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Melissa

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Re: That's IT!!
Reply #25 - Feb 6^th, 2009 at 8:24am

Thanks Jackie, love you Kiss

Well, last night was better than the night before. Only had 4 attacks instead of the usual 6. Killed them all with O2. Only difference I did was taking 6mg of Melatonin 30min. before bed and one 850mg pill of Taurine (I need it for my anxiety) in addition to my standard vitamin regiment. One did take something like 33 min. on the O2 to kill, but at least I wasn't beating my head with my fist. Undecided

I found that they go away quicker if I breathe the O2 while laying down on my left side (I get hit on my right) and "massaging" where it hurt with no finger pressure. That way I can stay more calm and my breathing has an even, steady pace.

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Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

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Ellick

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Re: That's IT!!
Reply #26 - Feb 6^th, 2009 at 11:19am

Hi Melissa,

So your idea seems like it was on the right track, even though it hasn't brought you PF.

I am glad for you that the edge seems to be taken off a bit.

I think I am coming out of cycle. No hits for the last 3 days and nights although some strong shadows.

When I am in remission, I forget all about CH. I think this is partly to enjoy PF time and partly to block out the idea of a future cycle.

This time round I am going to try to live alongside it and look at and try preventatives before my next cycle is due. So that means starting on treatment in, mid May.

I will definitely be reporting back here with what ever happens.

I hope your battle is short and remission is as long as long can be.

Ellick.

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oregonian clusterer CH.com Newbie Offline I Love CH.com! Posts: 8	Re: That's IT!! Reply #27 - Feb 6^th, 2009 at 12:37pm In the middle of sickening bouts, truly understand your pain. Out of desperation tryin kudzu, had no faith in it, but would you believe I'm getting relief! Slowly showing some improvement after 5 days but too early to tell. But I'm IMPROVING! May be worth looking into? Heard about it here from other sufferers......thank you guys!
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Melissa

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Re: That's IT!!
Reply #28 - Feb 6^th, 2009 at 1:19pm

oregonian clusterer wrote on Feb 6^th, 2009 at 12:37pm:

In the middle of sickening bouts, truly understand your pain. Out of desperation tryin kudzu, had no faith in it, but would you believe I'm getting relief! Slowly showing some improvement after 5 days but too early to tell. But I'm IMPROVING! May be worth looking into? Heard about it here from other sufferers......thank you guys!

LOL! Thanks oregonian.

I did the 'Zu last cycle and it worked awesome for me. Unfortunately I was too late this cycle and screwed up by trying something else. I am now at the tail end of it and I won't mess with it anymore as it only makes things worse.

I am thrilled though that Kudzu is helping you!! I hope it keeps up and that your cycle is a short one.

mel

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Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: That's IT!! Reply #29 - Feb 6^th, 2009 at 1:21pm Ellick, thank you so much and it is great that your cycle is on the way out. I hope to be following close by! BTW, if you can, stick around to help other sufferers when you can. Any help we can give to others here is precious. mel
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Ellick

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Re: That's IT!!
Reply #30 - Feb 6^th, 2009 at 6:28pm

Melissa wrote on Feb 6^th, 2009 at 1:21pm:

Ellick, thank you so much and it is great that your cycle is on the way out. I hope to be following close by!

BTW, if you can, stick around to help other sufferers when you can. Any help we can give to others here is precious.

mel

I'll be sticking around. Looking forward to your post that you are PF.

Ellick.

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barry_sword CH.com Alumnus Offline Mountain Biking Keeps Me Sane Posts: 3947 Bracebridge, Canada Gender:	Re: That's IT!! Reply #31 - Feb 6^th, 2009 at 10:21pm Mel, bump.
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Sandy_C

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Re: That's IT!!
Reply #32 - Feb 7^th, 2009 at 11:45am

Geez Mel, I'm so sorry you are having such a rough time finding something to help you this cycle.

I wish I could take some f it away from you.

All I can contribute I am caffeine intolerant, meaning that I drink no more than 2 cups of coffee before noon. Otherwise, I'm awake all night.

However, I have found that Red Bull or other caffeine/taurine drinks have helped me. That combined with 02 and my rc seeds have kept me almost pain free for over two years ( two or three rouge hits in between).

Just know that I'm vibing, praying and sending hugs to you.

Sandy

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sandie99 CH.com Hall of Famer Offline Wish it, dream it, do it - inspite the pain! Posts: 11975 Finland Gender:	Re: That's IT!! Reply #33 - Feb 7^th, 2009 at 1:12pm Mel, I'm so sorry that this cycle is a brutal one for you. And I'm sorry to hear that energy drinks don't agree with you - well at least that one. I was hoping that they would help you, too! Lots of PF wishes your way, Sanna
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Melissa

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Re: That's IT!!
Reply #34 - Feb 8^th, 2009 at 7:20am

Sandy & Sanna, thank you!! Kiss

Ok, here's an update: Friday night I was woken with 3 attacks, and here's the kicker, last night I fell asleep at 4:30pm and slept off and on until I woke with an attack at 5:17am this morning (which I aborted with O2 till it went away at 5:33am). Now, I'm not sure if it's what i'm doing that's helping, or if my cycle is FINALLY winding down.

Either way I'll take it!!!!!!

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Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

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Iddy CH.com Alumnus Offline Smile Posts: 486 Toronto,Canada Gender:	Re: That's IT!! Reply #35 - Feb 9^th, 2009 at 4:09pm Mel, I hope today finds you in less pain and close to the end of this awful cycle. Walk in Peace Iddy
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midwestbeth CH.com Sponsor Offline Posts: 1123 Edwardsville, IL Gender:	Re: That's IT!! Reply #36 - Feb 9^th, 2009 at 4:11pm Great news Mel!! I hope the beast is packing his bags and leaving!! Hugs, Beth
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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: That's IT!! Reply #37 - Feb 9^th, 2009 at 4:30pm Mel, I'm glad you got a bit of rest. I sure hope he's on his way out! Hugs to ya! Jeannie
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slhaas

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Re: That's IT!!
Reply #38 - Feb 10^th, 2009 at 1:30pm

Why are you off meds Melissa? Have you tried any of the clusterbuster remedies? I tried RC seeds once since they are legal, and as gross as it was it seemed to help. I had to do a few doses and it definitely lowered the intensity and frequency of attacks after the 3rd dose, and then either the cycle ended or the RC seeds aborted it. I also tried the more standard CB method once, and as much as I didn't like it, the headaches went away for over a year.

Who do you get your Oxygen from? I made a deal with an Apria manager in SE Wisconsin and get a good rate and such on the O2 if I bring my own tanks in to be refilled. I've never had to update my script with them either. It's a shame the O2 isn't working so well for you anymore. Have you tried staying on it longer after the attack is aborted?

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sandie99 CH.com Hall of Famer Offline Wish it, dream it, do it - inspite the pain! Posts: 11975 Finland Gender:	Re: That's IT!! Reply #39 - Feb 10^th, 2009 at 2:27pm I do hope that your cycle is ending! Sanna
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Melissa

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Re: That's IT!!
Reply #40 - Feb 11^th, 2009 at 3:02pm

Thanks everyone! The night before last was rough, had 5 attacks, but I'm pretty sure it's because I forgot to take my extra Magnesium & Zinc along with my normal vit. regiment. Last night was MUCH better, only 1 attack again!

slhaas wrote on Feb 10^th, 2009 at 1:30pm:

Why are you off meds Melissa? Have you tried any of the clusterbuster remedies? I tried RC seeds once since they are legal, and as gross as it was it seemed to help. I had to do a few doses and it definitely lowered the intensity and frequency of attacks after the 3rd dose, and then either the cycle ended or the RC seeds aborted it. I also tried the more standard CB method once, and as much as I didn't like it, the headaches went away for over a year.

Who do you get your Oxygen from? I made a deal with an Apria manager in SE Wisconsin and get a good rate and such on the O2 if I bring my own tanks in to be refilled. I've never had to update my script with them either. It's a shame the O2 isn't working so well for you anymore. Have you tried staying on it longer after the attack is aborted?

Steve, I wrote this on another thread on the CH Specific board, but I'll copy and paste it here.

Quote:

I do have medication (i.e. Relpax, Amerge), but would rather take natural remedies as prevents and abortives. I had very, very good luck with Kudzu my last cycle, but I screwed up this cycle by not taking it and took Taurine instead thinking it'd work as a prevent. It does not for me. Also, triptans tend to cause a higher attack frequency and longer cycle duration for me.

As for hallucinagenics, I have a history of clinical depression and anxiety/panic disorder and had adverse effects when I tried it last cycle also. Therefore I chose not to try it for this one.

as for the O2, I get mine from Walgreens Home Care that has Lifegas as their supplier. So far I haven't had a problem obtaining what I need. As for staying on it longer after the CH has passed, it doesn't do a bit of difference for me. The CH's attack as soon as I hit REM sleep.

Thanks!

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« Last Edit: Feb 11^th, 2009 at 3:04pm by Melissa »

Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

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slhaas

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Re: That's IT!!
Reply #41 - Feb 11^th, 2009 at 5:51pm

Melissa wrote on Feb 11^th, 2009 at 3:02pm:

Quote:

I do have medication (i.e. Relpax, Amerge), but would rather take natural remedies as prevents and abortives. I had very, very good luck with Kudzu my last cycle, but I screwed up this cycle by not taking it and took Taurine instead thinking it'd work as a prevent. It does not for me. Also, triptans tend to cause a higher attack frequency and longer cycle duration for me.

As for hallucinagenics, I have a history of clinical depression and anxiety/panic disorder and had adverse effects when I tried it last cycle also. Therefore I chose not to try it for this one.

as for the O2, I get mine from Walgreens Home Care that has Lifegas as their supplier. So far I haven't had a problem obtaining what I need. As for staying on it longer after the CH has passed, it doesn't do a bit of difference for me. The CH's attack as soon as I hit REM sleep.

Thanks!

Yikes! No more verapamil either I assume. I am cautious of hallucinagenics as well. Though I hated the feeling, it was worth it the one time I tried with mushrooms as it ended the cycle for a long time. The RC seeds made me feel nothing other than less intense and less frequent hits, so it might be worth a try.

I feel bad for you regarding the oxygen. My headaches are triggered by REM sleep too, but I wake up, hit the oxygen to abort and then stay on it a good while after I'm PF. Then I'm able to go back to sleep and am rarely hit again with a new REM cycle. My doctor swears that if I don't have a lung disorder I could sleep with the oxygen on, but I haven't tried it, and even if it were safe I think it'd waste a lot of oxygen, but it's something to consider as well.

I'm glad you found relief in Kudzuu and with mealtonin, zinc, etc. Neither did much for me. I would love to be all natural like you're doing. I hate how many chemicals I'm pumping into my body.

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Re: That's IT!!
Reply #42 - Feb 15^th, 2009 at 3:42pm

Sorry the energy drinks don't agree. I found Monster Hitman energy shot that seems to abort when I get the eye twitch going at work. Kind of citrusey taste that is not disagreeable, but I'd rather down a Loca Moca. I've been using one of the SAD lights in the mornings which is supposed to regulate the natural melatonin and seratonin levels. At least for me, it's evened out my moods and I seem to be on an even keel. I also seem to be getting better sleep.

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