Hello dear American (and other) friends. Haven't posted a lot lately coz I've been feeling like crap for what seems an eternity, though it is getting better since yesterday. Keeping my hopes up!

As a longtime clusterheadache-sufferer (since I was 17 or 18) I was asked to participate in a large survey concerning CH, which is a collaboration between my own hospital here in Heerlen and the LUMC in Leiden, under the supervision of Dr. Koehler in my city and in Leiden by Dr. Ferrari, whom are both experts in CH.

It was a questionaire of 68 questions, on oxygen usage, which treatments you've had in the past, what works, what doesn't, if you use heat or cold to get through a hit, how your CH manifests itself in pain, duration etc.

Off course I made sure to mention that here, in the NL, the lpm should be higher (prescribed up to 12 lpm), for I have learned that here.

As soon as the results are known, I will make sure to post on it here.

I hope everyone has been as much painfree as possible.




Greetings from the Netherlands, Pascal.

Hi Pascal,I'm glad to hear you are feeling a bit better.

It's always nice to hear that one of us is suffering less.

I also look forward to your results. Walk in Peace

Awesome Pascal!  I noticed today when I was researching some info that there has been a fair bit of activity with CH studies over in your part of the world. 

It's awesome that there is still lots of research going on

Cat