Click this link to read a post I like on the clusterheadaches.com message board...

robert riegelsperger

CH.com Newbie

Offline

I Love CH.com!

Posts: 16
houston
Gender: male

over 50 years old
Jan 22^nd, 2009 at 12:32pm

I read that only about 4% of CH sufferers are over 50. Being 52 and just coming off cycle of 3 weeks with severe attacks every night, I'm wondering if I'm nearing the end of this crap. Are there any other over 50s out there that have seen declines or complete remissions? This was the first episode I've had in 2 years. Up untill now it has been a yearly affair. Just hoping for something positive about getting older.
Thanks

Back to top

IP Logged

Click Here to visit the CH.com Facebook page!

Just Plain Carl CH.com Old Timer Offline IT IS WHAT IT IS Posts: 449 Royal Oak, Michigan Gender:	Re: over 50 years old Reply #1 - Jan 22^nd, 2009 at 12:37pm Hello Robert, I was told a few years ago that I would eventually grow out of this. I thought I did. Six years remission and out of the blue.......whammo. I'm 62. However, I will say that this cycle was much easier than what I remember. Good Luck To Ya JPC
Back to top	IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: over 50 years old Reply #2 - Jan 22^nd, 2009 at 12:57pm Not sure what the actual percentages are but we got a lot of over 50'er's here. About to hit 49, and like you, I'm hoping to outgrow them! Some do, some don't, but we are the eternally optimistic bunch! Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

Artonio CH.com Alumnus Offline I Love Posts: 604 New Castle, Pa Gender:	Re: over 50 years old Reply #3 - Jan 22^nd, 2009 at 1:13pm Hi Robert... I'm 53 and chronic. So far they seem to be getting worse each year. There is one huge difference between having them this year and when I first got them. I know what they are and I am armed with o2 and a great support group. with warm regards, Tony
Back to top	For in our hands lies the ability to shape our world for good or for ill. President Barack Obama IP Logged

JimH333

CH.com Newbie

Offline

I Love CH.com!

Posts: 6

Re: over 50 years old
Reply #4 - Jan 22^nd, 2009 at 1:34pm

Robert,
I am 54 and started getting CH's in my early 30's.
They are not nearly as severe and I do use any medications or oxygen. The length of the attack has dramatically reduced as well so I hope for your sake they decrease for you as well over time.
How I batlle them now is by breathing deep and consistant when I feel one coming on and if it doesn't abort I then use heat or cold applied to my sinus and neck area under my right ear.
Hang in there pal, I wish you the best.
Jim

Back to top

IP Logged

Ellick

CH.com Veteran

Offline

ET found here.

Posts: 200
x1|Aylesbury|UK
Gender: male

Re: over 50 years old
Reply #5 - Jan 22^nd, 2009 at 1:47pm

Hope that information is right. I am just about to make 58 and I have been yearly episodic for about 15 years. This cycle is 2nd time in 12 months.
Pain is the same (usually up to 8) but I know it better.
My best times so far in remission terms was my late teens, 20s, and most of my 30s.
It would be nice to think I've done my 'time' with clusters but one thing is for certain; unpredictability!

I hope there is a cure or safe treatment in the not too distant future and freedom from pain for us all.

Ellick.

Back to top

ET

IP Logged

BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: over 50 years old Reply #6 - Jan 22^nd, 2009 at 3:22pm Ellick wrote on Jan 22^nd, 2009 at 1:47pm: I hope there is a cure or safe treatment in the not too distant future and freedom from pain for us all. Ellick. I'll second that hope. I'm WAAAY over 50 (shut up Chuckles!) and am chronic. I really don't think this bastard plays favorites with ages... Hugs BD
Back to top	What don't kill ya, Makes ya stronger! IP Logged

ClusterChuck

CH.com Alumnus

Offline

The BEAST rises again,
and again, and again,
and .

Posts: 5394
Greenville, North Carolina
Gender: male

Re: over 50 years old
Reply #7 - Jan 22^nd, 2009 at 4:10pm

Nope! Not gonna make ANY comments about some of the old geezers that already answered this thread .... Nope ... Ain't agonna do it ... Ain't even gonna comment on how BarbaraD was the one that instructed Eve to give Adam the apple ... Nope ... Won't do it ...

I am damn close to 60 ... my clusters have gotten worse since I hit 50 ... The last few years have been the worst in all the 30 years I have been dealing with the beast ...

BUT, once I grow up, they should get better ...

Chuck

Back to top

CAUTION: Do NOT smoke when using or around oxygen. Oxygen can permeate your clothing or bedding. Wait, before lighting cigarette or flame.

Keep fire extinguisher available, and charged.

IP Logged

Marc Ex Member Gender:	Re: over 50 years old Reply #8 - Jan 22^nd, 2009 at 5:43pm 55 here and been chronic for about 12 years. My hits did get worse when I hit about 50, but now I understand how to use O2 and never have to endure the bad hits. (Maybe they didn't get worse, it could just be getting less tough!) Marc
Back to top	IP Logged

Click Here to visit the CH.com Facebook page!

Blue_eyes CH.com Junior Offline One day at a time Posts: 70 Minneapolis, MN. Gender:	Re: over 50 years old Reply #9 - Jan 22^nd, 2009 at 5:53pm I am 49, this would be a great birthday gift. Hope it's true.
Back to top	IP Logged

Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: over 50 years old Reply #10 - Jan 22^nd, 2009 at 7:07pm 58 y/o here. I was yearly until I hit 40 y/o then they jumped to every other year. Last remission was over 3 years but the cycle lasted 5 months, up from 6 weeks in the past. So, I get longer remissions and longer cycles.
Back to top	Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron. "SHUT UP HUB!" IP Logged

George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: over 50 years old Reply #11 - Jan 22^nd, 2009 at 9:31pm I'm 55. I've had episodic CH since I was 13. As time has passed, the cycles (which remain about the same duration) have gotten farther and farther apart--from twice yearly, to once every three years. Best, George
Back to top	"Whoever loveth me, loveth my hound." (Thomas More, author of "Utopia", and Chancellor of England. 1477-1535) IP Logged

Skyhawk5 CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1320 Ypsilanti, Mi. USA Gender:	Re: over 50 years old Reply #12 - Jan 23^rd, 2009 at 1:33am I'm 53 and still get 6 month long cycles. Still get Kip-10's but I have learned to abort many more than in the past. My remissions have gotten shorter instead of longer. I hope that changes. Good luck to you. Don
Back to top	Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not. IP Logged

robert riegelsperger

CH.com Newbie

Offline

I Love CH.com!

Posts: 16
houston
Gender: male

Re: over 50 years old
Reply #13 - Jan 23^rd, 2009 at 9:10am

Thanks to all for the replys. Not what I wanted to hear but it's nice to know I'm not alone. I've had yearly episodes since I was about 30 but it took finally seeing a neurologist when I was 45 or so to diagnose properly. My first Imiterx injection was like gift from God. O2 helps but I need the right setup. I will see about getting a tank and the right mask before the beast returns. Looking back, I don't know how I made it through all those years dealing with this with no meds besides tylenol and antibiotics for a sinus infection. It's a miracle I didn't blow my brains out. Thank god I finally found a good doc and this website. God bless you all.
Robert

Back to top

IP Logged

Jonny Ex Member	Re: over 50 years old Reply #14 - Jan 23^rd, 2009 at 9:00pm I was chronic for 31 years, went episodic for a short while and then the beast left almost two years ago. Im 46 years old.....Go figure!
Back to top	IP Logged

Barry_T_Coles

CH.com Alumnus

Offline

Posts: 2073
Karratha|,West_Australia
Gender: male

Re: over 50 years old
Reply #15 - Jan 23^rd, 2009 at 10:06pm

I had my first ever cycle about 1 ¹/₂ months before I turned 50 & then went 5 years without anything before getting another cycle & going chronic; I just turned 60, so if they go away with age then I'm going to have to live a long time to test out the theory.

I'm much like Chuck, I may have grown old I just never grew up. Wink

Cheers
Barry

Back to top

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Of all the things i've lost in life the thing i miss most is my mind.

IP Logged

ClusterChuck

CH.com Alumnus

Offline

The BEAST rises again,
and again, and again,
and .

Posts: 5394
Greenville, North Carolina
Gender: male

Re: over 50 years old
Reply #16 - Jan 23^rd, 2009 at 11:45pm

Barry_T_Coles wrote on Jan 23^rd, 2009 at 10:06pm:

I may have grown old I just never grew up.

Barry, why on earth would we want to do that?

Although, one of these days, I suppose I should sit down and figure out what I am going to be, when I grow up ... ... ... ... NAH !!! Got plenty of time to make that decision!

PeterPanChuck

Back to top

CAUTION: Do NOT smoke when using or around oxygen. Oxygen can permeate your clothing or bedding. Wait, before lighting cigarette or flame.

Keep fire extinguisher available, and charged.

IP Logged

Click Here to visit the CH.com Facebook page!

MITYRARE CH.com Old Timer Offline autocross racer Posts: 361 Ontario, Canada Gender:	Re: over 50 years old Reply #17 - Jan 25^th, 2009 at 4:37pm Blue_eyes wrote on Jan 22^nd, 2009 at 5:53pm: I am 49, this would be a great birthday gift. Hope it's true. For my 50th birthday, I found the thread here about Testosterone therapy "Why don't we pay attention to this".... best birthday gift ever.....still i pray and keep my fingers crossed one day at a time! Paul
Back to top	Paul "car crazy" IP Logged

Balanchine

CH.com Alumnus

Offline

Posts: 238
x0|Los Angeles|USA||0|0|CA,Cal
Gender: male

Re: over 50 years old
Reply #18 - Jan 25^th, 2009 at 6:34pm

Robert: Truly, there's no rhyme nor reason to this business. I'm 55 and, like some others, thought it was all behind me after going 4 years without a true cycle after maybe 20 years of regular ones. Then I got hit last May with the hardest and longest bout I can remember. My neurologist told me that age is not a factor, that he had other patients in their 60s and 70s still dealing with this shit... oh goodie.

Hang in there!
David

Back to top

IP Logged

andrewjb CH.com Hall of Famer Offline when the love of power becomes the power of love ! Posts: 1612 x1\|london\|England\|europe\|185\|238\| Gender:	Re: over 50 years old Reply #19 - Jan 26^th, 2009 at 3:18pm I'am 53 this year, still going strong, It'll make it 41 years. Prof Goadsby, said he'd observed a 90year old having an attack ! Stay strong. Andrew.
Back to top	IP Logged

Margi

CH.com Alumnus

Offline

Nuthin like a good neck
rub!

Posts: 3814
x1|Calgary|Canada|
Gender: female

Re: over 50 years old
Reply #20 - Jan 26^th, 2009 at 3:23pm

Add my hubby to the over 50 crowd, still clustering. Mike is 51 and he's in cycle right now. As many have said, remissions do get longer - Mike's longest was 3 years but this last one was only 9 months so...who friggin knows?

He handles them a lot better now, thanks to this board and the discovery of oxygen and zomig nasal spray (thanks, Jonny Kiss

). I think now that he knows what he's dealing with and it's not going to kill him, his "clustertude" is a lot more patient overall and THAT's been huge in survival. This cycle started out quite mild but, exposure to mold and dust last week really caused things to escalate over the weekend for him.

Sorry, not what you're wanting to hear, I know - we've all held out hope for 50 but...can't prove the theory here.

edited to add: Mike's first cluster cycle was established in his early 20's although he does remember a few rogue attacks prior to that, starting at age 8 and we think his father may have been a clusterhead, too, although never diagnosed.

Back to top

« Last Edit: Jan 26^th, 2009 at 3:25pm by Margi »

And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)

IP Logged

Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: over 50 years old Reply #21 - Jan 26^th, 2009 at 3:24pm andrewjb wrote on Jan 26^th, 2009 at 3:18pm: I'am 53 this year, still going strong, It'll make it 41 years. Prof Goadsby, said he'd observed a 90year old having an attack ! Stay strong. Andrew. Holy crap Andrew, they started when you were 12?? Are you chronic or episodic?
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

andrewjb CH.com Hall of Famer Offline when the love of power becomes the power of love ! Posts: 1612 x1\|london\|England\|europe\|185\|238\| Gender:	Re: over 50 years old Reply #22 - Jan 26^th, 2009 at 3:42pm , Episodic. Thankfuly, i guess. Andrew.
Back to top	IP Logged

Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: over 50 years old Reply #23 - Jan 26^th, 2009 at 3:49pm andrewjb wrote on Jan 26^th, 2009 at 3:42pm: Thankfuly, i guess. Ooo, I hear you there! So how long are your remissions and have they lengthened at all?
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

andrewjb CH.com Hall of Famer Offline when the love of power becomes the power of love ! Posts: 1612 x1\|london\|England\|europe\|185\|238\| Gender:	Re: over 50 years old Reply #24 - Jan 26^th, 2009 at 4:00pm I like to think i'am in constant remission !, Except mid october for six weeks, give or take.
Back to top	IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!