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WHY don't we pay attention to this? (Read 138386 times)
neuropath
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Re: WHY don't we pay attention to this?
Reply #225 - Jul 4th, 2010 at 3:28am
 
I have had my first 100 mg testosterone muscle injection last week and can report very positive results. I am chronic, have recently busted with alts and the additional HRT has brought my attack frequency and intensity down by at least another 30% (after only 1 shot).

Even if testosterone levels are within the normal range, I recommend giving it a try. I for one will continue. I have been prescribed 100 mg every two weeks. Does this dosage sound right?
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Re: WHY don't we pay attention to this?
Reply #226 - Jul 4th, 2010 at 9:06am
 
MITYRARE wrote on Mar 20th, 2010 at 9:24pm:
How does a researcher get intersted in this type of CH work and what is in it for them?

Paul


From a personal perspective I can answer this one...
My son who is now 21 has suffered from migraines since the age of two and as you know I've suffered with CH for almost 11 years now.

My son has dealt with neurology issues all his life due to migraines and now me having CH has peeked his interest.  He is now majoring in Nuero-Biology and has been doing research for/with two of his professors for 2 years now.  My son has a personal interest and a very High curiosity level when it comes to Migraines and CH.   He plans on becoming a practicing NLP (neuro linguistics programmer) to earn some cash while he continues research and goes to Grad School.

Someday maybe he will be able to aid in getting Migraine and CH sufferers/survivors a cure or at least better preventatives or abortives.
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Re: WHY don't we pay attention to this?
Reply #227 - Jul 4th, 2010 at 12:05pm
 
That is great, Ginger!!!
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Re: WHY don't we pay attention to this?
Reply #228 - Jul 4th, 2010 at 2:46pm
 
Aw Thanks!  I have to say my son makes me proud every day.
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Re: WHY don't we pay attention to this?
Reply #229 - Jul 6th, 2010 at 7:55pm
 
hello all, just wanted to let you all know that I will be getting my blood drawn tomorrow morning for a testosterone level. I have read through all 10 pgs of this thread and was amazed.  I am extremely happy for the people it has helped break cycles, and in my case I am just going in and hoping for the best!  I will let you know my results.  Thanks again for posting and giving us all another possibility for relief.

Steve
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Re: WHY don't we pay attention to this?
Reply #230 - Jul 11th, 2010 at 9:27pm
 
neuropath wrote on Jul 4th, 2010 at 3:28am:
I have had my first 100 mg testosterone muscle injection last week and can report very positive results. I am chronic, have recently busted with alts and the additional HRT has brought my attack frequency and intensity down by at least another 30% (after only 1 shot).



Even if testosterone levels are within the normal range, I recommend giving it a try. I for one will continue. I have been prescribed 100 mg every two weeks. Does this dosage sound right?



excellent... thanks for posting your experience.

P
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« Last Edit: Jul 11th, 2010 at 9:33pm by MITYRARE »  

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Re: WHY don't we pay attention to this?
Reply #231 - Jul 11th, 2010 at 9:32pm
 
JustNotRight wrote on Jul 4th, 2010 at 9:06am:
MITYRARE wrote on Mar 20th, 2010 at 9:24pm:
How does a researcher get intersted in this type of CH work and what is in it for them?



From a personal perspective I can answer this one...
My son who is now 21 has suffered from migraines since the age of two and as you know I've suffered with CH for almost 11 years now.

My son has dealt with neurology issues all his life due to migraines and now me having CH has peeked his interest.  He is now majoring in Nuero-Biology and has been doing research for/with two of his professors for 2 years now.  My son has a personal interest and a very High curiosity level when it comes to Migraines and CH.   He plans on becoming a practicing NLP (neuro linguistics programmer) to earn some cash while he continues research and goes to Grad School.

Someday maybe he will be able to aid in getting Migraine and CH sufferers/survivors a cure or at least better preventatives or abortives.



It is doctors and researchers with a personal interest that are the ones that get things done..bravo!

You have every justification to be proud..our kids are our greatest asset and society only ever hears about the few bad ones.

I listen to doctor radio on satellite radio and the great specialists at NYU medical facility all seem to have had a personal experience that drew them to their specialty...best wishes for your son's continuing education in this field.

P

ps  I have emailed Dr radio to see if there could be a segment on clusters..stay tuned and I will report if it materializes.
P
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Re: WHY don't we pay attention to this?
Reply #232 - Jul 11th, 2010 at 9:34pm
 
plateglass wrote on Jul 6th, 2010 at 7:55pm:
hello all, just wanted to let you all know that I will be getting my blood drawn tomorrow morning for a testosterone level. I have read through all 10 pgs of this thread and was amazed.  I am extremely happy for the people it has helped break cycles, and in my case I am just going in and hoping for the best!  I will let you know my results.  Thanks again for posting and giving us all another possibility for relief.

Steve



Please keep us posted on your experience Steve...good luck!
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Re: WHY don't we pay attention to this?
Reply #233 - Jul 12th, 2010 at 10:51am
 
I wondered is there connection between Testosterone imbalance, oxygen, hallucinogens, serotonine and heart-issues?
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Re: WHY don't we pay attention to this?
Reply #234 - Jul 12th, 2010 at 9:37pm
 
Got the results back today....Extremely low testosterone level.  Wow you guys were definitely on to something here.  My Nero would not prescribe me anything but I'm seeing a doc on Wed to hopefully start on the replacement therapy.  280- 800 is the normal level and I tested a 224!  I can't thank you guys enough.  I'll let you know how the therapy goes.  Grin

Steve
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Re: WHY don't we pay attention to this?
Reply #235 - Jul 13th, 2010 at 5:39am
 
MITYRARE wrote on Jul 11th, 2010 at 9:32pm:
JustNotRight wrote on Jul 4th, 2010 at 9:06am:
MITYRARE wrote on Mar 20th, 2010 at 9:24pm:
How does a researcher get intersted in this type of CH work and what is in it for them?



From a personal perspective I can answer this one...
My son who is now 21 has suffered from migraines since the age of two and as you know I've suffered with CH for almost 11 years now.

My son has dealt with neurology issues all his life due to migraines and now me having CH has peeked his interest.  He is now majoring in Nuero-Biology and has been doing research for/with two of his professors for 2 years now.  My son has a personal interest and a very High curiosity level when it comes to Migraines and CH.   He plans on becoming a practicing NLP (neuro linguistics programmer) to earn some cash while he continues research and goes to Grad School.

Someday maybe he will be able to aid in getting Migraine and CH sufferers/survivors a cure or at least better preventatives or abortives.



It is doctors and researchers with a personal interest that are the ones that get things done..bravo!

You have every justification to be proud..our kids are our greatest asset and society only ever hears about the few bad ones.

I listen to doctor radio on satellite radio and the great specialists at NYU medical facility all seem to have had a personal experience that drew them to their specialty...best wishes for your son's continuing education in this field.

P

ps  I have emailed Dr radio to see if there could be a segment on clusters..stay tuned and I will report if it materializes.
P

Thank you P!

You are right about the personal interest aspect...My current Neuro suffered with migraines as a child and the Neuro I'm hoping to get into see soon also suffers with migraines.  Personal interest wins out on both counts.   Cool
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Re: WHY don't we pay attention to this?
Reply #236 - Jul 27th, 2010 at 7:08pm
 
Just to let you all know, I started my testosterone replacement therapy 5 days ago.  The results have been astounding!! Grin  The very first day my headaches went down to 1, (from 3-4 a day)  and the intensity has been nothing compared to before.  I can not suggest enough for all to get the simple testosterone blood test to see where the levels are at.  This has been a Godsend to me and again I can not thank you all enough for bringing it up in this thread.  I will keep you all updated on my progress.

Steve
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Re: WHY don't we pay attention to this?
Reply #237 - Aug 6th, 2010 at 2:04pm
 
Hi

I'm new here and want to share my experience treating my CH without any midications. My testosterone was very low and I finaly figured out why. My magnesium and vitamin-D level was extremly low, so I started taking 500 mg magnesium citrate and 140 µg vitamin D as a daily dose. After 6 months my testosterone was back normal and my CH was gone. So I think my low testosterone was a result of low magnesium and vit D. I have been CH free for 2 years.  Smiley

Try goggle "magnesium testosterone".  Wink

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Re: WHY don't we pay attention to this?
Reply #238 - Aug 6th, 2010 at 2:13pm
 
haug wrote on Aug 6th, 2010 at 2:04pm:
Hi

I'm new here and want to share my experience treating my CH without any midications. My testosterone was very low and I finaly figured out why. My magnesium and vitamin-D level was extremly low, so I started taking 500 mg magnesium citrate and 140 µg vitamin D as a daily dose. After 6 months my testosterone was back normal and my CH was gone. So I think my low testosterone was a result of low magnesium and vit D. I have been CH free for 2 years.  Smiley

Try goggle "magnesium testosterone".  Wink

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Hello again with the vitamin D, Niels.   Roll Eyes 

George
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Re: WHY don't we pay attention to this?
Reply #239 - Aug 6th, 2010 at 2:32pm
 
Racer1_NC wrote on Dec 4th, 2008 at 7:43pm:
Quote:
The smart thing for me to do would be to call my neuro now, while I am out of cycle and ask him to order this for me.  He probably would , he's very open.

Knowing him like I do, I'd say he'd do it no problem. Heck, I've had mine checked before as previously stated but I may have it done again...never know. Worst that can happen is he says "it's normal".

B





Normal T levels do not necessarily mean that 'certain testosterone therapies' won't work for you.  Check out the article written by Dr. Todd Rozen a few years back that I have attached. 

Although there are no long term studies on it yet, I have been taking clomiphene citrate for two years now.  As a primary chronic, I went from an average 2 to 3 high kippers per day down to 1 or 2 very minor kippers per week. 

Oh, and I get my T levels checked every 6 months, along with a PSA and testicular exam.  To date, everything checks normal.

Lovin' Life,

alley


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Re: WHY don't we pay attention to this?
Reply #240 - Aug 6th, 2010 at 6:17pm
 
Oh please, niels.......you've got to be kidding Grin Grin

We never forget a face around here....
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Re: WHY don't we pay attention to this?
Reply #241 - Aug 6th, 2010 at 8:39pm
 
Quote:
We never forget a face around here....


  or a lot of other pertinent information either.   Grin
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Re: WHY don't we pay attention to this?
Reply #242 - Aug 14th, 2010 at 9:07am
 
Damn.  It appears my vacation is over.  Hits have been building all week.  This is right in line with my fall cycle.  I'm very grateful for 8 months off.  My longest break in a very long time.

T-therapy has helped me in a lot of other ways so it wasn't a wasted effort.  I really do encourage every clusterhead to get they're level checked.

-Dennis-
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Re: WHY don't we pay attention to this?
Reply #243 - Aug 14th, 2010 at 9:34am
 
Well that bites Dennis, sorry to hear it, wishing you a short go round.

Joe
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Re: WHY don't we pay attention to this?
Reply #244 - Aug 17th, 2010 at 2:39pm
 
Sorry to hear Dennis...perhaps a short break off the T and then a restart might help (just a wild ass hopefull guess).  I hope your revisit with CH remains short.


P
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Re: WHY don't we pay attention to this?
Reply #245 - Aug 17th, 2010 at 3:59pm
 
MITYRARE wrote on Aug 17th, 2010 at 2:39pm:
Sorry to hear Dennis...perhaps a short break off the T and then a restart might help (just a wild ass hopefull guess).  I hope your revisit with CH remains short.


P

You-n-me both.  I'm getting my ass handed to me so far. Undecided

I'm gonna stick with the T threapy.  I don't see how stopping / starting could possible help anything.  But I appreciate you thinking out of the box.

-Dennis-
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Re: WHY don't we pay attention to this?
Reply #246 - Aug 17th, 2010 at 4:16pm
 
DennisM1045 wrote on Aug 17th, 2010 at 3:59pm:
MITYRARE wrote on Aug 17th, 2010 at 2:39pm:
Sorry to hear Dennis...perhaps a short break off the T and then a restart might help (just a wild ass hopefull guess).  I hope your revisit with CH remains short.

P

You-n-me both.  I'm getting my ass handed to me so far. Undecided

I'm gonna stick with the T threapy.  I don't see how stopping / starting could possible help anything.  But I appreciate you thinking out of the box.

-Dennis-


I know that it is a different drug, but not a different therapy.  I have been using clomiphene citrate for the last two years with unparalleled success (look at some of my earlier posts in this thread).  But I have had success stopping and restarting this drug a couple of times.  The first time I stopped for a couple of weeks when I wasn't getting the efficacy that I had been.  The second time (recently), I stopped for 6 weeks, but this time mostly to see how much increase in activity I would have.   Both times I seemed to get much better results after the break. 

I think that Paul's suggestion deserves consideration.

bobb


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Re: WHY don't we pay attention to this?
Reply #247 - Aug 27th, 2010 at 8:03pm
 
Ray of hope here  Lips Sealed

This is a bit long but bear with me.  And in the interest of complete disclosure, Andrea, my wife of 30 years,  bestest supporter and better half put it all together.

I've had a very busy summer.  But in a good way  Cool  My daughter Brigette is getting married in the fall (10/10/2010).  She didn't want a traditional wedding shower and opted instead for a hugh back yard cookout.  It turned into kind of a preview of the recieption.

All summer my work schedule has been nuts and I haven't had time to keep up with the yard work.  Let's just say my Honey-do list had gotten huge.

So with 70 guests arriving on 8/7 and the house/yard looking like a disaster area, I took the week before the party off to catch up.  This was 8/1 - 8/8.  I also started physical therapy for my back the same week.  Yea, I know  Roll Eyes

I was so busy sweating through all the gardening, mowing, painting, pruning, wood cutting and replacing a door that I was a tad inconsistent about applying the T-gel. 

One day it was normal but I might have sweated more than usual throughout the day.  The next day I might have forgotten completely.  You know how it goes.  Saturday comes, the party is a huge success and I'm drinking Sam Summer out of the barrel into Sunday afternoon.

On Tuesday (8/10), after a week of being inconsistent with the T-gel, my fall cycle starts up at 100MPH.  Shocked

However...

For the last two weeks+ since the party I've been real consistent again with the T-gel.  Starting yesterday I went from 3-4 hits a day to not even a shadow in the last 33 hours  Cool  

I know, I know, I could be up dancing again tonight.  I could get 3 hits again tomorrow.  I honestly don't know. 

But for right now ... after a completely pain free day ... I'm hopeful as a pimply faced kid on prom night  Cool

-Dennis-
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Re: WHY don't we pay attention to this?
Reply #248 - Aug 27th, 2010 at 10:14pm
 
Wow, that's alot of yard work!  No wonder you forgot a few apps.  Keep us updated with your results.  Congrats to your daughter and you!  Smiley  I'm wishing ya PFD&N. 

Steve
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Re: WHY don't we pay attention to this?
Reply #249 - Aug 28th, 2010 at 9:42am
 
That's great news Dennis, having recently done the "wed the daughter off"...not too hard to get carried away and forget the nuts and bolts of life!!! Wink

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