Click this link to read a post I like on the clusterheadaches.com message board...

catlind

CH.com Moderator
CH.com Alumnus

Offline

Surf's Up!

Posts: 4536
Weaverville NC
Gender: female

CH study recruiting
Feb 4^th, 2009 at 6:40pm

Sumatriptan 4 mg Statdose in the Acute Treatment of Cluster Headache

GSK is recruiting patients through the diamond headache clinic for the 4 mg statdose specifically designed for CH sufferers.

Study information can be obtained from clinicaltrials.gov at this website:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

While I'm not a proponent of triptans for CH because of the many anecdotal cases of evidence showing many negatives, the best chance for CHers to get new drugs out such as the CGRP receptor antagonists, is if we as sufferers can get our numbers out there to the researchers and the pharmco's; one way is to make sure whatever studies they are doing, get filled.

Just a heads up for anyone who's interested.

Cat

Back to top

A true friend is someone who reaches for your hand and touches your heart.

If yer gonna be stupid, ya gotta be tough

Who is John Galt?

IP Logged

catlind CH.com Moderator CH.com Alumnus Offline Surf's Up! Posts: 4536 Weaverville NC Gender:	Re: CH study recruiting Reply #1 - Apr 6^th, 2009 at 6:41am TTT
Back to top	A true friend is someone who reaches for your hand and touches your heart. If yer gonna be stupid, ya gotta be tough Who is John Galt? IP Logged

Ray

CH.com Alumnus

Offline

Ray

Posts: 1996
Columbus, Ohio
Gender: male

Re: CH study recruiting
Reply #2 - Apr 6^th, 2009 at 11:20pm

It strikes me as ironic that they are doing this trial, only 16 years after I started using Imitrex for my CH. I even used to travel 6 hours each way to go to the Diamond clinic. If it were practical, I'd participate, but alas it's not.

Anything to further the cause of getting good CH information out there.

Wishing you well,

Ray

Back to top

You have my prayers and compassion-I'm right there with you.

Dum tempus habemus, operemur bonum

*While we have the time, let us do good*

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

IP Logged

catlind

CH.com Moderator
CH.com Alumnus

Offline

Surf's Up!

Posts: 4536
Weaverville NC
Gender: female

Re: CH study recruiting
Reply #3 - Apr 7^th, 2009 at 6:45am

Well Ray, I'm not an imitrex fan as I've said, but the fact that GSK is doing a 4mg shot study specifically for CHers is what caught my eye.

Not sure how many are in the region that would qualify, but I figure it's worth looking into for those it's feasible for. The 'imitrex tip' DJ has carried for so long may well prove to provide a treatment for those who use it.

Cat

Back to top

A true friend is someone who reaches for your hand and touches your heart.

If yer gonna be stupid, ya gotta be tough

Who is John Galt?

IP Logged

Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: CH study recruiting Reply #4 - Apr 7^th, 2009 at 8:17am Beings that there are NO medications out there labeled first and formost for cluster headache sufferers (they're all for migrainers, even though we use them too), I'd say that this is GREAT news!! Thank you for the heads up Cat! mel
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

Ray

CH.com Alumnus

Offline

Ray

Posts: 1996
Columbus, Ohio
Gender: male

Re: CH study recruiting
Reply #5 - Apr 7^th, 2009 at 10:03am

Dear Melissa:

Imitrex IS labeled for CH.

Quote:

Cluster Headache: The efficacy of IMITREX Injection in the acute treatment of cluster headache was demonstrated in 2 randomized, double-blind, placebo-controlled, 2-period crossover trials. Patients age 21 to 65 were enrolled and were instructed to treat a moderate to very severe headache within 10 minutes of onset. Headache relief was defined as a reduction in headache severity to mild or no pain. In both trials, the proportion of individuals gaining relief at 10 or 15 minutes was significantly greater among patients receiving 6 mg of IMITREX Injection
5
compared with those who received placebo (see Table 3). One study evaluated a 12-mg dose; there was no statistically significant difference in outcome between patients randomized to the 6- and 12-mg doses.

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

I hope that you don't mind this extra info.

Ray

Back to top

You have my prayers and compassion-I'm right there with you.

Dum tempus habemus, operemur bonum

*While we have the time, let us do good*

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

IP Logged

Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: CH study recruiting Reply #6 - Apr 7^th, 2009 at 11:16am Ray, I know that Imitrex is labeled for CH, but it was developed for migraine sufferers. CH is not first on the label, only an afterthought. That was the point I was trying to make.
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

Ray CH.com Alumnus Offline Ray Posts: 1996 Columbus, Ohio Gender:	Re: CH study recruiting Reply #7 - Apr 7^th, 2009 at 11:43pm Point made and point taken! Thanks Melissa! Ray
Back to top	You have my prayers and compassion-I'm right there with you. Dum tempus habemus, operemur bonum While we have the time, let us do good Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: CH study recruiting Reply #8 - Apr 8^th, 2009 at 8:59am Ray wrote on Apr 7^th, 2009 at 11:43pm: Point made and point taken! Thanks Melissa! Ray Thanks Ray, I hope I didn't come off as being bullish or nitpicky! mel
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

Ray CH.com Alumnus Offline Ray Posts: 1996 Columbus, Ohio Gender:	Re: CH study recruiting Reply #9 - Apr 8^th, 2009 at 12:05pm Melissa: Nope, we're good. Ray
Back to top	You have my prayers and compassion-I'm right there with you. Dum tempus habemus, operemur bonum While we have the time, let us do good Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

Kilroy 2.0 CH.com Sponsor Offline Kilroy 2. is Here! Kilroy 2. is Everywhere! Posts: 1637 Madison,WI Gender:	Re: CH study recruiting Reply #10 - Apr 9^th, 2009 at 9:42pm I am confused My doctor gave me several Imitrex 4mg stat doses. Normally they are Blue for the 6mg the 4mg is yellow. So is the study so they can be labeled for CH?
Back to top	Do the walls speak to you? Do you follow the Geek Messiah? DO YOU COMPLY?! IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!