Click this link to read a post I like on the clusterheadaches.com message board...

Melissa

CH.com Moderator
CH.com Alumnus

Offline

Don't give up!

Posts: 7238
Central WI, USA
Gender: female

That's IT!!
Feb 3^rd, 2009 at 5:14pm

I'm sick and tired of hurting!!! I'm going to try a Redbull (or Rockstar if they have it) for my next attack. Just got over one and am wiped out. Sad

I am nervous about one thing though, and that's the caffeine. I don't drink caffeine out of cycle and limit caffeinated coffee to when I have attacks. I'm a bit scare of jumping out of my skin, but I can't take the pain anymore. Cry

Back to top

Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

IP Logged

ski2k CH.com Old Timer Offline Posts: 498 Muskegon, Michigan USA Gender:	Re: That's IT!! Reply #1 - Feb 3^rd, 2009 at 5:21pm So sorry, Mel. Maybe just pound down 1/2 of one and see if it helps. Don't need ya bouncing all over the boards now, do we! I was wondering if my heart was just gonna blow up last week.... drank 7 one day. Was in so much pain that i really didn't even notice if it made me hyper. Hope you get some relief SOON! Adam
Back to top	Here's where I got my RC (Rivea Corymbosa)seeds: I am Shaman&&Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

CH-HELL Ex Member	Re: That's IT!! Reply #2 - Feb 3^rd, 2009 at 5:31pm I suggest Monster Loca Moca it tastes good not like Red Bull and the Loca Moca is not carbinated so you can leave it open in the fridge and it doesn't go bad, you can even separate it before you are having a hit for you Mel 1/3 of a can will probaly do. Hope this passes for you soon. Phil
Back to top	IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: That's IT!! Reply #3 - Feb 3^rd, 2009 at 5:38pm Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

Marc Ex Member Gender:	Re: That's IT!! Reply #4 - Feb 3^rd, 2009 at 5:38pm Mel, O2 not working?
Back to top	IP Logged

Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: That's IT!! Reply #5 - Feb 3^rd, 2009 at 5:39pm Mel - Might I suggest NOS. Comes in three flavors: original (passionfruit), fruit punch, and grape. I'm partial to the original myself. Good dose of caffeine and taurine.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

Melissa

CH.com Moderator
CH.com Alumnus

Offline

Don't give up!

Posts: 7238
Central WI, USA
Gender: female

Re: That's IT!!
Reply #6 - Feb 3^rd, 2009 at 5:44pm

Marc wrote on Feb 3^rd, 2009 at 5:38pm:

Mel,

O2 not working?

Not like it has in the past Marc. Only kills 70% of my attacks, I've had to be on it longer, some for 30 min. and I just end up waking up 45 minutes later with another one unless I decided to ride it out (which SUCKS), then I'm able to sleep for 4-5 hours.

I'm not sure if I'll do the energy drinks just yet. I'm contemplating a few things right now, like trying to get my cycle to regulate itself with just trying one thing for awhile, per a friends suggestion.

I hate these things, when I'm getting hammered so often and with such intensity, I tend to want to try EVERYthing out of desperation! Sad

Back to top

Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

IP Logged

CH-HELL Ex Member	Re: That's IT!! Reply #7 - Feb 3^rd, 2009 at 5:46pm Brew wrote on Feb 3^rd, 2009 at 5:39pm: Mel - Might I suggest NOS. Comes in three flavors: original (passionfruit), fruit punch, and grape. I'm partial to the original myself. Good dose of caffeine and taurine. For some reason I thought NOS didn't contain as much Taurine , Monster has 2000mg per can.
Back to top	IP Logged

barry_sword CH.com Alumnus Offline Mountain Biking Keeps Me Sane Posts: 3947 Bracebridge, Canada Gender:	Re: That's IT!! Reply #8 - Feb 3^rd, 2009 at 6:07pm Mel
Back to top	QUIT SMOKING SEPT. 03 2005 Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: That's IT!! Reply #9 - Feb 3^rd, 2009 at 8:33pm You are med free right Melly? Be careful mixing energy drinks with Taurine supplements. You don't want to dump too much Taurine into your system. Have you talked with Pete about how you use O2? It might be worth a quick conversation. Failing all that I'm right with you sister... -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: That's IT!! Reply #10 - Feb 3^rd, 2009 at 8:41pm The specific advice I was looking for from Pete is here: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or The PH of your blood can hurt or help O2's effectiveness. -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

coach_bill CH.com Hall of Famer Offline "Dont expect me to lay down for this" Posts: 680 x0\|euclid\|USA\|\|0\|0\|OH,Ohio Gender:	Re: That's IT!! Reply #11 - Feb 3^rd, 2009 at 9:00pm Sorry about your hits, I understand what your feeling. I just wish i could help. Coach Bill
Back to top	boy i cant wait till it's my turn to give him a headache. paybacks a bitch IP Logged

Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: That's IT!! Reply #12 - Feb 3^rd, 2009 at 9:07pm Thanks everybody!! I think I have found what may be causing this cycle to be so brutal and out of whack. Thread here: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

Brew

CH.com Sponsor
CH.com Alumnus

Offline

Posts: 14163

Re: That's IT!!
Reply #13 - Feb 3^rd, 2009 at 9:33pm

Quote:

Brew wrote on Feb 3^rd, 2009 at 5:39pm:

Mel - Might I suggest NOS. Comes in three flavors: original (passionfruit), fruit punch, and grape. I'm partial to the original myself. Good dose of caffeine and taurine.

For some reason I thought NOS didn't contain as much Taurine Huh

, Monster has 2000mg per can.

Each 8 oz. contains 1000 mg of taurine and 130 mg of caffeine. It comes in 8 oz. bottles, 16 oz. cans, and 22 oz. bottles. They also have a Powershot available now.

Back to top

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand

IP Logged

kevmd CH.com Hall of Famer Offline Who needs a hypothalamus anyway? Posts: 524 x0\|philadelphia\|USA\|\|0\|0\|PA,Pennsylvania Gender:	Re: That's IT!! Reply #14 - Feb 3^rd, 2009 at 10:41pm wish I could take one for you
Back to top	PHILADELPHIA PHILLIES 2008 WORLD CHAMPS IP Logged

Melissa

CH.com Moderator
CH.com Alumnus

Offline

Don't give up!

Posts: 7238
Central WI, USA
Gender: female

Re: That's IT!!
Reply #15 - Feb 4^th, 2009 at 6:44am

Dennis- yes I am med free. I'm not even taking the Taurine supplements anymore. In fact, I am taking nothing but a Relpax after my 2nd attack of the night, as then I can sleep until 5am or 5:30am.

Thank you Kev. Cry

Well, since I was begging God to take my life last night (also ran out of O2 in the tank about 10 min. into huffing), I'm going to try the energy drink tonight. I have to try, because this is ridiculous the amount of pain I'm enduring. I have no clue when this cycle is going to end. I thought it would run it's 40 day course, but that would mean it'd be over by Feb. 15th. But after everything I've experienced, I'm not going to get my hopes up. Sad

Back to top

Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

IP Logged

Marc

Ex Member

Gender:

Re: That's IT!!
Reply #16 - Feb 4^th, 2009 at 8:45am

I'm having the same problem right now. O2 kills it, but they come back every 60-120 minutes all night. This is a typical pattern for me when get into a high cycle.

When the first one hit at 11:30 last night, I chugged a Monster energy drink (20 calories) with 2,000 mg of Taurine. As usual, the O2 killed the hit, but they still came back on schedule.

I tried a second Monster at 3:00AM, but I was back on the O2 at 4:00AM.

Hope it works for you. Are you getting more O2 immediately?

Back to top

IP Logged

Melissa

CH.com Moderator
CH.com Alumnus

Offline

Don't give up!

Posts: 7238
Central WI, USA
Gender: female

Re: That's IT!!
Reply #17 - Feb 4^th, 2009 at 9:14am

Thanks Marc! My husband hooked up my last tank after the one ran out, only I had him do it after the attack was done. I had had a Kip 10, and even if I had woke him to hook it up right away, I already knew nothing was going to touch it.

This tank will get me through the next 2 nights, and I am swapping the 3 empties tomorrow during my run to town.

I'm so sorry you're experiencing what I am. It's one thing to kill them quick, but when you have to do it so often, it's like which is worse? Waking up so much or riding one out just to get some sleep?

The beast is a bastard. Angry

Back to top

Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

IP Logged

Marc

Ex Member

Gender:

Re: That's IT!!
Reply #18 - Feb 4^th, 2009 at 9:32am

Being the chicken that I am, I'll never willingly ride out a K10.

If I could be sure that a particular hit wasn't going to escalate, I'd do it in order to get some precious sleep. But in 12 years of being chronic, I've learned something about Murphy's Law: "Murphy was an optimist"

Perhaps I'm just not as tough as I once was, but I just can't take a true K10 anymore.

Hoping you don't have to either!

Back to top

IP Logged

Melissa

CH.com Moderator
CH.com Alumnus

Offline

Don't give up!

Posts: 7238
Central WI, USA
Gender: female

Re: That's IT!!
Reply #19 - Feb 4^th, 2009 at 11:51am

AHHHHH!! Sometimes life likes to play with me!!!

Called my O2 provider to double check that there wouldn't be a problem swapping my tanks tomorrow. Here she said they hadn't heard a thing from my docs office and that there was no new scrpt. WHAT????

Call the docs office, waited for the nurse to call me back. Nervous as all hell! The nurse called me back about 30 min. later saying they faxed the damn script yesterday. Cripes!!

Call the O2 provider back to let her know, says she didn't see anything, but that I'm clear to swap my tanks.

OHFORPETESAKE!!! Tongue

Back to top

Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

IP Logged

midwestbeth CH.com Sponsor Offline Posts: 1123 Edwardsville, IL Gender:	Re: That's IT!! Reply #20 - Feb 4^th, 2009 at 12:07pm Glad to hear you're getting the 02 Mel. Hope you get a break soon! Hugs, Beth
Back to top	Dum vita est spes est IP Logged

Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: That's IT!! Reply #21 - Feb 4^th, 2009 at 1:32pm Thank you Beth. Well, I picked up my energy drinks. I got 3 different kinds because I didn't know which one I'd like, lol. I got 2 Rockstar Roasted's, one Light Vanilla and the other premium blended Mocha and a Starbucks Doubleshot vanilla.
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: That's IT!! Reply #22 - Feb 4^th, 2009 at 2:08pm Hope you catch a break soon, Mel. Sorry you are having such a rough time! Jeannie
Back to top	"It's all a grand illusion when you think you're in control." ~ Kenny Chesney IP Logged

Melissa

CH.com Moderator
CH.com Alumnus

Offline

Don't give up!

Posts: 7238
Central WI, USA
Gender: female

Re: That's IT!!
Reply #23 - Feb 5^th, 2009 at 4:41pm

Update: Ran into a snag last night, was NOT fun!!

1. Took too much Melatonin (12mg), made me so freaking drowsy and loopy that was hard to even walk to the bathroom. Roll Eyes

2. NO MORE ENERGY DRINKS. I don't know if it's because I didn't try the fruity kind first, but even a 1/3rd of a can made me soooo sick to my stomach. Mocha and me don't agree. Tongue

3. Panic attacks! Due to the side effects of the above, had waves of them when I woke at 5am this morning after a shitty night.

One good thing I found, that the Melatonin brings the pain level down a couple notches for me.

I soooo gotta learn to do things slowly. Undecided

Back to top

Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

IP Logged

Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: That's IT!! Reply #24 - Feb 5^th, 2009 at 4:50pm Wish I had the answers, Sweetie. I don't but sure am thinking of you and sending positive thoughts. Love ya, Jackie
Back to top	IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!