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pubgirl

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Re: What does your CH pain "look" like?
Reply #50 - Dec 19^th, 2008 at 7:34pm

gizmo wrote on Dec 19^th, 2008 at 3:47pm:

Quote:

May et al.: PET and MRA findings in cluster headache and MRA in experimental pain Neurology 2000;55

Using the advanced method of voxel-based morphometry, it has been suggested that there is a correlation between the brain area activated specifically in acute cluster headache--the posterior hypothalamic grey matter--and an increase in grey matter in the same region.

Quote:

Goadsby PJ., Pathophysiology of cluster headache: a trigeminal autonomic cephalgia. Lancet Neurol. (2002)

Observations of circadian biological changes and neuroendocrine disturbances have suggested a pivotal role for the hypothalamus in cluster headache.

"Suggested" doesn't sound like a proof to me.

Suggest you look at more recent research. Goadsby hasn't actually been asleep since 2002

W

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Re: What does your CH pain "look" like?
Reply #51 - Dec 19^th, 2008 at 10:50pm

anybody ever seen the movie "american warewolf in london" when hes in that nurses appartment and all the sudden his face gets all streched out and his fingers grow and he rips off his clothes and within a few short minutes hes a beast. one minute your sitting there watching tv relaxing and 2 or 3 minutes later your a completely different animal. then after your hair shrinks back to normal and your claws turn back to fingernails, you wake up naked in a zoo and kids are poking you with a stick. Grin

something else i've thought about is those peta videos when they skin a live animal, then throw him down in the dirt with all his nerves exposed and he just lies there confused and terrified.

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CH-HELL

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Re: What does your CH pain "look" like?
Reply #52 - Dec 19^th, 2008 at 11:19pm

-johnny- wrote on Dec 19^th, 2008 at 10:50pm:

anybody ever seen the movie "american warewolf in london" when hes in that nurses appartment and all the sudden his face gets all streched out and his fingers grow and he rips off his clothes and within a few short minutes hes a beast. one minute your sitting there watching tv relaxing and 2 or 3 minutes later your a completely different animal. then after your hair shrinks back to normal and your claws turn back to fingernails, you wake up naked in a zoo and kids are poking you with a stick. Grin

something else i've thought about is those peta videos when they skin a live animal, then throw him down in the dirt with all his nerves exposed and he just lies there confused and terrified.

Thats a good one Jonny, has anyone seen the show True Blood? If you havn't its on HBO and it about vampires and the vamps tears are blood, now when I get hit hard my left eye waters and I always think its got to be blood coming out of my eye. Anyone who has there eye water during a hit watch the intro to that show and tell me what you think.
Phil Cool

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« Last Edit: Dec 19^th, 2008 at 11:21pm by N/A »

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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: What does your CH pain "look" like? Reply #53 - Dec 19^th, 2008 at 11:27pm My big regret since becoming a victim of ch.com is that I never kept a copy of every poem written on the subject. As a collection it would make a very telling story.
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gizmo

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Re: What does your CH pain "look" like?
Reply #54 - Dec 20^th, 2008 at 6:48am

pubgirl wrote on Dec 19^th, 2008 at 7:34pm:

Suggest you look at more recent research. Goadsby hasn't actually been asleep since 2002

Quote:

CLUSTER Headache: The Journal of Head and Face Pain
Volume 45, Issue 3, Date: March 2005, Pages: 266-267

Positron emission tomography and functional MRI studies have shown that the ipsilateral posterior hypothalamus is activated during cluster headache attacks and is structurally asymmetric in these patients. These changes are highly specific for the condition and suggest that the cluster headache generator may be located in that brain area

Again: I don't say that the hypothalamus theory doesn't sound valid. I only say it isn't proven.

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gizmo CH.com Hall of Famer Offline Posts: 522 Germany Gender:	Re: What does your CH pain "look" like? Reply #55 - Dec 20^th, 2008 at 7:52am Quote: If you have something better, bring it to light. If I had something better I'd be rich.
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barry_sword CH.com Alumnus Offline Mountain Biking Keeps Me Sane Posts: 3947 Bracebridge, Canada Gender:	Re: What does your CH pain "look" like? Reply #56 - Dec 20^th, 2008 at 9:47am This is me with a "after hit pic" before I got my o2 setup! Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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DonnaH_again Ex Member	Re: What does your CH pain "look" like? Reply #57 - Dec 20^th, 2008 at 11:43am Check out Bob Johnsons thread "Brain scan research" just down this page a bit. Much newer studies and not just suggesting facts.
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gizmo CH.com Hall of Famer Offline Posts: 522 Germany Gender:	Re: What does your CH pain "look" like? Reply #58 - Dec 20^th, 2008 at 11:49am I've already read it. The activation of the hypothalamus is a known fact, what is not known is if this is the cause or the result.
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CH-HELL

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Re: What does your CH pain "look" like?
Reply #59 - Dec 20^th, 2008 at 12:39pm

Quote:

That picture of the devil with his fist in the sufferers eye was drawn by one of our members by the name of Fletcher (sp?) It is copywritten.

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Does that mean I have to have this removed. LOL I drew this myself.

Phil Cool

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CH-HELL Ex Member	Re: What does your CH pain "look" like? Reply #60 - Dec 20^th, 2008 at 12:56pm Sorry the pic is huge and looks bad!
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UnderTheRadar CH.com Old Timer Offline Literally Posts: 383 Texas Gender:	Re: What does your CH pain "look" like? Reply #61 - Dec 20^th, 2008 at 9:46pm HAHAHAAA.....that's awesome, man!! That gets me thinking- how about a tattoo of an O2 "hookup" thingie? You know what I mean...
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Layla328 CH.com Hall of Famer Offline Posts: 804 Boston Gender:	Re: What does your CH pain "look" like? Reply #62 - Dec 20^th, 2008 at 10:24pm I agree with all of that that there are similarities with SAD, seizure disorder, and there is definitely something not right with the serotonin! It IS like you are waking up and having some kind of seizure except it is pain. Maybe some kind of brain seizure? Or at least something that feels like one.
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Layla328 CH.com Hall of Famer Offline Posts: 804 Boston Gender:	Re: What does your CH pain "look" like? Reply #63 - Dec 20^th, 2008 at 10:38pm If anyone is interested here is an interesting article on comorbidity of epilepsy and migraine, good article (not sure if they are including cluster headache under the "umbrella" of migraine) Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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Pixie-elf

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Re: What does your CH pain "look" like?
Reply #64 - Dec 22^nd, 2008 at 9:58pm

Layla328 wrote on Dec 20^th, 2008 at 10:38pm:

If anyone is interested here is an interesting article on comorbidity of epilepsy and migraine, good article (not sure if they are including cluster headache under the "umbrella" of migraine)
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One of my neuro's told me that it was believed that migraines set off in a similar manner in the brain, as a seizure. This was back when I was having them, so...about 8-10 years ago. Dunno if it still holds true or not.

My Mom has mentioned tht watching me go through the attack, and after, reminds her of when I had seizures. She said I get the same 'blank' look when the attack starts, and afterwards, I sometimes look dazed and confused. She thought at first it was my seizures resurging after all this time without them.

I don't know if it's because they're connected somehow, or what. I do know, both drain you mentally and physically. Neither is easy to recover from. It could just be due to the fact that the brain is having it's own issues that they seem similar.

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As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
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It's saved my life.

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Re: What does your CH pain "look" like?
Reply #65 - Dec 23^rd, 2008 at 3:12pm

Thank you all for responding to this post. It has been very interesting to me to read how you "see" your pain. It has also made me sad for each of you. There really is no one who can understand our pain like another sufferer can. It almost makes me ashamed of myself that I find comfort in that there are others who know my pain.

My wish and prayer for all of us is that we someday are cured of this thing we all have in common.

Thank you to every supporter that visits this site. You not only support your sufferer.. you support us here as well. You are angels.

Much love,

Jeannie

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« Last Edit: Dec 23^rd, 2008 at 3:52pm by Jeannie »

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Snapper21

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Re: What does your CH pain "look" like?
Reply #66 - Dec 23^rd, 2008 at 7:16pm

Bob P wrote on Dec 18^th, 2008 at 6:50am:

Quote:

If you’re not hyperventilating on oxygen to abort your attacks, you’re not doing it right…

Well don't that just figure! Didn't do the shrooms right and now I'm not doing O2 right!
At least the O2 works even though I don't do it right!

Don't you just eat them???? Man life is tough.

Atilla the hun jamming a lightning bolt right through my eye and coming out my chin.

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Kirk CH.com Alumnus Offline VINIMUS, VIDIMUS, DOLAVIMUS Posts: 2393 Harts Lake, WA Gender:	Re: What does your CH pain "look" like? Reply #67 - Dec 23^rd, 2008 at 8:41pm Sort of like the deck crane hook going through my eye and out the top of my head, and a lead line attached to my teeth, while being hoisted into the air and jerked around for what seems like forever. While the crab in the hold clack their claws in applause.
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Ray CH.com Alumnus Offline Ray Posts: 1996 Columbus, Ohio Gender:	Re: What does your CH pain "look" like? Reply #68 - Dec 23^rd, 2008 at 11:29pm Kirk: That's quite the picture.... Ray
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UnderTheRadar CH.com Old Timer Offline Literally Posts: 383 Texas Gender:	Re: What does your CH pain "look" like? Reply #69 - Dec 24^th, 2008 at 5:14pm Here's a tattoo for ya! (I did it 2 days ago, but I'm lazy about uploading ) Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or O2 4 LIFE, yo!
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Rolomatic

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Re: What does your CH pain "look" like?
Reply #70 - Dec 24^th, 2008 at 5:44pm

UnderTheRadar wrote on Dec 24^th, 2008 at 5:14pm:

Here's a tattoo for ya! (I did it 2 days ago, but I'm lazy about uploading Wink

)
O2 4 LIFE, yo!

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Beautiful tat, and the recipient’s pretty good lookin too!!!

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« Last Edit: Dec 24^th, 2008 at 5:45pm by N/A »

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UnderTheRadar

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Re: What does your CH pain "look" like?
Reply #71 - Dec 25^th, 2008 at 1:17am

BWAHAHAAHAA!! Oh boy, I should have been more clear- I photoshopped that picture....I WISH I looked like her right now!! But I've been fightin' the beast for 6 months now, and he trashed my ass!!! Grin

I took a stock photo of a model and a picture of an oxygen tank, and made the "O2 4 LIFE" banner and slapped it together. But thank you- I must have done a pretty good job if anyone thought it was real!

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Rolomatic

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Re: What does your CH pain "look" like?
Reply #72 - Dec 25^th, 2008 at 1:39am

Kind of looks a lot like this:

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Video of K10 attack:
YouTube - Scanners (1981) Head Explosion Shot

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This pretty much conveys the essence IMHO; in an equally graphic manor.
I’m expounding on Tony’s answer and adding the whole video clip to it…

Rolo… Cheesy

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« Last Edit: Dec 25^th, 2008 at 1:47am by N/A »

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midwestbeth CH.com Sponsor Offline Posts: 1123 Edwardsville, IL Gender:	Re: What does your CH pain "look" like? Reply #73 - Dec 27^th, 2008 at 7:29pm Pure white hot pain.
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Jonny Ex Member	Re: What does your CH pain "look" like? Reply #74 - Dec 27^th, 2008 at 7:47pm You cant "Look" at CH pain.....sorry!
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