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ClusterChuck

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The BEAST rises again,
and again, and again,
and .

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Oxygen Question ...
Oct 26^th, 2008 at 2:00pm

A fellow sufferer sent me a PM asking the following question, and I don't think I have ever heard of this, in all our discussions about O₂ usage:

Quote:

Chuck the oxygen is burning my tongue up. I can sure live with it but I thought you might know a fix.

Have any of you ever experienced this? I have chatted with several O₂ "pushers" and none of us have run across this, yet.

Any one ever experienced that?

Chuck

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CAUTION: Do NOT smoke when using or around oxygen. Oxygen can permeate your clothing or bedding. Wait, before lighting cigarette or flame.

Keep fire extinguisher available, and charged.

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Jonny Ex Member	Re: Oxygen Question ... Reply #1 - Oct 26^th, 2008 at 2:24pm Never heard of it. That person should see their doc.
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Skyhawk5 CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1320 Ypsilanti, Mi. USA Gender:	Re: Oxygen Question ... Reply #2 - Oct 26^th, 2008 at 7:41pm A little dry maybe but never "burned". Prednisone? That's new to me. Maybe on it far too long, like fell asleep?. , Don
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Batch

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Control The Beast With
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Re: Oxygen Question ...
Reply #3 - Oct 26^th, 2008 at 9:22pm

Chuck,

I've been using oxygen therapy with a mouthpiece for my cluster headaches for nearly 3 years at much higher flow rates than most folks and I've never had that or any other problem except an occasional dry mouth... I also spent over 3,000 hours breathing 100% oxygen while flying Navy fighters at high flow rates as well... No problems there either.

At this point, I'm more like Pavlov's dogs. When I turn on the oxygen, my mouth starts to water...

His problem sounds more like tongue bite to me... Is he smoking a pipe?

Take care,

V/R, Batch

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You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

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wewcaj

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Re: Oxygen Question ...
Reply #4 - Oct 27^th, 2008 at 3:07pm

It was me that presented this question to Chuck. I no longer smoke at all.I have wonderd if it's maybe the predisone causing it also. It happens every cycle as if my tatse buds are burned. Then clears up when the headaches go away. Don't get me wrong I am not complaining about the oxygen. So far this cycle the oxygen has been a godsend. And as we all know most other shit is really minor when dealing with these beasts.

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« Last Edit: Oct 27^th, 2008 at 3:09pm by wewcaj »

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thebbz Ex Member	Re: Oxygen Question ... Reply #5 - Oct 27^th, 2008 at 3:30pm All I can think is maybe get a bubbler/humidifier if you dont have one. That and keep the doc informed. I hate it for ya. thebb
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Skyhawk5

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Re: Oxygen Question ...
Reply #6 - Oct 27^th, 2008 at 3:41pm

It's the Prednisone. Happens to me , you are developing Thrush on your tongue. What will help this is a prescriptions for Nystatin* mouth wash.

Without Nystatin my tastbuds start to come off after long bursts of pred. It can get pretty bad. That is the problem. Call you Dr. and get some, there are no home treatments for Thrush. Best, Don

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Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not.

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wewcaj CH.com Newbie Offline I Love CH.com! Posts: 11	Re: Oxygen Question ... Reply #7 - Oct 27^th, 2008 at 3:53pm Thanks , I will call my Doctor. It is amazing how much a man can learn from collective knowledge.
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BMoneeTheMoneeMan CH.com Alumnus Offline In remembrance of KingCazman. RIP Posts: 2674 Portland, OR	Re: Oxygen Question ... Reply #8 - Oct 27^th, 2008 at 4:04pm I notice this a little also. I think it is extreme dryness. I don't take pred.
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Jonny

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Re: Oxygen Question ...
Reply #9 - Oct 27^th, 2008 at 9:00pm

Skyhawk5 wrote on Oct 26^th, 2008 at 7:41pm:

A little dry maybe but never "burned". Prednisone? That's new to me. Maybe on it far too long, like fell asleep?. , Don

Huh?

Skyhawk5 wrote on Oct 27^th, 2008 at 3:41pm:

It's the Prednisone. Happens to me , you are developing Thrush on your tongue. What will help this is a prescriptions for Nystatin* mouth wash.

Without Nystatin my tastbuds start to come off after long bursts of pred. It can get pretty bad. That is the problem. Call you Dr. and get some, there are no home treatments for Thrush. Best, Don

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« Last Edit: Oct 27^th, 2008 at 9:01pm by N/A »

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Skyhawk5

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Re: Oxygen Question ...
Reply #10 - Oct 27^th, 2008 at 10:30pm

Thrush is a Fungal infection (Candida). I get it from Prednisone due to an alergic type reaction. I was told by my Dr. there are no home treatments, I just read that rinsing the mouth with yogurt for a minute or so is a home treatment.

When I saw that wewcaj is taking Pred. the flag popped up. Before I knew what was happening I had pieces of skin coming off of my tongue and went to the dentist pronto. Now the Dr. gives a Rx with the pred., but I still have some discomfort. Best, Don

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Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not.

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BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: Oxygen Question ... Reply #11 - Oct 28^th, 2008 at 10:34am My Mom and Grandmother always swore "buttermilk" was good for thrush (Yuck!!). Yogart sounds better than "buttermilk"! Hugs BD
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Skyhawk5 CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1320 Ypsilanti, Mi. USA Gender:	Re: Oxygen Question ... Reply #12 - Oct 29^th, 2008 at 10:15pm BD, My My Mother used to drink buttermilk. One day I asked for a glass of milk and she gave me the buttermilk instead, and I puked for days. Yeck!!!!! Awful stuff. I'll stick with the Nystatin. I don't like yogurt either. Best, Don
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Batch

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Re: Oxygen Question ...
Reply #13 - Nov 2^nd, 2008 at 7:02am

Hey Wewcaj,

Hang in there... A dry mouth is a small price to pay for an effective abortive... Keep some ice water or your favorite cold beverage handy when you're huffing and puffing on oxygen therapy.

As one of the "Oxygen Pushers," I'm confident that oxygen therapy at higher flow rates is still far more effective in aborting cluster headache attacks than some folks think. On top of that, I hear from a lot of cluster headache sufferers who have tried oxygen therapy for the first time or who tried it unsuccessfully in the past, now saying it works and they wish they had started using it sooner.

Yes, there will always be a few who are truly caught between a rock and a hard place due to other medical conditions that prevent oxygen therapy from helping them shoot the beast and send it running. Many of them will need the aid of another abortive to end the pain of their attacks. For the rest who use this therapy properly, at a high enough flow rate, and at the first sign of a pending attack when possible, the results are very impressive.

I'm not a doctor, but I'll put oxygen therapy up against the side effects of the other abortive medications any day... It's important that all of us ask our doctors and neurologists about the risks and rewards associated with any medication prescribed or over the counter. Ask specifically about the immediate and long term side effects.

While you're waiting to see your doctor or neurologist... Google it...

Here are the results of two Internet queries where I used the following search terms including quotes for the first query: Oxygen "Cluster Headache" "Side Effects" and then exchanged Imitrex for Oxygen in the second query.

9,920 for [Oxygen "Cluster Headache" "Side Effects"]
11,100 for [Imitrex "Cluster Headache" "Side Effects"]

Granted, a simple Internet query like this should not be used as the basis for choosing one abortive over another, but it is a good starting point for discussions with your doctor. That said, there is still an order of magnitude more articles on Imitrex side effects than there are on Oxygen. Food for thought.

Take care,

V/R, Batch

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You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

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