hayduke wrote on Sep 26^th, 2008 at 5:36am:


TJ,

Let me add that another side effect of too much melatonin is insomnia!  Given the connection between CH and sleep disturbances, it sure seems possible that excessive melatonin could have an effect opposite of what's intended!

I'm also inclined to think that you're right about the Topamax interfering with the mix.  I'll post in more detail about that later.

Glad to hear that the mix is helping at least to some extent.  Don't give up just yet - Like you said, maybe your cycles are just stubborn and will take a little longer to break.  Please keep posting your progress, and let us know how it goes as you get off the Topamax.

GL & Best regards,
Jim

teajay wrote on Sep 25^th, 2008 at 3:16pm:


TJ,

How's it going?

Regards,
Jim

hayduke wrote on Sep 30^th, 2008 at 9:29am:

Hi Josh,

Great news!  I'm sure glad it worked, and hope you'll stick around the boards to encourage other folks to try it out.  Per George's suggestion, I'm going to start another thread on the topic - just not sure when I'll get around to it.  I work a pretty hectic schedule.

Thanks for sharing your success story, and please stay in touch!

Best regards,
Jim

Indestructible wrote on Sep 30^th, 2008 at 3:25pm:


Hi John,

Great to hear it's working!  I'm not going to make any grand claims, but it's sure racking up a good track record!  

Please post as often as you can for a while, to keep us updated on progress.  I'll be particularly interested to learn how soon you determine you're 100% PF, and then how long you choose to keep taking the regimen afterwards.  I had been suggesting that people stay on it for a week after they're PF, but from Josh's posts, it sounded like that might not be quite long enough for some.  Might give it two weeks(?).

No kisses necessary - a firm handshake will do just fine!  

Best regards & GL!
Jim

teajay wrote on Sep 30^th, 2008 at 6:16pm:


Hang in there, TJ!

Sorry you're getting hit, but I'm glad you think that the combo is at least helping.  So far as I know, you're the ONLY person so far who has not been able to break a cycle with the stuff, and I think you're also the only one on Topamax.  No idea if there's a connection, but I'm very suspicious!

You sure don't want to "experiment with yourself" without keeping your doctor in the loop, at least with respect to the prescription med(s) you're taking!  When you do get completely off the T-Max, I'll be real curious to see whether the combo works better for you.

Please stay in touch, and GL!

Regards,
Jim

To the TheBBZ,

I'm very confused. Just five days ago you said you were PF for the last 3 years so how could you have tried it?

Whoa!    lets stop here for a second...shall we?

    John BBz is a MOST(No...a VERY MOST)  respected member of this community.  he is a trusted friend of mine.  Whatever he may have said...lets give him some time to respond, can we?


    Sheesh. 

George wrote on Oct 2^nd, 2008 at 2:53am:


Agreed.  I overreacted.

I'm probably pretty defensive right about now as I am shadowing pretty heavily and expecting to get hit hard pretty soon now.  I do not want to hear anything that suggests that my mix won't work.

My apologies.

Regards,
Jim

Quote:


John,

Again, I apologize for my knee-jerk reaction to your post, but there is clearly some misunderstanding of what mix we're talking about here.  No flame intended.

You say you used the mix 7 or 8 years ago, "at first to replace calcium depleted from predinisone and then at the suggestion of a GP I began using magnesium and B2 to supplement the supplement."  Why would you use the mix to replace calcium, considering that it does not contain calcium?  Nor does it include Vitamin B-2.  We're obviously not talking about the same thing here.  Is it possible that you're confusing this with Robert's Magnesium/B-2/Feverfew combination?

The recipe that is, and has been, the subject of this thread is:

Kudzu - 1000 mg, 2x per day (morning & night)  
Magnesium - 250 mg, 2x per day (morning & night)  
St. John's Wort - 300 mg, 2x per day (morning & night)  
Skullcap - 425 mg at bedtime  
Melatonin - 10 mg at bedtime  

If you tell me that you used all (not some) of these ingredients, in the portions listed above, taken at the times of day described, 7 or 8 years ago for at least a couple of weeks, and it had no effect on your CH, then I will duly note that it did not work for you.  You'd be the first to report no benefit.  I will also be totally astonished that we independently came up with the exact same dosages of five diffent components, as the odds against that are truly astronomical.

In the meantime, I continue to track the progress of a growing number of people who have reported that this stuff has worked miracles for them.  No one has told me they've followed this recipe to the letter and had absolutely no benefit from it.  There's no doubt that that will eventually happen, but it hasn't yet.  I just hope that the mix can benefit many others.

Thanks for your input, and please stay in touch.

Regards,
Jim

Quote:


No I did not follow your recipe to the letter. I have used all of the ingredients in different combinations.  Suppliments as well ,different episode. I do want to try it though.
I am sure I can get some coaching I dont have to look at my diary to see that my seed consumption is up. The shadows are here and I am currently of the mind I would drive a spike in my ear before I eat another pred taper. Should the seeds and shrooms not have their desired effect I hope you would humble me with some tips.
  I have always had the opinion that CH is different for each individual to some extent, and I can only hope your particular treatment has more sucess. I was wrong saying your treatment wasn't new. Maybe it is. I also believe PF is a metaphor for one step ahead of the demon. PF or not I still have CH. PF means I haven't dialed 911 yet
all the best
thebb

I took some sick time from work or I would never of been able to handle this.... test.
I backed of the kilowatt to see if my Topamax taper would do anything... it did, it caused alot more CH in the night and day with more intense pain.
I'm going to go back on the kilowatt today for the duration of this cycle weather it ends or not, it dampens the pain and lessens amount of CHs.
I was only off it for a couple days and I'm not going to go higher on the T-max, had a similar experience in the past with it making CH worse.  When I'm outta cycle, T-max is going with it.
enough of my
PFD&N to all

T

rocky wrote on Oct 2^nd, 2008 at 7:44pm:


Great news, Rocky - Thanks for the update!

Please keep posting your progress.  Let us know how long you decide to stay on it, and how it goes for you when you stop!

Best regards,
Jim

Indestructible wrote on Oct 4^th, 2008 at 7:09pm:

OK John!

Thanks for the feedback!  Glad it's helped some.  Any particular reason you started leaving the mag and the skullcap out?

It sounded like you were pretty heavy into cycle when you started it (?)  Maybe an earlier start next time will help.  Thanks again, and stay in touch!

Regards,
Jim