You're right, Black. No doctors and, as far as I know, no one else for that matter, recommends Methadone for Cluster headaches. From our family doctor to a Neurologist and then to the Pain Specialist who is currently treating him, over the course of 14 years, from the time he was 12-years-old till now, he has tried everything recommended by those 3 caring people. All the commonly prescribed medications (outside the really over-the-top ones) listed on the CH websites have been tried and discarded. It's possible that if he had had a Cluster Headache specialist treating him that he would have come up with a cocktail that would have worked for him; I don't know. The only thing tried that in the end provided any relief at all was narcotics. And all they did was dull the ache. He still spent all his time in the fetal position in bed, crying, sometimes screaming. He ended up taking dangerous levels of both Fentanyl and Oxycontin. His doctor finally prescribed Methadone, which is equally effective and for him at least hasn't resulted in his needing more and more of the drug. He stabilized(?) at 120mg/day and has not required an increase for the last couple of years. But that's all in the past (fingers crossed). He's still taking 50mg/day. He's still an addict. Our hope is that without the headaches he'll be able to break the addiction without too much trouble.

Bonkers,

Isn't it ridiculous how we have to be our own guinea pigs!! I feel so badly for you and your family that you have to be the one's figuring this all out. Good luck with the new attempt I will be following your posts as always.

We're pioneers! How cool is that? Be glad for us that we GET to do this.

Hi Matty,

Is there no way - for sure - for you to get your hands on any of the stronger psychedelics? Is there any way for anyone here or anywhere outside Poland to help you?

Ron

bonkers wrote on Jun 22^nd, 2010 at 9:32pm:

   This crap is best left to pm.

           Potter

Ron,

As I understand it, this is a proper place for discussing efficacy and proper usages, but when it gets into finding suppliers, getting the material, etc. it is better to go private and keep it out of the lime light. 

Just my  and understanding.  We don't want to give the idea we are interested in dealing, etc.

Jerry

Bump...

Coach Bill

Been following yor story since I've been here. Good to hear that your son is finally getting well enough to get a job. At a brewery no less, well at least we know the beer will be safe.
About the methadone addiction, are you aware of Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or ? I heard of this years ago being touted as a cure for just about any kind of addiction, nicotine, alcohol, opiates, etc. It seems to be getting back in the news again. As I recall from years ago, people with addictions would use the drug recreationally, and when they came down from the trip, would no longer have any craving for the drug they were addicted to. Sounded too good to be true at the time, but seems to be something to it after all.
I would wish Michael good luck on the job, but heck, luck is for amateurs 

bonkers wrote on Aug 1^st, 2010 at 12:17pm:


Damn right!

Wildhaus,

       Like you, I won't be using the "ClusterBuster" methods due to the fact that they are illegal. Like you, I am at an age (mid-40's) where finding another job would be more difficult, especially in these difficult economic times. If they were legal I would try them. Instead, though, this Tuesday I will be undergoing "CyberKnife radiosurgery". In essence a "trigeminal rhizotomy" (cutting the trigeminal nerve where it exits the pons) will be performed using a tightly focused beam of Gamma radiation. I do not relish this option, but all else (except the CB methods, of course) has failed.
      Having said that, though, I strongly urge you to attend this conference and discuss BOTH CH and the CB methods. The more this disease and the CB methods are discussed, the more research will be done, and perhaps a truly effective method of dealing with it will be discovered, and eventually legalized (at least for medical use). PLEASE do not let your distaste of someone's tone make you avoid going to this conference to discuss or present information on cluster headaches and the "ClusterBuster" methods. Many people here and on the sister site Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or have gotten excellent results, at the risk of their freedom, their jobs, etc. They are truly pioneers in seeking what seems to be, for many, a veritable cure for this life-destroying malady (I won't bore you with the details of everything this disease has taken from me.)
      Yes, those who have had great success with the use of hallucinogens may seem a bit "preachy" like the fundamentalists you mention, but that (to me) indicates the passion these people have for a simple method that has "given them their lives back."
       In closing, please attend this conference and share this information with your colleagues. It could eventually lead to a cure for cluster headaches. I'm not sure if I have this quote exact, but I will leave you with the following: "All it takes for evil to succeed is for good men to do nothing." Be a good man.      

Neal wrote on Aug 1^st, 2010 at 1:55pm:

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

     Potter

matty when i busted it took about 3 weeks to be totally headache free. this was with mushrooms and lsd. try to  make it through the first week to 10 days with o2 and red bulls to decide its not working. i know its tough  but be patient.

Would that be from Mcilhenny's Alpine Brewery??? His "Pure Hoppiness" is an IPA version of heaven on earth. After we leave Fred's we may have to stop by Mcilhenny's and grab a "Growler to go!"

Joe