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Fenton CH.com Newbie Offline I love my family Posts: 20 Woodward Oklahoma Gender:	no night clusters Jan 10^th, 2009 at 11:44am all my headachs are in the day time now except 1 or 2 week they come around the same time every day around 1030 115 330 645 almost everyday.... they used to be like that at night just as regular. now they are during the day .. some times i get one and the after effects last all day anybody else had theirs change from nite to days like that?
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: no night clusters Reply #1 - Jan 10^th, 2009 at 12:01pm Yes, there was a time mine went from during the night to during the day, but it only happened when I'd screw with my preventatives.
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Bob Johnson

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Re: no night clusters
Reply #2 - Jan 10^th, 2009 at 12:44pm

It's unfortunate that the notion that CH are fixed in time and presentation has become so fixed in our thinking! The reality is that time, location, quality of pain, etc. shifts over months and years for many folks.

I've rarely seen medical materials spend time 0discussing the question and then with a notable absence of concern.

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: no night clusters Reply #3 - Jan 11^th, 2009 at 1:16am First 20 years I NEVER had a night hit. Once I fell asleep I was safe. Hit my 40's and they went all over the board! You'll see this a lot, the only cosistent thing about the beast is his ability to morph! Joe
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kika

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Re: no night clusters
Reply #4 - Jan 12^th, 2009 at 6:46pm

Mine have never hit at night ( going on 9 years episodic now), but come like clockwork within an hour of waking up. My very limited understanding of them is that it's related to your sleep/wake cycle, possibly originating in the hypothalamus. I would be PISSED if they woke me up and feel so badly for all of you to whom that happens.

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Nyteguardyan

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Re: no night clusters
Reply #5 - Jan 12^th, 2009 at 7:31pm

Mine are only during the day as well, and USUALLY only once a day, Between 1430-1700hrs. Had been PF for 2 weeks. Had a "regular" headache yesterday evening. I was awakened rather rudely by the beast this morning. Started minor and then exploded like a new star coming to life. YAY! And no imitrex. Cry

But alas...here we go again. But at least I'm armed for the next one.

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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: no night clusters Reply #6 - Jan 13^th, 2009 at 1:43pm Mine used to be all day time hits OR upon waking up in the morning. Two years ago they switched to mostly nights with some during the day. Now they are switching again.... getting hit after being stressed and then going to sleep. I don't think this is a TRUE cycle though. We'll see what Spring has to offer. Jeannie
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Jennifer CH.com Alumnus Offline Posts: 3265 Supply, VA Gender:	Re: no night clusters Reply #7 - Jan 13^th, 2009 at 2:18pm The first 10 years episodic, they came day and night. My night hits stopped, for whatever blessed reason, in '96. I've been counting that blessing for 13 years
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sandie99 CH.com Hall of Famer Offline Wish it, dream it, do it - inspite the pain! Posts: 11975 Finland Gender:	Re: no night clusters Reply #8 - Jan 13^th, 2009 at 2:25pm During my first few cycles I had no idea what night time hits were. After being a chronic for a while and then in remission, things changed. Now they can come day and night, whatever the beast chooses. Sanna
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Fenton CH.com Newbie Offline I love my family Posts: 20 Woodward Oklahoma Gender:	Re: no night clusters Reply #9 - Jan 13^th, 2009 at 2:50pm yep mine were nite an day continueously for severle years now just days for the last year and 1 maybe 2 at night a week
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Chris Morrow CH.com Veteran Offline Messin' with Sasquatch Posts: 100 Asheville, NC Gender:	Re: no night clusters Reply #10 - Jan 13^th, 2009 at 4:00pm The first four years, I only had them in the daylight, and only July-August. Then it changed, and, now, I mostly get hit during the night and in the months of November-March.
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on my knees Ex Member	Re: no night clusters Reply #11 - Jan 14^th, 2009 at 8:36pm all mine were daytime and pretty much still are, but every few days i get popped at night a time or two, only thing predictable about ch is the unpredictable. oddly enough you times are almost exactly the same times i get hit during the day, things that make you go hmmm!!
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cyberone CH.com Junior Offline Posts: 35 melbourne, AUST Gender:	Re: no night clusters Reply #12 - Jan 15^th, 2009 at 8:01am i fear sleep more than anything when im in cycle...always the worst of worst hits.... by the time i wake up its already started an a little too late to do much....
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George

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Re: no night clusters
Reply #13 - Jan 15^th, 2009 at 9:37am

Years ago, I used to get occasional daytime hits, particularly in mid-cycle. Nowadays I get hit almost exclusively at night--during REM sleep.

Needless to say, I get a little gunshy about sleeping.

No rhyme or reason to this thing, is there? It's striking how many differences we have--and how many similarities.

Best wishes,

George

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Guiseppi

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Re: no night clusters
Reply #14 - Jan 15^th, 2009 at 11:09am

CYBERONE.............
If no one has suggested it you sound like a good candidate for Melatonin. An over the counter supplement available at health food and vitamin stores. Take 6-9 mg 30 minutes before going to bed. Many have found they can avoid or at least reduce the night time terrors that way.

Good luck...I can't stand the thought of dreading sleep.

Joe

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Blue_eyes CH.com Junior Offline One day at a time Posts: 70 Minneapolis, MN. Gender:	Re: no night clusters Reply #15 - Jan 15^th, 2009 at 6:39pm I only got hit at night when I was episodic now I am chronic I get hit both day and night.
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MorDog CH.com Junior Offline Not Again! Posts: 31 Wauseon, Ohio / USA Gender:	Re: no night clusters Reply #16 - Jan 18^th, 2009 at 10:22pm I get a mixed bag. Hits during the day or night. More so at night though. Sleep is my #1 trigger.
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Just Plain Carl CH.com Old Timer Offline IT IS WHAT IT IS Posts: 449 Royal Oak, Michigan Gender:	Re: no night clusters Reply #17 - Jan 19^th, 2009 at 12:43pm Years ago, I used to get occasional daytime hits, particularly in mid-cycle. Nowadays I get hit almost exclusively at night--during REM sleep same for me. It was pretty rare to get a day hit with my last cycle. No sleep was a huge pain. Made me a zombie all day. PFD's JPC
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Marc Ex Member Gender:	Re: no night clusters Reply #18 - Jan 19^th, 2009 at 8:57pm Twelve years of chronic, always had day and night hits. The night hits are always worse because I don't hit the O2 fast enough because I'm asleep. I've become a very light sleeper just that reason.
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