Buddy,

    For those shadows go out and buy some Dristan 4-way nasel spray and use it in the affected side.



It has help me and several others here with persistant shadows.   If it doesn't help you, there's no harm done and it just may unclog  a stuffy nasel passage in the process.

  I have the constant k2-4 it sucks and makes o2 nearly imposable to use for me,  I dont take imi for the k2-4 and o2 wont kill it.  I drink alot of coffee and it seems to help a little but the imi always makes it worse,  I take imi 3-5 times a day though.
  I wish I had a answer for you that would help,   Phil

Since I turned chronic in Nov 1999 I have 3-4 pain level 24/7 with the current meds I take. And when gets to 7 or above I am allowed (12)per month of  10 mg morphine shots to take them back down to my 3-4 level.  This has been working for me the last almost 4 years.

Hi, Buddy.  I'm an episodic for 25 years.  Verapamil for prevention and O2 + Imitrex for abortive.

Everybody's response to any given med is different, so you'd have to experiment for yourself.

What dose of Imitrex are you using?

For me, if the nagging pressure/pain lasts, that's an indication of one attack not being aborted completely but dragging.  It can hurt me in  full force in no time with a trigger or over some time.  So

if all possible

, my head needs to be totally pain-free and CLEAR to avoid a re-attack in a short period of time.  I put myself together, go about my business, and get ready for the next attack.

Imitrex has been a wonder drug for me, except I do get a bad side effect (nausea) over a certain dose.  Rebound is of course possible, if Imitrex is taken too much/too often, and it can lose its efficacy over time (needing more and more).  To me, less than 1/3 a shot (about 1.5 insulin units) is more effective than 50 mg pill, and it works to kill it completely hell of a lot faster.

O2 is a bit tricky for me.  A high flow rate can abort the pain completely and rather quickly (even 8 L can do the job, just takes longer), but often O2 alone can lead to a re-attack in 1-1.5 hours. So the best combo for me, if my stomach can take it, is to use Imitrex at as low a dose as possible to be effective along with O2.

I happen to respond very well to the text-book conventional treatment as long as I don't throw up on Imitrex.  I'm pretty diligent with my diet and supplements as well during episodes, to protect my heart, brain cells (or what's left up there), and everything else.  Everybody's phenotype is different, so I do hope you'll find the right combo of "stuff" that works best for your case.

Too much Trex (sounds like rebounds big time).

I'm an O2 "pusher". For years I used trex and then ergotomine (still keep ergotomine around for EMERGENCY use only), but have found that O2 used RIGHT will almost always abort, not only the headaches but the shadows as well.

Now to find out if the O2 is going to work properly in place of too much Trex, you'll have to come down off the trex. This will be painful (trex is kinda like an addiction especially the doses you've been taking). It sorta depends on how much pain you're willing to endure to get "down".

For me, a few high Kips were worth getting off the dependency and getting on O2. I can't remember when I've had to have an abort except for the O2 (maybe a Red Bull occasionally with the O2) in a long time. But there was some PAIN involved in getting here.

I'm not saying get off the trex completely - just cut down. You're taking way too much.. and that's not a good thing for you.

Oh and get on a good "prevent" to help "avoid" the hits or at least keep them at bay.

Hugs BD

Hey Buddy,  If o2 worked in the past try it again this time try to stay on it for 5-10 minutes after the pain is gone this seems to keep it away longer,  I will be going back to o2 when I can get rind of these "shadows".  200mg imi a day is the max and thats what your taking I am doing the same or even a little more but now that I have been doing it for a long while the imi doesn't knock out the pain completely it only reduces it from a 7-8kip to a 5-6kip hopfully your cycle will end before this happens to you but imi tends to prolong a cycle.
     Hope you find some pf time soon,  Phil

Hi Linda I have caught up on Svenns situation and its not even close to the same here trust me and even my wife who is a CNA who works at the hospital on the Neuro science floor would know if I was addicted and would of get me help so please dont worry I have no addiction I get (12) max shots per month and can have only 3 in a 24 hour period which in almost 4 years have had to do 6 times and its more like every 30-40 days I get them and twice have gone two month before I needed them. I only call when down to 2 shots and it takes 48 hours to refill from my neuro. Its the 75mcg/hr fentanyl patches that I wear to keep my chronic clusters down to a 3-4 pain level 24/7 that when and if I go back to episotic or no more clusters that I will then have to step down on doses and detox under hospital care.  Terry

Quote:


It may be your using an abortive as a prevent. Way too much trex in any case.
sure it is within the recommended max dosage but still too much. The beast will find a way around anything being used constantly.
Hope the best for all of you whatever you do.
the bb

Chill out Linda I didnt mean to get ya upset "you know everyone is different how they handle thier pain with these clusters". I could write about what I have gone thur tried , failed, ETC. to get where/why I am on these meds BUT I dont want to Hijack the thread so I will just bow out now and not tell my story ok. Terry (never ever want to upset anyone or lead them down the wrong path)

Anything is Possible Don.
Keep lookin

Goes for you too Phil

                            JPC