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Kilowatt3! (Read 36882 times)
gsockrider
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Re: Kilowatt3!
Reply #125 - Oct 19th, 2008 at 4:14pm
 
3 more days w/o a cluster. I am so glad to find relief, I think it cut my usual cycle short. If you havn't tried it give it a chance. It worked for me!
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thebbz
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Re: Kilowatt3!
Reply #126 - Oct 19th, 2008 at 5:36pm
 
hey Jim,
I had to give up the treatment. That doesn't mean anything but it didn't work for me. I'm going with the shrooms and seeds again, after a few days detox. (I can do this only because of caffeine and 02.)
I do think it was the melatonin. I may try it again in the future without it. I haven't taken it at that high of dose either. Most I had tried in the past was 6mg daily. 02 is fast becoming my savior this time around. I refuse to use pharaceuticals and would only consider them a last resort.


onward through the fog
thebb
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Kilowatt3
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Re: Kilowatt3!
Reply #127 - Oct 21st, 2008 at 6:02pm
 
gsockrider wrote on Oct 19th, 2008 at 4:14pm:
3 more days w/o a cluster. I am so glad to find relief, I think it cut my usual cycle short. If you havn't tried it give it a chance. It worked for me!

Hi Guy!

Great to hear you're doing well!  Suggest you keep at it for a few more days, just to be sure.  Stay in touch!

Regards,
Jim
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Regards,
Jim
SW Louisiana

If "that which does not kill me, makes me stronger", then how come I always feel like $hit after every near-death experience?
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rocky
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Re: Kilowatt3!
Reply #128 - Oct 21st, 2008 at 8:11pm
 
This is my 4th week PF on Jim's formula-now I'm just letting the pills run out to see what happens. So far so good. Rocky
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Kilowatt3
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Re: Kilowatt3!
Reply #129 - Oct 21st, 2008 at 9:59pm
 
rocky wrote on Oct 21st, 2008 at 8:11pm:
This is my 4th week PF on Jim's formula-now I'm just letting the pills run out to see what happens. So far so good. Rocky

Hiya Rocky!

Great to hear that it's continued to work for you!  Hope you'll keep dropping by now & then to let us know how you're doing.

Very best regards,
Jim
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Regards,
Jim
SW Louisiana

If "that which does not kill me, makes me stronger", then how come I always feel like $hit after every near-death experience?
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Kilowatt3
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Re: Kilowatt3!
Reply #130 - Oct 22nd, 2008 at 8:41am
 
Quote:
I had to give up the treatment. That doesn't mean anything but it didn't work for me...
I do think it was the melatonin. I may try it again in the future without it. I haven't taken it at that high of dose either. Most I had tried in the past was 6mg daily. 02 is fast becoming my savior this time around. I refuse to use pharaceuticals and would only consider them a last resort.

John,

Sorry it didn't work out for you.

One of the references I found about melatonin was from "Chronobiology International":
Large doses of melatonin can even be counterproductive: Lewy et al provide support to the "idea that too much melatonin may spill over onto the wrong zone of the melatonin phase-response curve" (PRC). In one of their subjects, 0.5 mg of melatonin was effective while 20 mg was not.

So, with less melatonin, maybe it'll work better for you next time.  GL with the seeds & 'shrooms!

Regards,
Jim
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Regards,
Jim
SW Louisiana

If "that which does not kill me, makes me stronger", then how come I always feel like $hit after every near-death experience?
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Michele
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Re: Kilowatt3!
Reply #131 - Oct 22nd, 2008 at 9:41am
 
Hey all,

Just wanted to post that I am still ch free since 10/15/08.  I did have 2 headaches, one on Saturday night and one on Sunday.  They felt like a massive hangover headache.  Has anyone experienced that?  Still better than the ch's.

Also, I am glad to read of more people it has helped.  I do believe it cut my down, then stopped them. 

~ Michele
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Kilowatt3
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Re: Kilowatt3!
Reply #132 - Oct 22nd, 2008 at 11:04am
 
Michele wrote on Oct 22nd, 2008 at 9:41am:
Just wanted to post that I am still ch free since 10/15/08.  I did have 2 headaches, one on Saturday night and one on Sunday.  They felt like a massive hangover headache.  Has anyone experienced that?  Still better than the ch's.
Also, I am glad to read of more people it has helped.  I do believe it cut my down, then stopped them.  

Hi Michele!

Great news on your PF status!  Thanks for the success story.

As for the hangover-like headache, the only time I've noticed that is following the "beer test" at the end of a cycle.  There have been a few occaisions when, once I've determined that my first beer did not trigger a HA, I have commenced a very exhaustive "beer test" just to be sure my cycle was really over - It's important to be very thorough about these things!   Wink

I may have noticed a strange, hangover-like headache the next morning, but I have absolutely no idea what could have caused it! Roll Eyes

Congrats on your success, and please stay in touch!

Regards,
Jim
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Regards,
Jim
SW Louisiana

If "that which does not kill me, makes me stronger", then how come I always feel like $hit after every near-death experience?
WWW kilowatt3  
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Agostino Leyre
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Re: Kilowatt3!
Reply #133 - Oct 22nd, 2008 at 11:54am
 
Kilowatt3 wrote on Oct 22nd, 2008 at 11:04am:
[quote author=41656F646960695E6969680C0 link=1218597861/131#131 date=1224682912]

I may have noticed a strange, hangover-like headache the next morning, but I have absolutely no idea what could have caused it! Roll Eyes

More than likely it is the melatonin.  But like I said earlier, it can be knocked out with a strong cup of coffee.
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Triptans cause increased number of hits and increased intensity.  Learn it, believe it, live it.  I use triptans as the absolute LAST RESORT when treating my CH.&&
 
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Re: Kilowatt3!
Reply #134 - Oct 22nd, 2008 at 3:31pm
 
I am not sure if it was the melatonin but it couldn't be cured with caffeine of any sort.  I tried many things but finally took a shot of imitrex and it killed it.
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Kilowatt3
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Re: Kilowatt3!
Reply #135 - Oct 26th, 2008 at 1:09pm
 
Agostino,

Thanks for joining the discussion!  It looks like you've attributed a comment of mine to Michele:
Agostino Leyre wrote on Oct 22nd, 2008 at 11:54am:
Michele wrote on Oct 22nd, 2008 at 9:41am:
I may have noticed a strange, hangover-like headache the next morning, but I have absolutely no idea what could have caused it! Roll Eyes

More than likely it is the melatonin.  But like I said earlier, it can be knocked out with a strong cup of coffee.

If you read my comment in it's entirety:
Quote:
As for the hangover-like headache, the only time I've noticed that is following the "beer test" at the end of a cycle.  There have been a few occasions when, once I've determined that my first beer did not trigger a HA, I have commenced a very exhaustive "beer test" just to be sure my cycle was really over - It's important to be very thorough about these things!  Wink

I may have noticed a strange, hangover-like headache the next morning, but I have absolutely no idea what could have caused it!  Roll Eyes

...it should become fairly obvious that it probably wasn't the melatonin!  Grin

Regards,
Jim
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Regards,
Jim
SW Louisiana

If "that which does not kill me, makes me stronger", then how come I always feel like $hit after every near-death experience?
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JoeKen
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Re: Kilowatt3!
Reply #136 - Oct 26th, 2008 at 4:22pm
 
Hi, Smiley
I am a 'limey' with (diagnosed but not 'classic') CH and have not visited the site for some time. It would appear that the 'herb cocktail' that Kilowatt3 has found has something to offer. Has anyone thought of going into business and offering the cocktail in it's mixed form to fellow CH sufferers?  -  if nothing else it would certainly increase the sample size when evidence is being collected about it's efficacy.
JoeKen.
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Not sure I should be here, but it's as near as I'm going to get to finding out what is the correct name for my condition. Usually KIP 5 or below but last up to 16 hours and always one-sided, behind the eye, usually right but ocassionally left.
 
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Kilowatt3
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Re: Kilowatt3!
Reply #137 - Oct 26th, 2008 at 5:03pm
 
JoeKen wrote on Oct 26th, 2008 at 4:22pm:
It would appear that the 'herb cocktail' that Kilowatt3 has found has something to offer. Has anyone thought of going into business and offering the cocktail in it's mixed form to fellow CH sufferers?  -  if nothing else it would certainly increase the sample size when evidence is being collected about it's efficacy.

Sure, I thought about it - for about a millisecond - then decided I'm just not going there.  I have no financial interest in pushing the regimen - I would just like to see people avail themselves of the opportunity to try it, since it has worked wonders for me and many others.

Besides, it seems most clusterheads are just too damn stubborn to try it!  Undecided
Their loss is no one's gain, except GlaxoSmithKline (Imitrex), Ortho-McNeil-Janssen (Topamax) and whoever's making their Verapamil!

Plus, some seem to like walking around looking like Mike Nelson!  <--- Obscure reference to old TV show.  Grin

OK - Got my asbestos undies on - ready for flames...

Regards,
Jim
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Regards,
Jim
SW Louisiana

If "that which does not kill me, makes me stronger", then how come I always feel like $hit after every near-death experience?
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Re: Kilowatt3!
Reply #138 - Oct 27th, 2008 at 12:34pm
 
Quote:
OK - Got my asbestos undies on - ready for flames...



Grin Grin Grin
Give em hell Jim
all the best
thebb
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Michele
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Re: Kilowatt3!
Reply #139 - Oct 30th, 2008 at 1:54pm
 
Just another update:
I am still CH free.  I am also off the herb mix and no headaches.  It feels so good to feel normal.  Just have a lot of bills from the damn imitrex.  Next time I won't be feeding them my money I will be ready with my herb mix.  Thank you so much Kilowatt3.  I may still be suffering if it weren't for you posting that and for Jean who emailed me and told me to look at the post.  Cheers!  May you all stay CH free. 

~ Michele
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Kilowatt3
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Re: Kilowatt3!
Reply #140 - Oct 30th, 2008 at 2:45pm
 
Michele wrote on Oct 30th, 2008 at 1:54pm:
I am still CH free.  I am also off the herb mix and no headaches.  It feels so good to feel normal.  Just have a lot of bills from the damn imitrex.  Next time I won't be feeding them my money I will be ready with my herb mix.  Thank you so much Kilowatt3.  I may still be suffering if it weren't for you posting that and for Jean who emailed me and told me to look at the post.  Cheers!  May you all stay CH free.
~ Michele    

Woo Hoo! We Have Another Winner!!!

Great to hear that your cycle's broken!  Don't forget to thank Cyndi, too - She's done a lot to keep the discussion alive  Wink

Very best regards,
Jim
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Regards,
Jim
SW Louisiana

If "that which does not kill me, makes me stronger", then how come I always feel like $hit after every near-death experience?
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Re: Kilowatt3!
Reply #141 - Oct 30th, 2008 at 5:24pm
 
You're right Kilowatt.  Thank you too Cindy.  I so appreciate you all.  This sight really is full of caring people.

~ Michele
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Pixie-elf
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Re: Kilowatt3!
Reply #142 - Dec 11th, 2008 at 5:11am
 
I finally got me some skullcap and tried it.

So far I haven't noticed a difference, it's only been one day. Anyone know how long at max I should have to wait to see results?

I had to show my family in my Grandpa's herb books that no, it was not dangerous, and was used for neuralgia / nerve pain, works in the spinal cord, and in the brain as a sedative. It's also supposed to release endorpines / act as an opiate to a certain extent.

I have some liquid of it, I took 30-40 drops as the bottle reccomended, but I'm not quite sure if that was enough. Unlike the melatonin, I did go to sleep pretty easily after taking this... I'll have to get the Kudzu, and other things seperately. No St.John's wort for me. Magnesium tends to screw me up, so I'll have to see about that one... But I have to try things one at a time, wait up to a week to make sure I don't have an allergic reaction to it. So it's okay that I don't have it all right now. XD

Mystina
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As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
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Kilowatt3
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Re: Kilowatt3!
Reply #143 - Dec 12th, 2008 at 9:05am
 
Pixie-elf wrote on Dec 11th, 2008 at 5:11am:
I finally got me some skullcap and tried it.

So far I haven't noticed a difference, it's only been one day. Anyone know how long at max I should have to wait to see results?...
But I have to try things one at a time, wait up to a week to make sure I don't have an allergic reaction to it. So it's okay that I don't have it all right now.

Hi Mystina,

I have no idea what to expect taking the skullcap by itself, since I tend to believe that there's a lot of synergy between the different components of the mix.  A couple of folks did seem to think that the skullcap was an important ingredient, so maybe it'll have some benefit as a "stand-alone".  Even if it doesn't, once you've established that you're not having any negative reaction to it, maybe you'll want to keep on it as you try out the other ingredients.

As for magnesium screwing you up - It's an essential nutrient, so you've GOT to get a certain amount of it.  There's definitely some interaction, though, between uptake of magnesium and calcium, so you might want to take a combined supplement.

Good luck!  Keep posting so we'll know how things work out.

Regards,
Jim
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Regards,
Jim
SW Louisiana

If "that which does not kill me, makes me stronger", then how come I always feel like $hit after every near-death experience?
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Pixie-elf
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Re: Kilowatt3!
Reply #144 - Dec 21st, 2008 at 3:50am
 
Kilowatt3 wrote on Dec 12th, 2008 at 9:05am:
Pixie-elf wrote on Dec 11th, 2008 at 5:11am:
I finally got me some skullcap and tried it.

So far I haven't noticed a difference, it's only been one day. Anyone know how long at max I should have to wait to see results?...
But I have to try things one at a time, wait up to a week to make sure I don't have an allergic reaction to it. So it's okay that I don't have it all right now.

Hi Mystina,

I have no idea what to expect taking the skullcap by itself, since I tend to believe that there's a lot of synergy between the different components of the mix.  A couple of folks did seem to think that the skullcap was an important ingredient, so maybe it'll have some benefit as a "stand-alone".  Even if it doesn't, once you've established that you're not having any negative reaction to it, maybe you'll want to keep on it as you try out the other ingredients.

As for magnesium screwing you up - It's an essential nutrient, so you've GOT to get a certain amount of it.  There's definitely some interaction, though, between uptake of magnesium and calcium, so you might want to take a combined supplement.

Good luck!  Keep posting so we'll know how things work out.

Regards,
Jim


Well, I messed up a wee bit..

A night or two ago, I missed a dose of skullcap. I was very tired, and  didn't feel up to getting out of bed to get it...so I figured it'd be okay.

WRONG. Oh so very wrong.

I woke up with a godawful shadow, and had a cluster a little while later. I was confused because that hadn't happened lately... I've been right on time usually, and normally not that early.

Then I realized what it was. I forgot my skullcap.

Back to normal now. So I'm taking melatonin, skullcap, and going to get some magnesium when I can to add to it. Skullcap definately made a difference. (We've been short on money, so, I had to wait a little.)

Well, the reason I say what I did about the magnesium, is I know at one point I had problems with it. I've gotten to where I'm not suprised at anything my screwed up body does!

Mystina
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As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

It's saved my life.
 
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Kilowatt3
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Re: Kilowatt3!
Reply #145 - Dec 21st, 2008 at 12:02pm
 
Hi Mystina!

Glad to hear from you.  Fill us in a little - Have you been PF for a while with the skullcap & melatonin?  Sounds like you were having some success for a while, at least (?).

Looks like a good datum on the skullcap.  I know Lorne was convinced it made a big difference for him, and maybe it does for you, too.

Please keep posting with your progress.  It'll be interesting to see how it goes when you add kudzu to your mix.  I'll be crossing fingers & praying for your success!  Wink

Regards,
Jim
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Regards,
Jim
SW Louisiana

If "that which does not kill me, makes me stronger", then how come I always feel like $hit after every near-death experience?
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Re: Kilowatt3!
Reply #146 - Dec 21st, 2008 at 2:21pm
 
Kilowatt3 wrote on Dec 21st, 2008 at 12:02pm:
Hi Mystina!

Glad to hear from you.  Fill us in a little - Have you been PF for a while with the skullcap & melatonin?  Sounds like you were having some success for a while, at least (?).

Looks like a good datum on the skullcap.  I know Lorne was convinced it made a big difference for him, and maybe it does for you, too.

Please keep posting with your progress.  It'll be interesting to see how it goes when you add kudzu to your mix.  I'll be crossing fingers & praying for your success!  Wink

Regards,
Jim


Well, I think it helped knock the number of hits down. We recently upped one medicine, which sent me from 4 hits a day, to 3. After the skullcap, it went down to 2 per day, unless I'd come in contact with a trigger. I also wasn't waking up with a shadow after I started it. (I'd gotten used to just waking up with a shadow, or having one most of the time at least.)

So, I'm still having them, and wasn't sure which it was, if it was the skullcap and melatonin or the increase in medication.

Either way, going without it for just one night made me go back to 3 hits per day. I woke up with a shadow, and a cluster a short while later. I realized I hadn't taken the skullcap. I'd taken the melatonin, because it's just a pill, so it's easy to take it with all of my other meds.

The skullcap is a tincture, so... I have to mix it in water. Well, I'd already laid down, and was almost asleep so I said screw it. That was my mistake.

I tried taking it right then, since I remembered. I don't think it really prevented any of the ones during the day. Though I might try some during my next hit to see if it makes it go any easier.

It's so nice to wake up WITHOUT a shadow. I'm not taking it for granted one bit! It'll have to be after the 24th that I get the magnesium, and the Kudzu will have to be when my Grandpa's back/hip is better and I'm up to shopping. Smiley

Mystina
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As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

It's saved my life.
 
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UnderTheRadar
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Re: Kilowatt3!
Reply #147 - Dec 21st, 2008 at 5:23pm
 
Anybody using the "Kilowatt Kure" also suffer from migraines after/during a cycle?

I think the CH is over, but it's left me with super-ugly-nauseous-migraines-from-hell; I'm wondering if taking the mix might help with that, too.  (I hadn't tried it for the CH.) Any thoughts?

P.S. I'll put on the asbestos underwear too, for saying "cure", heehee.. but I thought it was too cute not to say!!  Grin
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Re: Kilowatt3!
Reply #148 - Dec 21st, 2008 at 7:30pm
 
UnderTheRadar wrote on Dec 21st, 2008 at 5:23pm:
Anybody using the "Kilowatt Kure" also suffer from migraines after/during a cycle?...

P.S. I'll put on the asbestos underwear too, for saying "cure", heehee.. but I thought it was too cute not to say!!  Grin

Hi Paige,

Nope, never heard anything from anyone trying it for migraines.  If you do, and have any luck, pass it along!

Hopefully, your spelling with the 'K' will at least partially protect you from the wrath of the Semantics Police!  Wink

Best regards & good luck!
Jim
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Regards,
Jim
SW Louisiana

If "that which does not kill me, makes me stronger", then how come I always feel like $hit after every near-death experience?
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Re: Kilowatt3!
Reply #149 - Dec 22nd, 2008 at 1:23am
 
First, I tried the skullcap during an attack. I didn't notice a difference either way, so I'm thinking that it's more for prophylaxis than anything.

I've got complicated migraines (the kind where triptans will kill you.) and I'm only on the Skullcap and Melatonin.

I've taken my fiorinal, but, right now, am still suffering with part of it.

The skullcap may work due to the fact it effects the brain, and spine specifically. Every herb book I have has mentioned 'nervous headaches' and 'neuraligia pain' for the skullcap. I don't know about for Migraines on it.

I haven't noticed a difference with the mix, but the skullcap and melatonin might be good to help you get to sleep during one.  What my neuro's reccomended was adding b12 to what I was taking but hell, the energy drinks I drink have so many B vitamins in them, I think I'd be overdosing just a tad. XD

Also, the energy drinks do help with migraines too. I used them for that for YEARS before I had clusters. My bladder doesn't always thank me, but if you can get one in you during the aura phase. (if you even have any. I get them sometimes, sometimes I don't.) The only other natural 'remedy' I know of is Feverfew, but you have to be careful. It can cause gastric problems if used constantly for a while.

I'll look around and see if I can find anything else. God knows, my family has tried a LOT of things to try to help me... Ginger tea is supposed to be good for nausea, but I have a condition that contradicts ginger specifically. XD So you may consider that for the nausea.

Mystina
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« Last Edit: Dec 22nd, 2008 at 1:27am by Pixie-elf »  

As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

It's saved my life.
 
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