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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Update

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Update (Read 1129 times)

Jason

CH.com Junior

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I Love CH.com!

Posts: 36
College Grove, TN
Gender: male

Update
Nov 2^nd, 2008 at 8:06pm

Sorry for the break..... Melissa and I went to western NC to look at a horse this weekend and just got back now....

YES, I got some Oxygen !!!

However, none of the med supply folks around here had a non-rebreather mask and nobody had a 15 L/min regulator available either. So I have a tank and a tube and an 8 L/min regulator presently.

Right now, I am on 30 mg Prednisone, and that has the beast stopped in his tracks for the moment...and has since Friday night. I am good through the end of the week and I need to get my Oxygen figured out by then because I'm sure I am NOT done with the beast just yet.

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Skyhawk5

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I love YaBB 1G - SP1!

Posts: 1320
Ypsilanti, Mi. USA
Gender: male

Re: Update
Reply #1 - Nov 2^nd, 2008 at 9:36pm

Jason, Glad to hear you're getting the break. The med supply place should be able to get both in a matter of a couple of days. I had the same problem with the NRB mask here in Mich. this summer. I answered you in your other post, but will repeat it here.

In a pinch cut the nose canula off the hose. Yes.. Stick the hose in your mouth close tightly around it this has given others enough O2 to abort CH hits. No kidding it works. 8lpm isn't the best amount but it is better than none, just may take a little longer. In older days that was it.

I just came off Prednisone and it does help me but when I come off the CH is back. Some people it will knock it out though that is rare.

Good Luck, Don

Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not.

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ClusterChuck

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The BEAST rises again,
and again, and again,
and .

Posts: 5394
Greenville, North Carolina
Gender: male

Re: Update
Reply #2 - Nov 2^nd, 2008 at 10:34pm

Sorry you are having trouble gettint the right setup. BUT at least you have the oxygen!

Here is an example of what is available, in 15LPM regulator, on eBay:
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Presently there are not any 25LPM regulators on eBay.

As far as a mask, you can't buy any better mask, than the one listed at Linde's ad, under the oxygen info tab, on the left side of your screen. It is $25.00 well spent!

Let me know if you need anymore help!

Chuck, the oxygen pusher

CAUTION: Do NOT smoke when using or around oxygen. Oxygen can permeate your clothing or bedding. Wait, before lighting cigarette or flame.

Keep fire extinguisher available, and charged.

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Skyhawk5 CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1320 Ypsilanti, Mi. USA Gender:	Re: Update Reply #3 - Nov 2^nd, 2008 at 10:51pm Thanks Chuck, I should have thought of that. Duhh. De-preding, Don
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Jason CH.com Junior Offline I Love CH.com! Posts: 36 College Grove, TN Gender:	Re: Update Reply #4 - Nov 2^nd, 2008 at 11:56pm Just bought the 15 LPM regulator and will buy the non rebreather mask in the morning. Thanks, guys !!
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ClusterChuck

CH.com Alumnus

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The BEAST rises again,
and again, and again,
and .

Posts: 5394
Greenville, North Carolina
Gender: male

Re: Update
Reply #5 - Nov 3^rd, 2008 at 12:04am

Jason wrote on Nov 2^nd, 2008 at 11:56pm:

Just bought the 15 LPM regulator and will buy the non rebreather mask in the morning.

Are you sure you are not married to me?

I am spending YOUR money for you, like a wife!!! LOL

I am glad you are getting set up properly!!

Let me know if you find you need a 25 LPM regulator, I will try to find one for you, if you do.

Chuck

CAUTION: Do NOT smoke when using or around oxygen. Oxygen can permeate your clothing or bedding. Wait, before lighting cigarette or flame.

Keep fire extinguisher available, and charged.

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Jason CH.com Junior Offline I Love CH.com! Posts: 36 College Grove, TN Gender:	Re: Update Reply #6 - Nov 4^th, 2008 at 11:01am Got it all done as of this morniing.....now lets hope USPS can get the damn stuff here in time !!
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thebbz Ex Member	Re: Update Reply #7 - Nov 4^th, 2008 at 7:05pm You will love it when it gets there. all the best Jason the bb
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