Hello everyone,

My name is Josh. Nice to meet you all !!

I am a 27 year old male and i live in NC.
I have been having cluster migraines my whole life. As long as i can remember. My mother also often has headaches so i thought there might be a genetic trait here. But mine are a good bit different than hers.
It started out really young and i would just have a really bad headache all day. Throwing up, Light sensitivity, Noise sensitivity etc.
Then when i got in my teens a new headache would start. I have been having them about every day now for many many years. Seems like my whole life has been dealing with these while the world was turning around me.

I would go to sleep and wake up around 2 hours after going to sleep with a HORRIFIC eye headache. The pain would be all around my right eye and my right side of my face, Right sinus with complete clogging. I also have pain in my right teeth with this happens. Also hard core pain on the right side of my neck right below the skull. My tissue around my right eye gets puffy like someone hit me.
The pain is so horrific. I am a screaming mess when this happens and lately its been happening up to 3 o 4 times a night and they last around an hour each. It is the craziest thing. The next day i have what i call a tremor headache all day. Sore constant headache etc.
I was sure that over the years i had damaged my eye during the process. I would put steaming hot microwaved rice heat packs on my eye. It hurts so bad from the heat but anything is better than the headache. I have used ice also. Sometimes one helps better then the other but i can't really say helps because for some reason it has to run its course. When the hour is up my face looks tore up. Pressing and rubbing so hard i was sure at the times that i was doing damage. Again not caring because i just wanted the pain to go away.

Throughout the years i have gotten really really depressed and was diagnosed with Manic depressive and bipolar. But i have to wonder if it is from being in pain all the time. Not to mention that i am 27 and have been diagnosed with fibromyalgia . What the crap is in our drinking water huh??

Anyways i have done the doctor deluxe package and paid thousands upon thousands of dollars for some headache meds and pain meds and oxygen therapy. I have had scans galore. Nothing seems to be the problem.
Although when i use to go to a chiro they said i had an inflamed c-1. Not sure if this has anything to do with my headaches. I have been also told i could have TMJ.

I'm glad i found this site. I'm just getting so fed up and my wife is getting fed up too. She is tired of me being in pain and we hardly get to go anywhere anymore cause i have them ever morning and then have the tremor all day. I'm basically disabled at 27. Maybe i should see if i can get on disability. Then at least i could go to the doctor regularly as everyone knows no work no play no doc PERIOD.

I wanted to see if anyone could relate to these symptoms. Any treatments that worked etc. I have tried so many meds, OTC = Nothing. BetaBlockers = nothing imutrex = nothing tramadol = nothing  Maxalt = nothing and a LOT of others i can't even remember the names through the years. The only thing that has helped me is pain killers but my doctor said that he couldn't prescribe them any more cause he got a visit from the DEA. Also he only gave me 10 5MG vicodin a month so i could only have a short period of time to feel good.

Just thought i would pop in and see if anyone has anything that worked.

Thanks for listening.

Josh.

Welcome Josh.

Your story sounds so very familiar, and your resistance to prescribed medical therapies is similar to my own experience.

You are now with a good group of people that completely understand.

You have a private message.

Paul

Welcome to the funny farm!  You're among a small but strong community now...