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Charlotte CH.com Alumnus Offline Posts: 2385 Patterson,California Gender:	botox Feb 19^th, 2009 at 8:31am My neuro is trying botox on me this afternoon. I am hopeful that it will help. The only person I know who has tried it is Alchemy/Jim and it did n't help him, but I have the occipital neuralgia also and think it may help with that. Wish me luck Charlotte
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Deborah C

Ex Member

Re: botox
Reply #1 - Feb 19^th, 2009 at 9:56am

Hi
My first neuro. suggested botox. Not to me, but to my GP.
At first the idea totally repelled me. What if.............a million things
went through my mind. Then I thought, hey I'll get rid of lines in my forhead, maybe I could talk him into around the eyes.

No, but this is a really serious subject. I did some research (not a lot)
and didn't find too much on the subject.
I was looking for some concrete evidence that this actually works and could'nt find any.

Please let us know the outcome. I'll be first on line. Good luck to you &
GOD Bless-Deb Huh

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Jennifer CH.com Alumnus Offline Posts: 3265 Supply, VA Gender:	Re: botox Reply #2 - Feb 19^th, 2009 at 10:08am Thinking of you today Char. Love you hon! Good luck, and I'll catch you later to see how you are.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: botox Reply #3 - Feb 19^th, 2009 at 10:29am Hoping it gives you the relief you need Char, be nice to see you catch a break. Joe
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Ellick CH.com Veteran Offline ET found here. Posts: 200 x1\|Aylesbury\|UK Gender:	Re: botox Reply #4 - Feb 19^th, 2009 at 12:00pm I was offered this last year. I didn't find anything that suggested it worked for CH. Hope it helps you. If it does I will definitely give it a go. Good luck. Ellick.
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Iddy CH.com Alumnus Offline Smile Posts: 486 Toronto,Canada Gender:	Re: botox Reply #5 - Feb 19^th, 2009 at 12:02pm Wishing you all the luck in the world Sending possitive vibes your way Walk in Peace Iddy
Back to top	Walk in Peace "If you can, help others, if you cannot do that, at least do not harm them." Dalai Lama IP Logged

Charlotte

CH.com Alumnus

Offline

Posts: 2385
Patterson,California
Gender: female

Re: botox
Reply #6 - Feb 20^th, 2009 at 9:19pm

I wanted to get through a whole day before I came back to the thread.

Last Friday, I ended a high cycle so this week was much better but heading back up.

The botox was injected in 20 spots, a small amount. It stung but not as bad as a bee. The neuro said it could take up to 2 weeks to get into my system and if it didn't help at all, we could try it a 2nd time in 12 weeks, and if it didn't work then we should forget it. If it does help, it usually lasts 8 to 12 weeks, and can be repeated about every 12 weeks until a tolerance is built up which may take about 7 years.

Most of my ch is on the right, occasional odd balls on the left, and the occipital neuralgia is back, side, front, and goes back and forth.

Today, I only had heavy shadows and the occipital neuralgia was all gone. Most of the day I was my happy self. This is much better than last year. I don't know if it will help when I hit the next high cycle, but it could! So, I am cautiously optimistic. I am not sure if I would recommend it, yet, since I still need to go through more time to see what happens next. So far, so good. I'm glad I'm trying it.

Charlotte

ps this is not a beauty treatment - totally different areas than the wrinkles, lol

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« Last Edit: Feb 20^th, 2009 at 9:21pm by Charlotte »

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Karla CH.com Alumnus Offline One of Many and Never Alone - Join OUCH Posts: 3837 x1\|Madison WI USA Gender:	Re: botox Reply #7 - Feb 23^rd, 2009 at 7:09am When I used to get 8 migraines or more a month along with my ch I did botox. It stoped my migraines but did nothing for my ch. I did botox every 3-4 months for a couple of years. Then I had a hysterectomy and my migraines stoped mostly so I stopped the botox. I am praying that it offers you some relief.
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Charlotte

CH.com Alumnus

Offline

Posts: 2385
Patterson,California
Gender: female

Re: botox
Reply #8 - Feb 24^th, 2009 at 9:54am

OK, Hitting high cycle and can now say the botox does not stop this, however, it feels like slam time so it helped with the buildup part of mini-cycle.I will be going in to work late, after the O2. Normally the slam time is just 4 hours of one after another.

Obviously, something is helping enough that I can sit still and feel rational, so even though i'm in hte grip, I have a life.

So, all you guys & gals who worry about me, I am having something of a good break, and a real life.

I would have to say I wouldn't recommend botox for ch only, but it really helps if you have other facial nerve pain and TACs, it seemed to really help with the unnamed short headaches and occipital neuralgia.

Charlotte

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Deborah C

Ex Member

Re: botox
Reply #9 - Feb 24^th, 2009 at 10:06am

Charolette,

I have been thinking about you, praying & wondering if this did help you. I am so glad to hear that you feel a little bit better. God Bless you.
I have to say though, that I truly wanted you to come back & say that UR pain free. For you and for all of us.

I was going to do the botox thing and well, now, I don't think so. I know that you said it takes time to build up so maybe there is some hope. Are you going to continue the treatment??Keeping U in my prayers- Deb

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Charlotte

CH.com Alumnus

Offline

Posts: 2385
Patterson,California
Gender: female

Re: botox
Reply #10 - May 17^th, 2009 at 8:14pm

following up. The botox seems to work very well for me. It was so gradual that I didn't notice it until it started wearing off again. I had the 2nd round May 13.

Early this morning, I had a full blown leftie but my regular right side is doing well. I still get the drip, sweating, and pacing, but the pain is minimal.

I think I would recommend it for ch, with qualifications - it is not an instant fix and the success is relative. It really has improved my quality of life.

Charlotte

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Lefty CH.com Alumnus Offline Posts: 759 Gender:	Re: botox Reply #11 - May 17^th, 2009 at 8:38pm Hi Charlotte This is the first time i read this thread and the first time I've read that botox is considered a treatment for headaches and CH's. Very interesting indeed. Really happy to hear it has improved your quality of life and offered you some relief. Lefty...!
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Lottie CH.com Veteran Offline Posts: 112 Gender:	Re: botox Reply #12 - May 18^th, 2009 at 6:21pm Great you found something that helps you so much!
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hawksayer@yahoo.com CH.com Newbie Offline I Love CH.com! Posts: 6	Re: botox Reply #13 - Jun 6^th, 2009 at 9:39am I hope that it works for you dear.... I tried it about three years ago and after two vials and 47 different injections... I left there and it seem to spawn a real nasty one... I hope for your sake it works... if it does let me know, I would pay the money to try again if maybe the injections were in the wrong location or something.
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