, hyperthermia), neuromuscular aberrations (e.g., hyperreflexia, incoordination), and/or gastrointestinal symptoms (e.g., nausea, vomiting, diarrhea).

From the Paxil info:
Quote:

Triptans: There have been rare postmarketing reports of serotonin syndrome with the use of an SSRI and a triptan. If concomitant use of PAXIL with a triptan is clinically warranted, careful observation of the patient is advised, particularly during treatment initiation and dose increases (see WARNINGS—Serotonin Syndrome).

« Last Edit: Feb 23^rd, 2009 at 6:36am by Bob P »

Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron. "SHUT UP HUB!"

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Bob Johnson

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free." -Epictetus

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Re: Help!!
Reply #2 - Feb 23^rd, 2009 at 8:49am

First step is to get back to your doc!!

Second, you're discovering that the Imitrex pill is not best for CH--too slow acting for most folks.

Third, is the Paxil for the CH? If so, suggests you're doc is not the specialist you need.

=========
LOCATING HEADACHE SPECIALIST

1. Search the OUCH site (button on left) for a list of recommended M.D.s.

2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3. Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

4. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

; On-line screen to find a physician.

5. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Look for "Physician Finder" search box. Call 1-800-643-5552; they will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

Bob Johnson

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DennisM1045

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One wave at a time!

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Re: Help!!
Reply #3 - Feb 23^rd, 2009 at 12:06pm

Hey Bob, she's using Imitrex nasal. Not pills.

Kimmie, I'm sorry the beast is back. I'll be praying for ya.

In the mean time, you need to get some better abort plans in place. Sometimes what worked last cycle doesn't work so well this cycle.

I'm sorry I don't remember from last time, but have you tried Oxygen? It works really well for me when I get on it quick and use it correctly.

-Dennis-

Where there is life, there is hope.
Where there is Oxygen, you must use proper caution.
So be safe, don't smoke while using O2. Kill the pain and not yourself.

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Kimmie

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OW!!

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Re: Help!!
Reply #4 - Feb 23^rd, 2009 at 12:43pm

Never used the O2 Dennis. I havent had a cycle in over a year until this one. The paxil is not for CH, it is for anxiety. I did eat a half of a burger and a couple fries on my way to CVS this morning...(in my jammies). My ears are ringing? odd? I've never really noticed that before. Hands are still kinda shakey. Ever had these symptoms while in cycle ?

To accept the challenge is the destiny of leadership.

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Farzad

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Iran - Tehran
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Re: Help!!
Reply #5 - Feb 23^rd, 2009 at 1:27pm

Kimmie

I will pray for you. we understand your pain.

just you shall immediately go to the doctor and use the preventive medicines like prednisolone ( I recommend) , while may be imitrex is not effective for you , and if you can stop it for 24 hours and then use and test the Ergotamine , with O2 together, to abort the attacks.
for my case also the imitrex was not effective as ergotamine.

Farzad

Farzad

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Help!! Reply #6 - Feb 23^rd, 2009 at 10:01pm Oh Kimmie, I'm so sorry. Do give the 02 a shot, it's been a wonder worker for me. Joe
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