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Just Plain Carl CH.com Old Timer Offline IT IS WHAT IT IS Posts: 449 Royal Oak, Michigan Gender:	Re: crap, crap, crap and crap Reply #25 - Oct 27^th, 2008 at 11:42pm 160th week !!!!!!! Man I feel for you. Thats like Mega Crap. Hang In There Bud JPC
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CH-HELL

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Re: crap, crap, crap and crap
Reply #26 - Oct 28^th, 2008 at 12:20am

160 or 6 it is all the same once youre sleep is disrupted for more than a month I think the fatigue is about the same, on the bright side when I get 3-4 hours sleep it almost feels like a full nights sleep. I wasn't looking for sympathy I was just putting my two cents in and truely hoping the best for you.
If I where you I would up the Verap to break the cycle the beast has a mind of its own and you dont want to end up being chronic when you could have broke the cycle. Now you hang in there I have come to terms with it so Im good here, even though it is MEGA CRAP. Go kick some demon a$$. pf days and nights to all. Phil

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Just Plain Carl

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Re: crap, crap, crap and crap
Reply #27 - Oct 28^th, 2008 at 9:57pm

Coming to terms with this is the major part of the battle.

Last night was another one for the crap chronicles. Had a K8-K9 for about a half hour.
Major shadow for a couple more hours. Didn't want to, but I took a Trximet and got about 4 hours sleep. Wigged me out all day.

Anyway, I picked up my scrip for 02 today. Hopefully be hooked up by tomorrow.

Good Sleep To Ya Bud
JPC

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flipperlips

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Re: crap, crap, crap and crap
Reply #28 - Oct 28^th, 2008 at 10:09pm

Hi JPC

Sorry to hear that you had a rough night again. I hope that the O2 helps you. I also hope that you get some good sleep tonight.

Phil slept maybe a half an hour last night. He appears to be sleeping right now. I just know that when I leave for work in a little while he will wake up no matter how quiet I try to be.

Anyway, I just really wanted to say hi to a fellow Michigander.

Hugs Smiley

Jen

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Only one life.....only one chance to make the moment count for something - Racer1_NC

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Skyhawk5

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Re: crap, crap, crap and crap
Reply #29 - Oct 29^th, 2008 at 1:22am

Hey guys, Having a crappy time tonight too. Tomorrow is my last Prednisone dose and the Beast is hungry tonight. Fought off a 7 that came right back as a K-8 5min later. Thank God for O2.

My last 2 cycles, the night before the last dose I had Kip-10's so the nerves are on edge. Had the wake up calls all last night so setting here tired, with my shot ready but trying to hold out, just a little longer. Just some nerve to lay down.

Good night & Good Luck, Don

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Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not.

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Just Plain Carl CH.com Old Timer Offline IT IS WHAT IT IS Posts: 449 Royal Oak, Michigan Gender:	Re: crap, crap, crap and crap Reply #30 - Oct 29^th, 2008 at 2:15pm Hi Jen, JUst got home with the O2. Went to Binson's. It was another adventure. Tell Phil not to sleep with those wooden shoes. Don, Sure wish there was something that would be a guaranteed knockout at night All The Best Guys JPC
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CH-HELL

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Re: crap, crap, crap and crap
Reply #31 - Oct 29^th, 2008 at 2:43pm

Just Plain Carl wrote on Oct 29^th, 2008 at 2:15pm:

Hi Jen,
JUst got home with the O2. Went to Binson's. It was another adventure.

Tell Phil not to sleep with those wooden shoes.

Don,

Sure wish there was something that would be a guaranteed knockout at night

All The Best Guys
JPC

LOL

my neuro just perscrided these shoes, see ya next Tulip Time.

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BrianJ CH.com Veteran Offline Take It Easy Posts: 190 \|Liverpool\|England\| Gender:	Re: crap, crap, crap and crap Reply #32 - Oct 29^th, 2008 at 3:22pm Hi Peeps Well i feel crap for yas im not in cycle atm but when i am its the sleepless nights that get me down so much, PF vibes to you all hope you can all get some sleep we all know to well what sleepless nights feel like PF wishes for ya all Brian
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Johnnystar

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Still flowing

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Re: crap, crap, crap and crap
Reply #33 - Oct 29^th, 2008 at 3:34pm

It used to be that both my CH's and my cycles followed a predictable pattern. But now there doesn't seem to be much of a pattern to either. My last cycle ended abruptly with a nasty 4 hr. K9-7, before that it would always taper off.

In this cycle I'm being attacked in the early evening, and when it ends, I take an over the counter sleep aid and get a pretty good night's sleep.

Best wishes for PF days and nights and a quick end the cycle.

Johnnystar

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Skyhawk5

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Re: crap, crap, crap and crap
Reply #34 - Oct 29^th, 2008 at 4:34pm

I did get some sleep this morning. I am just so darn conservative with my knock out shot, for good reason. For aborting......

All of us have to fight the beast in our own ways on our own terms but in the end we do win the battle. We survive and carry on our lives as best we can. It sure helps when we can sleep or get a PF break but when we don't coming here and being with others who know is about the best thing for us.

Carl, I should probably say I can wait to hear about your 1st abort with O2. Best to All, Don

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Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not.

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Just Plain Carl

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Re: crap, crap, crap and crap
Reply #35 - Oct 29^th, 2008 at 4:48pm

All of us have to fight the beast in our own ways on our own terms but in the end we do win the battle. We survive and carry on our lives as best we can. It sure helps when we can sleep or get a PF break but when we don't coming here and being with others who know is about the best thing for us.

Well said My Man.

We'll see about the O2 abort. Now that I have all the tools, the beast just may take a hike. Would suit me just fine.

Hope you have a more tolerable evening

JPC

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flipperlips CH.com Alumnus Offline Live, Laugh, Love Posts: 935 Mcallen, TX Gender:	Re: crap, crap, crap and crap Reply #36 - Oct 29^th, 2008 at 6:28pm Just Plain Carl wrote on Oct 29^th, 2008 at 2:15pm: Hi Jen, JUst got home with the O2. Went to Binson's. It was another adventure. Tell Phil not to sleep with those wooden shoes. All The Best Guys JPC I knew it had to be those shoes. I told him to quit wearing em. LMFAO Good luck with the O2. Hugs, Jen
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thebbz Ex Member	Re: crap, crap, crap and crap Reply #37 - Oct 29^th, 2008 at 6:41pm Crappy crap crap, poop crapz. Same stuff different night. Fight on gentlemen. all the best the bb
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Just Plain Carl CH.com Old Timer Offline IT IS WHAT IT IS Posts: 449 Royal Oak, Michigan Gender:	Re: crap, crap, crap and crap Reply #38 - Oct 30^th, 2008 at 12:46pm A double Bullcrap evening. gettin tired of this crap.
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thebbz Ex Member	Re: crap, crap, crap and crap Reply #39 - Oct 30^th, 2008 at 1:17pm Well Carl that 02 should help ya out with the sleep. Hit the 02 and abort, hit the sack, wake up, abort again and you may just get some ZZZZZZ's if you can get past REM. Four hours last night, I'm good to go. Got past REM at 2 am, up at, 6 go to work. all the best thebb
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Just Plain Carl CH.com Old Timer Offline IT IS WHAT IT IS Posts: 449 Royal Oak, Michigan Gender:	Re: crap, crap, crap and crap Reply #40 - Nov 4^th, 2008 at 12:34am Just felt like sayin CRAP. The O2 is working well. Knocks the mutha out in about 10 min. Luckily I am near the end of Cycle (fingers crossed) and am only dealing with 1 hit per night. So anyway, Crap on the one hit. PFD's On You All JPC
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thebbz Ex Member	Re: crap, crap, crap and crap Reply #41 - Nov 4^th, 2008 at 7:13pm One hit is worth at least one crap. Crap crap crap crap. But just one today. Oh maybe tonite I'll get lucky.. all the best the bb
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Skyhawk5

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Re: crap, crap, crap and crap
Reply #42 - Nov 5^th, 2008 at 2:56pm

Crap, crap, crap. Me too. Got hit with a K-10 this morning @ 4am after a couple hours sleep, gave myself the shot & slept 4 more. Thebb you said it. Carl you got it. Really gets tuff. I've been at the point where I knew I could work but 'should I drive?'. Made it though.

I feel that way right now. Hang in there guys a better day is coming Best, Don

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Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not.

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thebbz Ex Member	Re: crap, crap, crap and crap Reply #43 - Nov 5^th, 2008 at 10:17pm Well I am just full of crap lately...he.hee.hee. crap. K tank ain't big enough the bb
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CH-HELL

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Re: crap, crap, crap and crap
Reply #44 - Nov 5^th, 2008 at 10:25pm

Quote:

Well I am just full of crap lately...he.hee.hee.
crap. K tank ain't big enough Wink

the bb

Im full of crap to but no kip 10's and I am thankful for that, hang in there Don. I've even got some sleep in the past few nights thanks to prednisone but I started tappering down yesterday and already can feel it coming back, I'll see what happens tonite.
Phil Cool

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thebbz

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Re: crap, crap, crap and crap
Reply #45 - Nov 5^th, 2008 at 10:31pm

Quote:

I've even got some sleep in the past few nights thanks to prednisone but I started tappering down yesterday and already can feel it coming back, I'll see what happens tonite.

I was up for 6 days straight one year on a long taper. Grew some rightous man boobs, and was baking cookies at 3:00am. Shocked

I hate prednipoison. Worked a few times though.
Kick A$$ Phil

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Skyhawk5

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Re: crap, crap, crap and crap
Reply #46 - Nov 5^th, 2008 at 11:12pm

In '05 I was on 80mgs and got totaly nuts. Went out and bought 7.5 acres of property without the wifes knowledge and am paying for it to this day. I don't remember half the things I did. I do remember having sugery on my CH side eye to implant drainage tubes for a blocked tear duct. Got hit as I was rolled out of the OR.

Told Helen, "give me the stadol" and proceded to use it, the nurse freaked and grabbed it out of my hand, "you can't do that". Like I said I was nuts. Bad thing is I thought I was on top of the world. Never again says the Neuro. I'm fine @ 60mgs, and have been on that twice since. Just got off a week ago. What we do....

I think this mornings '10' may be the last for this cycle. (educated guess) Tonight will tell, I should be coming out of peak. OK long winded done. ,Don

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Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not.

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Just Plain Carl CH.com Old Timer Offline IT IS WHAT IT IS Posts: 449 Royal Oak, Michigan Gender:	Re: crap, crap, crap and crap Reply #47 - Nov 5^th, 2008 at 11:23pm Here's a big UNCRAP on you guys. Hope you all have a good night with lots of sleep. I'm still on one minor hit after I go to sleep. I can live with that Uncrap On Ya JPC
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thebbz

Ex Member

Re: crap, crap, crap and crap
Reply #48 - Nov 5^th, 2008 at 11:42pm

Quote:

In '05 I was on 80mgs and got totaly nuts. Went out and bought 7.5 acres of property without the wifes knowledge and am paying for it to this day.

I cant touch that one. Cheesy

Thanks for the uncrap

Hey anyone who gives a crap jump in ...it's a crap thread.
The taper I was referring to started at 100mg for 4 day's, I drove the wifey nutso. No headaches though Wink

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CH-HELL

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Re: crap, crap, crap and crap
Reply #49 - Nov 5^th, 2008 at 11:57pm

Yep pred sucks but the wife works nights and is always impressed at what I got done when she gets home, I may not sleep much while on pred but atleast I get some pf sleep, any time I get 3-4 hours Im happy. The pred side affects are alittle different this time my skin is burning and I cant stop itching and the man boobs hope I dont start milkin' oh well what the hell!!!! You guys dont worry about me I'll keep on keepin' on.
Phil Cool

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