I know this has probably been stated many times before. However, I feel the need to thank those on this message board. I like all of you probably thought at one point that I was crazy. When you tell the doc, um well I took 7 Demerol and it didn’t do a damn thing. Finally a few years ago a friend of mine gave me a maxalt, which was a godsend. I finally went to the neurologist, because no one else would prescribe as many of them as I seemed to need. I have a very opened minded neurologist, however, he like many don't know all that much about clusters. I think one of his comments was, “I hear they can be pretty bad". Anyway, long story to say. Because of the info I have gotten here I was able to go in with some confidence on my last appointment. I was able to convince him to bump up the amount of oxygen from 8mlp to 15mlp. I also was able to bump up the verapamil. If it had not been for your suggestions, I fear I would still be just as lost. I remember when I saw the third story on the opening page, about the late night ritual. I seriously began to tear up, finally somebody actually new what it felt like. So, in my long winded way, Thank all of you and bless you, they haven’t gone completely away, but I see some hope for battling them.

That's why we say, sitting in front of your doc and saying "fix me" is a recipe for a boat load of pain!  Knowledge is our most pwerful weapon in dealing with the beast. I'm so glad to hear you've found something on the board that helps you. Now stick around and help the other newbies who show up here lost and scared. I like your style, you'd be a valuable asset to newbies and old timers alike!

Guiseppi

Good work.. way to take it to your doctor. You told him what you wanted and needed and he responded. By the way im glad max-alt works for you, It never worked for me, your on the right track with your 02. Good luck.. Coach Bill

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Understood completely. I simply meant that until recently I just accepted anything he said, even though he, by his own admission is not that familiar with ch. Now at least I am able to suggest some options that people on the board have mentioned.