This could be very promising news for me. But I dont want to get my hopes up.   I had my T levels checked probably six months ago because I have lost almost all of my sex drive and have been extremly fatigued. They came back within normal ranges.  But from what I have been reading here even  people with normal levels are trying this and getting some results.  I hope I can talk my Dr. into giving this a whirl. He hasnt been willing so far to be very agressive with treatment. Maybe I'll find a new one. God knows the only thing my other meds are doing is making me a walking Zombie with wicked headaches lol.

I'll Post my results when I get them I meet with the doc tomorrow morning.

Prayers and PFD's to all.

Sean

Yeah I know there are "risks"  but there are risks with everything else I've tried up until now.  It's like I have two people on my shoulders. Reason and desperation.  Can you guess which voice is louder?  Hell reason might as well be a mute at this point lol.  I will discuss it with the doc. I am episodic albeit they are long episodes but long periods of remission too.  hopefully I would only need to be on this for a limited amount of time.

Sean

Better news.... I saw my neuro today and he is all sorts of into this.  He said he had never hear of it and really wanted to look into it.   

I went prepared.  I had about a hundred pages of studies and articles and your own testimonial on this.  I told him there has to be something to this.

I had my T checked about 6 months ago because I am 25 years old and was constantly fatigued and had lost my sex drive completely they just told me everything was within normal limits and I chalked it up stress because at the time I was in remission.

I'm wondering if maybe this was a warning that I was about to begin my cycle?

I have some more questions that I thought of after receiving a PM last night.

No one is sure about the long term effect of HRT in any form.  I am considered to be episodic though my cycle have lasted years on end.

I am wonder if HRT is something that has to be continued when in remission or if it can be backed off once the ECH'rs hit a period of remission?

The same question goes for Clomiphene.  I have been doing a lot of research in the last couple of weeks and so far in trials for men there are virtually no side effect when taking this drug as directed.  for this condition. There have been reports of body builders over using this drug after an anabolic period to reduce T crash and the only thing they report is blurred vision.  Those of you that are on this, what have your experiences been like? Risks Vs Benefits

I am open to any treatment.  I think that this needs to be looked into closer by our neuro's because it certainly seem like a better option than ablation  and GK and deep brain stimulus.  Any thoughts?   

Women however are a different story and have a much longer list of side effects in long term usage. so that sucks.

I'll quit rambling now

He did,  My results came back today though and I am definatly not running low on T so back to the drawing board for me it looks like.

I'm 28 and was recently (last year) found to have seriously low testosterone (<3.0)

My wife was also pretty stoked when she read some of these, but having been down a long route, it looks like it could be a pituitary tumour, but...

Testosterone levels have been improving since discontinuing Verapamil...and some of us have read the studies about verapamil & hyperprolactinaemia.

It's easy for us to chase answers to CH pain .....I pray every day for relief... but in this case for me the Reandron injections have had no effect on my clusters, since ceasing verapamil my clusters are worse (it's why I'm back, with no post count as i've forgotten my old name) and I fear a CH treatment may have caused the problem that people are seeking to measure.

Sorry for waffling so badly, I just wanted to throw up that for me, the CH med has probably caused the 'indication that something is out of whack which could explain the clusters', which was previously fine.

hopefully someone here will have low testosterone + a reandron shot will give them awesome relief from clusters forever.

God bless,

John.

Hi.....I just stopped by to see what's been happening and have read the comments on "normal" testosterone levels.

I've seen several posts within this entire thread showing figures, but the quote below, from Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or reiterates what has been said here and in other peer reviewed papers:

"Normal levels of testosterone fall between 250 and 800 nanograms of testosterone per deciliter of blood. Levels in the same man vary according to time of day, season and exercise; therefore, your doctor must conduct an entire physical examination to determine whether or not you are suffering from the disorder."

One test alone will not give you a precise answer as to what your level is.  It must be done more than once in one month as the level fluctuates greatly in some men.

I'm quite sure Paul will be looking in from time to time and will share his knowledge with you.

I still don't understand why more people do not undergo testing.  What's the hold up?  Lack of insurance?  Lack of awareness?  Thousands of people have read this thread without delving into it. Why..............?  

Donna.m.har wrote on Apr 28^th, 2011 at 12:28pm:





Hi Donna...glad you check in. Sorry to report very few takers willing to try this approach.

I have stated before that my testosterone levels are perfectly normal except when I was in cycle and it dropped off the bottom of the charts...so yes...more than one test needs to be done to establish whether a deficiency when in cycle is evident..

....the change between "in" and "out" of cycle may be more important than the actual numbers....going from a high normal to a low normal could be the pituitary/hypothalamus "stress" that triggers the cycle...no one seems to know for sure.


And I hear you Donna, that

it is mind blowing that more don't check this route out

as I know of several here in Canada (free testing, and free doctor visits) that are experiencing complete remission with hormone supplementation therapy...

...I really don't see a downside when comparing the hormone therapy to the daily suffering I endured for all those years...

...I don't believe my pain was worse than others here experience...but the pain certainly got me to the doc to try hormone therapy as soon as I read your (this) thread....

best decision of my life

.

If i had no free doc visits and free tests I would collect soda cans and save the proceeds so that i could be tested....to get relief i would leave no stone unturned and I especially would not discount a tried and proven therapy for many sufferers...no different than trying and using oxygen....you got to take action to find the right therapy for yourself.

I am so frustrated that more don't take their health into their own hands and try EVERY POSSIBLE THERAPY!!!!!!!!!!!!!!!!!!!!

Thank you Donna



Paul

akage wrote on May 12^th, 2011 at 2:48am:



Great you are giving it a shot!

If you apply it right after a shower, your skin is "full" of water so very little gel will be absorbed.... wait an hour after a shower before application for best absorption but if you are expecting a "sweaty" hit within 5 hours you will undoubtably lose some of the effect as it takes a full five hours to readily absorb into the blood stream.

Work on the timing of application to when your skin is at its driest for the longest period of time to maximize absorption.

It took me two weeks of "proper" absorption use to see results begin and then for me the results turned positive quite quickly...for others, it was just a noticeable reduction but not remission , and others no effect...such is the way of the beast.

Best of luck...give it a good shot for a month and if no significant response then its probably best to move on to try another method.

I will cross my fingers for you and please report back your experience in this thread.

I am religious in my application times... only on dry skin and only when that skin will remain dry for 5 hours and only when I can avoid skin on skin contact with the opposite sex during that five hour absorption...gotta keep the Mrs. away from Androgel

Thanks


Paul

Just checking in... HRT is still working well for me. 

The only time I get any symptoms is if I miss or miss-time my applications for two days out of the week.  Then it's a day or two of shadows and then everything is right again.  What can I say, sometimes life gets in the way.

Can't say enough about this route.  Get tested!  If you have low T, HRT might be your savior too.

-Dennis-

That's great Dennis... glad its holding well for you.

Paul

I'm still holding well:)

I've been referred to an endrocrinologist for a complete hormone workup (even some of the oddball hormones we dont hear much about)

I'm looking forward to finding out more about the hormone/cluster headache connection.

In the past 14 months I have been working on ME... i've been under the control of a personal trainer that comes to my home gym 3 times per week. My strength has improved tremendously... I suppose the Androgel gives a little edge  haha
Currently age 52, doing deadlifts of 320 pounds and backsquats at 275 (i dont do heavy weight bench presses as a very old shoulder injury prevents me from doing so)

Feeling so good and so happy.

Paul