Click this link to read a post I like on the clusterheadaches.com message board...

pubgirl

CH.com Hall of Famer

Offline

The next person who calls
it a migraine eats teeth

Posts: 693
x0|London|United_Kingdom||0|0|
Gender: female

Links to show your employer/family what CH is
Sep 1^st, 2008 at 10:33pm

Following Linda's thread below am posting this separately as it may be REALLY useful to people:

I cannot believe his bravery and I can't really bear to watch Chuck's agony on the video of his attack so here are the links below which are perhaps a bit "easier" for the average person to watch:

They include: (Brits I'm afraid but they have nice voices!)

Several very good summaries of what CH is including ECH and CCH by a knowledgeable doctor (which is miraculous as most stuff I see from Doctors like the one on You Tube are rubbish) It could also help people who are unsure of or can't get a diagnosis as the diagnostic criteria are really clearly explained. I would only quibble with one VERY minor detail about sex bias.

Some real sufferers explaining the pain and what it means to them. You can also see a clustermasx and an Imi pen in use.

I showed them to Pink and he was impressed and also sent them to my family and close friends to try and help them understand so it may be useful for others too?

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Added: Perhaps when people have had a chance to see them they could leave feedback and if they are as valuable as I think they are- DJ might think about us having them here on a fixed thread or a link of some kind??

Wendy

Back to top

« Last Edit: Sep 1^st, 2008 at 10:34pm by pubgirl »

Calling all Brits (and anyone else- all welcome) Join OUCH UK and help us fight CH together

IP Logged

Click Here to visit the CH.com Facebook page!

j_erickson85 CH.com Newbie Offline Posts: 21 x0\|St. Cloud\|USA\|\|0\|0\|MN,Minnesota Gender:	Re: Links to show your employer/family what CH is Reply #1 - Sep 1^st, 2008 at 10:45pm What a great find. thank-you for posting this!!!
Back to top	A life spent making mistakes is not only more honorable, but more useful than a life spent in doing nothing!!!!!!!!!!!!!!! IP Logged

pubgirl

CH.com Hall of Famer

Offline

The next person who calls
it a migraine eats teeth

Posts: 693
x0|London|United_Kingdom||0|0|
Gender: female

Re: Links to show your employer/family what CH is
Reply #2 - Sep 1^st, 2008 at 10:50pm

Thanks J

It isn't my find or my work- lots of effort by OUCH went into making this happen for educating people here and quite a lot of people on ch.com know the people featured in the videos!

I don't want to seem too enthusiastic but I think they are absolutely brilliant and have a host of uses for sufferers and supporters

W

Back to top

Calling all Brits (and anyone else- all welcome) Join OUCH UK and help us fight CH together

IP Logged

ClusterChuck

CH.com Alumnus

Offline

The BEAST rises again,
and again, and again,
and .

Posts: 5394
Greenville, North Carolina
Gender: male

Re: Links to show your employer/family what CH is
Reply #3 - Sep 1^st, 2008 at 11:57pm

Wendy, those are GREAT links! Thank you for posting them!

Very clear, concise, and to the point. (Or at least they are clear, once you get over that funny accent that they are talking with) (When are the English going to learn to speak English?)

Thanks again for bringing these out to this site.

Chuck

Back to top

CAUTION: Do NOT smoke when using or around oxygen. Oxygen can permeate your clothing or bedding. Wait, before lighting cigarette or flame.

Keep fire extinguisher available, and charged.

IP Logged

sandie99 CH.com Hall of Famer Offline Wish it, dream it, do it - inspite the pain! Posts: 11975 Finland Gender:	Re: Links to show your employer/family what CH is Reply #4 - Sep 2^nd, 2008 at 3:48am Great links, thank you for postinb them, Wendy. Sanna
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

Cathi_Pierce CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1191 x0\|Oregon City\|USA\|\|0\|0\|OR,Oregon Gender:	Re: Links to show your employer/family what CH is Reply #5 - Sep 2^nd, 2008 at 8:29am Those are great, Wendy! A bit more palateable for those who cannot take Chuck's video, or Tony's. Personally, I think both are necessary. DJ? Good on ya, W the B! Cathi
Back to top	Life is not measured by the number of breaths we take, but by the moments that take our breath away. IP Logged

George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: Links to show your employer/family what CH is Reply #6 - Sep 2^nd, 2008 at 9:27am Those are excellent. Thanks for pointing them out, Wendy. Best wishes, George
Back to top	"Whoever loveth me, loveth my hound." (Thomas More, author of "Utopia", and Chancellor of England. 1477-1535) IP Logged

Karl Ex Member	Re: Links to show your employer/family what CH is Reply #7 - Sep 2^nd, 2008 at 11:20am what a treasure. i downloaded the videos for future reference. thanks to OUCH. i am glad i am a member. Karl
Back to top	IP Logged

Kate in Oz

CH.com Hall of Famer

Offline

Posts: 633
Australia
Gender: female

Re: Links to show your employer/family what CH is
Reply #8 - Sep 2^nd, 2008 at 9:06pm

Thanks Wendy, it took well over an hour to download those clips but it was well worth it! To all those involved in the making, I say thank you.

I just hope I get the opportunity to show them to my mother, who 22 years later still does not understand at all what cluster headache is and honestly takes very little interest. She assumes that I get 'headaches' because I'm not eating properly or not getting enough sleep (no I'm not!) etc etc etc.

Fantastic stuff!

Kate

Back to top

IP Logged

Click Here to visit the CH.com Facebook page!

Vomact CH.com Newbie Offline Leap and the net will appear Posts: 20 Hampstead, NH USA Gender:	Re: Links to show your employer/family what CH is Reply #9 - Sep 3^rd, 2008 at 9:11am Thanks Wendy! A great resource. Vomact
Back to top	IP Logged

LeeS CH.com Alumnus Offline I love C12 H16 N2O! Posts: 639 West London, UK, Europe Gender:	Re: Links to show your employer/family what CH is Reply #10 - Sep 3^rd, 2008 at 10:06am Who's the tosser in the blue and white shirt Wend? Seriously though, I think these are strictly copyrighted (they got chucked off youtube, for example). -Lee Edited for the spell-checker
Back to top	« Last Edit: Sep 3^rd, 2008 at 10:09am by LeeS » IP Logged

Chad CH.com Hall of Famer Offline Posts: 738 Emmaus, PA Gender:	Re: Links to show your employer/family what CH is Reply #11 - Sep 3^rd, 2008 at 10:10am Great info Wendy. This is something for my family to see since I hide when experiencing hits.
Back to top	When the PAIN starts, I FIGHT back! Rivea Corymbosa seeds were my KO punch, now D3 is the front runner! IP Logged

pubgirl

CH.com Hall of Famer

Offline

The next person who calls
it a migraine eats teeth

Posts: 693
x0|London|United_Kingdom||0|0|
Gender: female

Re: Links to show your employer/family what CH is
Reply #12 - Sep 3^rd, 2008 at 4:43pm

LeeS wrote on Sep 3^rd, 2008 at 10:06am:

Who's the tosser in the blue and white shirt Wend? Grin

Seriously though, I think these are strictly copyrighted (they got chucked off youtube, for example).

-Lee

Edited for the spell-checker Cool

I did ask Val if you ever changed your shirt!

They are free for anyone to view on the Net- that is all I was suggesting

W

Back to top

Calling all Brits (and anyone else- all welcome) Join OUCH UK and help us fight CH together

IP Logged

DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: Links to show your employer/family what CH is Reply #13 - Sep 3^rd, 2008 at 7:39pm Great stuff Wendy! Thanks for posting the links... -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

coach_bill CH.com Hall of Famer Offline "Dont expect me to lay down for this" Posts: 680 x0\|euclid\|USA\|\|0\|0\|OH,Ohio Gender:	Re: Links to show your employer/family what CH is Reply #14 - Sep 4^th, 2008 at 8:54pm thank you wendy.
Back to top	boy i cant wait till it's my turn to give him a headache. paybacks a bitch IP Logged

DV8 CH.com Newbie Offline Posts: 11 Amsterdam, The Netherlands Gender:	Re: Links to show your employer/family what CH is Reply #15 - Sep 12^th, 2008 at 6:08am Very nice link, thanks!
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

Izzy CH.com Junior Offline Choose life. Posts: 70 Red Deer, AB, Canada Gender:	Re: Links to show your employer/family what CH is Reply #16 - Oct 17^th, 2008 at 9:59pm Thanks for posting this; it will be valuable in the short term for us as we get over everyone's initial reactions...& save us much explaining.
Back to top	"There are no monuments dedicated to me, and my name will soon be forgotten, but I have loved someone with all my heart and soul, and to me, this has always been enough.” IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!