Oct 7th, 2024 at 2:27pm
  
  Welcome, Guest. Please Login or Register
 Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
 
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





  New CH.com Forum › Cluster Headache Help and Support › Medications,  Treatments,  Therapies › Time for the 75-80% to stand up and be counted
(Moderators: Mrs Deej, DJ)
‹ Previous Topic | Next Topic ›
Pages: 1 2 3 4 5 6 ... 30
Send Topic Print
Time for the 75-80% to stand up and be counted (Read 166498 times)
AussieBrian
CH.com Hall of Famer
*****
Offline


CH - It's all in your
head!


Posts: 3851
Cairns, Qld, Australia
Gender: male
Re: Time for the 75-80% to stand up and be counted
Reply #75 - Jun 10th, 2008 at 9:28am  
There's plenty of anecdotal evidence in this thread so far to suggest that this form of treatment works for many people and the most exciting part about it all is that, by some accounts at least, it may serve to actually break a cycle.

No mainstream medication or treatment holds out any such claim so this matter must be taken seriously and much, much further.

On the other side of the same coin, as Annette rightly points out, we are currently playing with fire because no-one has any idea about what down-sides there may be.

My greatest interest is to know whether CB works to stop the pain or, hope of hope and bliss beyond paradise, works to stop the cause of the pain. 

I remain annoyed at the tone of many of the posts here but urge everyone to remember that we must consider all options - just as much as we should respect other people's opinions, which may differ from our own.
Back to top
  
My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com
 
IP Logged
 
nani
CH.com Alumnus
***
Offline


Clusterbusters


Posts: 8356
Los Lunas NM USA
Gender: female
Re: Time for the 75-80% to stand up and be counted
Reply #76 - Jun 10th, 2008 at 9:37am  
AussieBrian wrote on Jun 10th, 2008 at 9:28am:
no-one has any idea about what down-sides there may be.



Very true, Brian. Those of us that choose to report our progress, both to the doctors doing the research, and here in public are the beta testers. We report the good and the bad. Just like I (and many others) did with kudzu, Barry has done with taurine supplements, and even the new treatment of rhodiola.

All we can do is try it and see what happens.

The purpose of this thread was to get those of us for whom it worked to say so.
Back to top
  
Here I sit between my brother the mountain and my sister the sea. We three are one in loneliness, and the love that binds us together is deep and strong and strange.~Kahlil Gibran
WWW  
IP Logged
 
seasonalboomer
CH.com Hall of Famer
*****
Offline


CH messes with my isness


Posts: 2517
Charlotte, NC
Gender: male
Re: Time for the 75-80% to stand up and be counted
Reply #77 - Jun 10th, 2008 at 10:00am  
AussieBrian wrote on Jun 10th, 2008 at 9:28am:
On the other side of the same coin, as Annette rightly points out, we are currently playing with fire because no-one has any idea about what down-sides there may be.


Yes, Brian you're right. On the flip side, with the conventional meds it seems that this information flows through here quite freely. And most of this feedback is anecdotal as well. While the drug companies do publish some of this information, it is made that much clearer by the user stories here on the site.

And, it has also for some of the alternatives too. I remember the Kudzu threads had reported several users had some issues, while most others did not. The information was appreciated and not villified. I've also seen honest feedback from some testers where it has not been as effective as it has for those who have had miraculous results. Just like you see on threads for O2 and conventional meds.

So that's all to say, what a great place this is when it is working naturally. Attempts to push or control agenda's result in the annoyances you refer to.

Scott
Back to top
  
Scott
 
IP Logged
 
alienspacebabe
CH.com Alumnus
***
Offline


Why didn't Noah swat those
two mosquitoes?


Posts: 1969
Cudahy, WI
Gender: female
Re: Time for the 75-80% to stand up and be counted
Reply #78 - Jun 10th, 2008 at 10:18am  
To Michael / Wildhaus:

You have my respect - for who you are, and for not doing what you feel is ethically wrong.



Lizzie
Back to top
  
I don't wanna talk to you no more, you empty headed animal food trough wiper! I fart in your general direction! You mother was a hamster and your father smelt of elderberries!
WWW alienspacebabe alienspacebabe alienspacebabe 574982956 alienspacelizzie MzClusterhead  
IP Logged
 
George
CH.com Moderator
CH.com Alumnus
*****
Offline


Black-Billed Magpie


Posts: 8126
Boise, Idaho USA
Gender: male
Re: Time for the 75-80% to stand up and be counted
Reply #79 - Jun 10th, 2008 at 10:35am  
seasonalboomer wrote on Jun 10th, 2008 at 10:00am:
AussieBrian wrote on Jun 10th, 2008 at 9:28am:
On the other side of the same coin, as Annette rightly points out, we are currently playing with fire because no-one has any idea about what down-sides there may be.


Yes, Brian you're right. On the flip side, with the conventional meds it seems that this information flows through here quite freely. And most of this feedback is anecdotal as well. While the drug companies do publish some of this information, it is made that much clearer by the user stories here on the site.

And, it has also for some of the alternatives too. I remember the Kudzu threads had reported several users had some issues, while most others did not. The information was appreciated and not villified. I've also seen honest feedback from some testers where it has not been as effective as it has for those who have had miraculous results. Just like you see on threads for O2 and conventional meds.

So that's all to say, what a great place this is when it is working naturally. Attempts to push or control agenda's result in the annoyances you refer to.

Scott




I'm sure that few people would disagree that with there are additional factors at play when one is considering the use of hallucinogens, vis a vis things like oxygen and kudzu.  Very good reasons, IMO, to move the conversation beyond anecdote.  If hallucinogenic substances really can do all that has been indicated, then it becomes urgent. 

If clinical trials can demonstrate that these treatments actually are safe and effective, then perhaps some version will eventually be available for physicians to freely prescribe to their patients.  Unless I'm mistaken, that is what most folks would like to see.

As I said before, I note that plans are underway to take the next step--clinical testing.  Excellent.  I await the results with interest.

We can stack anecdotal evidence miles high, but until there is some sort of vindication beyond the testimony of people who've tried hallucinogens and reported success (or the lack of it), nothing changes.  The problems remain, and the questions remain.  We'll still be here, hashing the same issues over and over again. 

It's time--and past time--to move forward.  I'm hopeful that this will occur.

Best wishes,

George
Back to top
  
"Whoever loveth me, loveth my hound."  (Thomas More, author of "Utopia", and Chancellor of England.  1477-1535)
WWW George jacox6820 7165032563  
IP Logged
 
icedragon
Ex Member
Re: Time for the 75-80% to stand up and be counted
Reply #80 - Jun 10th, 2008 at 12:36pm  
Annette,
Of course, there is no limit to the amount one can post, but now that you metion it...

Discussions are encouraged.  Rambling on and on, off of topic, I believe is discouraged.

"It can be called " getting worked up " or it can be called " passionate ". People do talk at length about things they are passionate about. My passion is to find out as much information as I can on BOTH the efficacy AND the potential risks and problems."

It could also be called obsessive, compulsive or even fanatical, but your goals appear to be much more than what you are stating here.  Your accusations give you the appearance of having an alterior motive, and honestly, how can you expect anyone to want to help you find the answers you are looking for if you arre going to compare them with snake oil salesman.  

In regards to Dr. Sewell's letter, sure post the link...

"The people who have told me their stories dont wish to share their experience publically and I need to respect their wish. I recommend you spend time getting to know the people on this board , you will slowly get to know their stories."

And this, How can your argument have a leg to stand on if all you are willing to do is dangle a carrot on a string.  Nobody is asking for an identity, or even an exact account of the bad experience, just something credible.  I think your actions here really put your credibility into question.  If you are committed to keeping it secret then why mention them at all?
Back to top
  
 
IP Logged
 
Pinkfloyd
CH.com Hall of Famer
*****
Offline


comfortably numb


Posts: 1626
x0||USA||||IL,Illinois
Gender: male
Re: Time for the 75-80% to stand up and be counted
Reply #81 - Jun 10th, 2008 at 5:38pm  
AussieBrian wrote on Jun 10th, 2008 at 9:28am:
On the other side of the same coin, as Annette rightly points out, we are currently playing with fire because no-one has any idea about what down-sides there may be.



No, this is not true.
As I said earlier in this thread, there are REAMS of testing, clinical trials and research into the safety and safety concerns (downsides?) of LSD and psilocybin.
Reams I tell you.

Why everyone doesn't believe some guy on the internet that goes by the name of Pink Floyd, ehrn he speaks of psychedelics, I don't understand.  Smiley

I would have said, some "faceless" guy on the internet, but, some people have seen my face. Maybe thats why its difficult to believe someone that looks like ..........a movie star.

There are issues with everything we put into our bodies. From oxygen to sansert to depakote to psilocybin. I'm happy to discuss all of them, as long as all of them, as a subject, are treated with the same respect. I'll be happy to help people weigh the risks and benefits the best i can.

We can/will/should discuss the issues of safety, but, "safe" comes in a graduated scale. What is safe? Who says something is safe that can be trusted? Pinkfloyd? The FDA? Good question. If the issues aren't discussed properly, and respectfully, no one will benefit from the discussions.

The FDA said cox-2 inhibitors were safe. Millions of people took them. Now millions of people are suing over Vioxx.
All drugs that are approved by the FDA and other regulatory boards, carry with them a "level" of safety. Some are completely safe for most people. Others are "safe" for only a selected group of people.
Thalidomide, which was approved by the FDA and said to be "safe" caused major problems for many people, causing severe birth defects, among other nasty things. I know its an old story, but still a good example. thalidomide which CAN cause major defects, but is again available and used with a prescription. So......is it safe?


Carry on,
Bobw
Back to top
  
"those who torment us for our own good will torment us without end, for they do so with the approval of their own conscience."
- C.S. Lewis
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
WWW psiloscribe pinkshroomrat  
IP Logged
 
purpleydog
CH.com Alumnus
***
Offline




Posts: 2732
Re: Time for the 75-80% to stand up and be counted
Reply #82 - Jun 10th, 2008 at 6:45pm  
Annette, what you read on the public part of the CB website is true. Dr. Halpern and others have been working towards a clinical trial for a LONG time now, and it looks like it may come through soon.

Although this is a subject where many have stood up to be counted, there are many more who haven't. This subject has come up many times on this board, and some  people it didn't help have posted that it didn't, for their various reasons.

I would think you would be glad that some of us have found a treatment that works. Now, before you say anything else about clinical trials, etc., you should be aware of some of the stuff some of us have tried to get this horrific, terrible, LIFE CHANGING pain to stop. And all without clinical trials. Just on the word of someone else who posted here, or on the guest book. Ever read the one about putting cat shit on your head? And what about the people who come on here stating what they've tried has cured them. How many people here do you think have tried those treatments. Probably many more than would admit.

Although I realize you want to be as informed as possible, I can't help but think your attitude sometimes is because you don't actually suffer from CH, and don't really understand the pain, because if you did, you would understand where we are coming from, treatment-wise.

Of course, everyone who is a member of the CB site has done their homework, and research into the various psychedelic treatments BEFORE they choose to partake of these treatments. They weigh the pros and cons, and make a decision.

Yes, we NEED clinical trials, and I do hope they start very soon, because this is a HUGE possibility for beneficial treatment for clusterheads. Instead of taking however many meds, spending money on meds that don't work, and not to mention the physical damage some of them do to our bodies. But, still we take them, and HOPE something better comes along.

You and Daniel have made your decision. Please respect the people here who have made their decisions.

I'm sure that when the trial has been finished, the results will be published. Hopefully, that will give you some more info about how it worked. But please, don't play policeman, or be a judge, trial and jury to the people who this has helped. Respect. Mutual respect.
Back to top
  
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
 
IP Logged
 
Bob P
CH.com Hall of Famer
*****
Offline


Shut up Bob!


Posts: 4573
Clio,California
Gender: male
Re: Time for the 75-80% to stand up and be counted
Reply #83 - Jun 10th, 2008 at 7:12pm  
Quote:
Maybe thats why its difficult to believe someone that looks like ..........a movie star.

Marty Feldman?
Back to top
  
Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.  "SHUT UP HUB!"
WWW  
IP Logged
 
dougW
CH.com Veteran
***
Offline


pain is inevitable.  
suffering is optional


Posts: 232
Canada  'eh.
Gender: male
Re: Time for the 75-80% to stand up and be counted
Reply #84 - Jun 10th, 2008 at 7:20pm  
LMAO
Marty Feldman
Now that was funny.

Bob, meet Bob.
Bob, this is Bob.
Marty, this is....   ???

Wink

Doug
Back to top
  
Out beyond wrong doing and right doing there is a field of luminous consciousness.  I'll meet you there.   (Rumi)
WWW  
IP Logged
 
purpleydog
CH.com Alumnus
***
Offline




Posts: 2732
Re: Time for the 75-80% to stand up and be counted
Reply #85 - Jun 10th, 2008 at 7:20pm  
Bob P wrote on Jun 10th, 2008 at 7:12pm:
Quote:
Maybe thats why its difficult to believe someone that looks like ..........a movie star.

Marty Feldman?


I was thinking more along the likes of Gene Wilder, but taller. Smiley
Back to top
  
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
 
IP Logged
 
Redd
CH.com Sponsor
***
Offline




Posts: 8457
Stevens Point USA Wisconsin
Gender: female
Re: Time for the 75-80% to stand up and be counted
Reply #86 - Jun 10th, 2008 at 8:02pm  
One thing folks on all sides of this issue need to bare in mind, is that for some people (probably many many of them) who have chosen this method of CH management, it wasn't an easy decision.  

For some, there was truely NO other viable option.  No insurance, traditional meds were breaking the bank and not working anyway.  For some, first line medications were contraindicated due to life threatening side effects, or life altering ones.  Access to the amounts of effective meds needed to treat their particular battle with the beast were highly limited.  Some had to depend on the kindness of others to suppliment their supplys of conventional meds.  Some had to rely on alternate formulas of first liners because the government programs that supplied the meds only covered certain formularies.  Good Luck getting Government funded O2 without the right "criteria" being met because you had no private insurance.

For many, the CB method was the last and only hope to possibly get their life and livelyhood back.  It was the difference between finding themselves homeless from loosing their jobs and having no income to getting promotions and furthering their careers.  

Some people risked the legal ramifications.  Why?  Because many of the same things they risked loosing were hanging in the balance anyway.  Careers, freedom, family, homes.  Either from legal action from trying the method, or from being disfunctional without trying it.

Many are single people wthout any support system at all without this family.  To lose a job is to lose everything.  There is no second income to fall back on.  They are on their own in all sence of the word.

Only when someone who is hellbent to stand in "rightious judgement" of the method has walked in the life path of those who have chosen this route to PF time, can they ever turely understand.  Only when they have had to live out of the backseat of their car in the cold of winter because they lost everything due to CH, can they "really" understand.  Till they have been faced with loosing the very essance of all they hold dear and worth living for, will they ever understand.

And untill they experience what a virtually PF life can be and is like after oh so many years of hell and misunderstanding and misdiagnosis and being brow-beaten into thinking you are a whimp, a drug seaker, a drama/attention w-hore, they will never fully and truely understand.
Back to top
« Last Edit: Jun 10th, 2008 at 8:05pm by Redd »  
"The goal of life living in agreement with Nature."  ~Zeno
peggflick ma_2_2  
IP Logged
 
Jackie
CH.com Moderator
CH.com Alumnus
*****
Offline


Go For It!!!


Posts: 5903
Goshen, IN
Gender: female
Re: Time for the 75-80% to stand up and be counted
Reply #87 - Jun 10th, 2008 at 8:55pm  
Interesting thread.

Perhaps I should stay off this thread because Blake has never used psychedelics and because Bob was merely asking for folk who have to be counted ...good and bad welcome.

Blake had his first cluster in 1989.  He has been in remisiion for 2 years now....but for the 15 years before that he was chronic with daily hits.....sometimes every hour on the hour.  We've done almost every thing imaginable trying for ANY relief.  He's taken dozens of different drugs....some damm near killed him.  A couple months before he went into remission we decided to detox off ALL medications with the exception of 02.  Then he was going to dose.  They stopped before we got to the dosing (Thank you Lord)

The DAY Blake goes out of remission I'll be on the phone begging a 'buster' to help me dose him!!!!!  

Annette....Daniel has had one or two cycles you say.  I'm wondering how you would feel watching him suffer day after day...year after year.  Maybe you would still be nagging about proof and data...who knows.  Maybe if you'd witnessed what I have you wouldn't hesitate....but again who knows.  You say you and Daniel made a conscience decision not to try the psychedelics.  I'm betting the decision might be different had you supported the idea.  ...again who knows.   I know this......I'd dose my husband with the shit some shrooms grow in if I thought it had the potential to ease his suffering.

For those who can't do so because of legal and moral issues I respect your choice.  The choice is as individual and the disease.

Bob....I thank you, from the bottom of my heart, for all the years you've dedicated yourself to the research and for the willingness to share that research with your fellow cluster sufferers.  I'm sure the difficulties have been many.

Most sincerely,
Jackie


modified 'cause I can't type.
Back to top
« Last Edit: Jun 11th, 2008 at 5:58am by Jackie »  
 
IP Logged
 
purpleydog
CH.com Alumnus
***
Offline




Posts: 2732
Re: Time for the 75-80% to stand up and be counted
Reply #88 - Jun 10th, 2008 at 9:07pm  
Jackie wrote on Jun 10th, 2008 at 8:55pm:
Bob....I thank you, from the bottom of my heart, for all the years you've dedicated yourself to the research and for the willingness to share that research with your fellow cluster sufferers.  I'm sure the difficulties have been many.

Most sincerely,
Jackie




Amen Jackie! And while the difficulties may have been many, so have the rewards, of seeing our brothers and sisters in this god forsaken pain, come out of it, and lead happy and healthy lives. Thank you Bob, for all that you do.
Back to top
  
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
 
IP Logged
 
KJ
CH.com Alumnus
***
Offline




Posts: 596
Indianapolis, IN
Gender: male
Re: Time for the 75-80% to stand up and be counted
Reply #89 - Jun 10th, 2008 at 10:11pm  
"Why everyone doesn't believe some guy on the internet that goes by the name of Pink Floyd, ehrn he speaks of psychedelics, I don't understand." Smiley

Keep doing what you do....please Wink
Back to top
  
Quit smoking March 6th, 2008
 
IP Logged
 
kevmd
CH.com Hall of Famer
*****
Offline


Who needs a hypothalamus
anyway?


Posts: 524
x0|philadelphia|USA||0|0|PA,Pennsylvania
Gender: male
Re: Time for the 75-80% to stand up and be counted
Reply #90 - Jun 11th, 2008 at 11:31am  
If CH affected say 20% of the population, you better believe all of us would be going to the local pharmacy to buy it because it would be approved.  Personally, I think most CH research should be focused on CB.  Yes, there are some meds that work and sometimes they work real well.  But I have found nothing else that gives me hope of a normal life. 

My question......what is Goadsby's view on CB.  I once read where he doesn't understand how it works and he questioned whether it was a placebo affect.
Back to top
  
PHILADELPHIA PHILLIES 2008 WORLD CHAMPS
 
IP Logged
 
Kevin_M
CH.com Sponsor
***
Offline


withered branches grow
green again.


Posts: 8754
Michigan, USA
Gender: male
Re: Time for the 75-80% to stand up and be counted
Reply #91 - Jun 11th, 2008 at 12:11pm  
Pinkfloyd wrote on Jun 8th, 2008 at 5:32pm:
I will try to find more data for you. We will be conducting phase two trials. Phase one trials test the safety of a treatment. The safety work has been done.



Safety is a first factor.  Dr. Hofmann's first contact may have been accidental, and remembering also the precautions of handling from the 70's.

I once read here a remark about this being compared to something like controlling atomic energy, which had a bad reputation for different reasons.  Going back to work on radioactivity in the early days, safety was nonexistent but very important today.

Nobel laureate Ernest Rutherford observed upon meeting Pierre Curie that his hands were in a very inflamed and painful state due to exposure to radium rays.  Madame Curie said that if radiation could attack healthy skin in that way, it might be useful for attacking the unhealthy cells of cancer.  She died in '34 from its use.

Rutherford employed two young assistants, Hans Geiger and Ernest Marsden to test a theory of the atom's structure from accumulated knowledge while at McGill University of Montreal, furthered at U of Manchester in England.  
 Re-creating that experiment today, which originally used radon 222 and released 30 billion alpha particles per second, there are a lot of things you could no longer due because of safety concerns -- they would never be let in the building.  Back when, Rutherford would pocket the stuff and toss it in a drawer at home.  McGill U. has his $100,000.00 desk used at home, so-called because of the small fortune it cost to decontaminate.

 In a re-creation of the experiment, a decaying product of plutonium would now be used, americium 241 (produced: 1944, Seaborn, James, Morgan, Ghioso, U of Chicago) with 370 million particles per second.  A much weaker source of radiation that is used in almost microscopic amounts in common commercial smoke detectors.  

If small portions of radioactivity can be tailored to be employed, I might see where LSD could put to useful purposes for us.  But it is good to see the first step completed has been safety.  

Much later in life, Ernest Marsden wrote that modern safety restraints would have made the early scattering experiments "unworkably complicated."  Yet evidently important concerns voiced to hurdle here, too.  

Back to top
« Last Edit: Jun 12th, 2008 at 10:59am by Kevin_M »  
 
IP Logged
 
zanychef
CH.com Junior
**
Offline


i'm busting with a masx
cant really go wrong
can i


Posts: 97
x1|worthing|England|europe|172|244|
Gender: male
Re: Time for the 75-80% to stand up and be counted
Reply #92 - Jun 11th, 2008 at 2:49pm  
I am a sufferer for the past 25 years the last 13 of them chronic after meeting for the first time a number of othere sufferers 3 years ago including some who 'bust' and others who didn't/don't I decided then to try it after a particularly treatment resistant high cycle
the effects were amazing to be frank!!!!
since then i have had both good times and bad using this form of treatment but the majority of my time is PF so i am a semi success i suppose according to statistics, I consider myself to be a succes because when i was treated with verap etc i would average 3-6 months unable to work and otherwise enjoy life ( if work is to be considered a pleasure lol) in the last 2 years i have taken 6 days off work !!!!! if ' busting'  hasnt made a difference i'm missing something
yes it is illegal,frowned upon etc i know that i will stick with it and can't thank Pinkfloyd ,Flash and all the others who have bought this treatment to my attention
ZANY
Back to top
  
plenty of time to sleep now me headaches aint too bad:)
Ian Howard  
IP Logged
 
lashultz
CH.com Veteran
***
Offline




Posts: 237
x0|Milton|USA||0|0|WI,Wisconsin
Gender: male
Re: Time for the 75-80% to stand up and be counted
Reply #93 - Jun 11th, 2008 at 8:03pm  
After reading this whole thread. I had to go back to the beginning before answsering. The bottom line, for me is, yes the alternate teartments help me very much. I have, what I consider, a lot of friends on both sides of this issue and some somewhere in between. I definately have several people to thank and Bob is very high on this list.

                                             Lee
Back to top
  
 
IP Logged
 
icculus
CH.com Newbie
*
Offline


I love YaBB 1G - SP1!


Posts: 22
Pittsburgh
Gender: male
Re: Time for the 75-80% to stand up and be counted
Reply #94 - Jun 11th, 2008 at 11:12pm  
has anyone ever been hit while dosing?
i think that could be catastrophic...

i know from my Grateful Dead days, my g/f freaking out because her balloon popped Cheesy

i also know that if i ever turn chronic, i'd be busting out the black light and funky velvet glow in the dark posters.
Back to top
  
 
IP Logged
 
Pinkfloyd
CH.com Hall of Famer
*****
Offline


comfortably numb


Posts: 1626
x0||USA||||IL,Illinois
Gender: male
Re: Time for the 75-80% to stand up and be counted
Reply #95 - Jun 12th, 2008 at 12:01am  
icculus wrote on Jun 11th, 2008 at 11:12pm:
has anyone ever been hit while dosing?
i think that could be catastrophic...


This is a common fear of those that had used psychedelics recreationlly in the past. (Most people that end up trying this treatment, are using psychedelics for the first time)
The big difference here, besides not being at a Dead concert, is that these are NOT recreational doses that people are using. Normal dose for clusters is about 1/4th that of a recreational dose.

icculus wrote on Jun 11th, 2008 at 11:12pm:
i know from my Grateful Dead days, my g/f freaking out because her balloon popped Cheesy



I hope you bought her a new balloon!!  Wink

Bobw
Back to top
  
"those who torment us for our own good will torment us without end, for they do so with the approval of their own conscience."
- C.S. Lewis
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
WWW psiloscribe pinkshroomrat  
IP Logged
 
AussieBrian
CH.com Hall of Famer
*****
Offline


CH - It's all in your
head!


Posts: 3851
Cairns, Qld, Australia
Gender: male
Re: Time for the 75-80% to stand up and be counted
Reply #96 - Jun 12th, 2008 at 2:38am  
Given my line of work and position in society, it's impossible I could even consider the CB method myself while there remains a hint of illegality about it (probably in strife for even reading this thread) but I've also waited a long time to see it discussed rationally and politely among grown-ups.

Long may the discussion continue and it's especially interesting to learn that the safety bit has already been carried out, but does anyone know how the stuff actually works?

What part of the body/nervous system/neural pathways it affects?  And why?

More information along these lines will be gladly accepted.
Back to top
  
My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com
 
IP Logged
 
LeeS
CH.com Alumnus
***
Offline


I love C12 H16 N2O!


Posts: 639
West London, UK, Europe
Gender: male
Re: Time for the 75-80% to stand up and be counted
Reply #97 - Jun 12th, 2008 at 4:44am  
Hi Brian

The medicinal efficacy of entheogens in cluster headache still remains a bit of a mystery.  However, although the following hypotheses are based largely on conjecture, this may offer some insight and help generate some discussion and debate:

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

-Lee
Back to top
  
 
IP Logged
 
cluster
CH.com Old Timer
****
Offline


WaterX3 - It helps!


Posts: 259
Cologne(Europe)
Gender: male
Re: Time for the 75-80% to stand up and be counted
Reply #98 - Jun 12th, 2008 at 5:03am  
kevmd wrote on Jun 11th, 2008 at 11:31am:
 

My question......what is Goadsby's view on CB.  I once read where he doesn't understand how it works and he questioned whether it was a placebo affect.




Quote:
Peter Goadsby, professor of neurology at the Institute of Neurology, University College London, and the world's leading expert on cluster headaches, is sceptical about the mushroom therapy.

He argues that the relief reported by some patients may be a placebo effect or owing to natural remission. But he does believe the cases warrant a proper clinical study, particularly as ergotomine - which contains lysergic acid, a precursor of LSD - has been used to treat migraines for years.

"It's possible that mushrooms have some useful effect but it's far from proven," Dr Goadsby says. "Cluster headaches are such a devastating problem that people will turn to anything that seems to work."

Source: Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
Back to top
  
Cluster Headache News: Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register - German CH Site
WWW  
IP Logged
 
Brew
Ex Member
Re: Time for the 75-80% to stand up and be counted
Reply #99 - Jun 12th, 2008 at 6:11am  
cluster wrote on Jun 12th, 2008 at 5:03am:
kevmd wrote on Jun 11th, 2008 at 11:31am:
 

My question......what is Goadsby's view on CB.  I once read where he doesn't understand how it works and he questioned whether it was a placebo affect.




Quote:
Peter Goadsby, professor of neurology at the Institute of Neurology, University College London, and the world's leading expert on cluster headaches, is sceptical about the mushroom therapy.

He argues that the relief reported by some patients may be a placebo effect or owing to natural remission. But he does believe the cases warrant a proper clinical study, particularly as ergotomine - which contains lysergic acid, a precursor of LSD - has been used to treat migraines for years.

"It's possible that mushrooms have some useful effect but it's far from proven," Dr Goadsby says. "Cluster headaches are such a devastating problem that people will turn to anything that seems to work."

Source: Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register




Exactly how a scientist should answer. The mind is open to all possibilities.
Back to top
  
 
IP Logged
 
Pages: 1 2 3 4 5 6 ... 30
Send Topic Print
‹ Previous Topic | Next Topic ›
  « Home ‹ Board Top of this page



New CH.com Forum » Powered by YaBB 2.4!
YaBB © 2000-2009. All Rights Reserved.

Valid RSS Valid XHTML Valid CSS Powered by Perl Source Forge




©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!