Today's Michael's 14 day PF. The longest he's gone in almost 6 yrs.

Yeah. Finally. At long last, finally.

Chronic wrote on May 7^th, 2010 at 4:13pm:

I don't believe I know anyone on this board in that position, namely they have never experienced a CH attack, but they anticipate it so they take the treatment before the disease strikes. Only to potentially find out that the treatment caused the disease.

You do see how odd that would be, right?

In regards to your first statement, many successfully bust while on verapamil. In other words, you don't have to wait.

-johnny- wrote on May 9^th, 2010 at 11:45pm:

You must have missed my post on the last page. Things are going great!!

fightguy wrote on May 6^th, 2010 at 1:08pm:

That is awesome.

Hi All,

I think maybe it's time we brought some more attention to the only truly effective counter-measure yet discovered in the fight against Cluster Headache. No one here needs to be reminded of the cost to their lives in having to deal with this horrible affliction. Yet, by some curious turn of events, a class of drugs has been re-discovered which could end it!

By no means have all the kinks been ironed out in the effective use of them, but, for most if not all sufferers, psychedelics can provide a path out of their personal Hell. Our government, in its concern for our welfare, has stifled legitimate research and criminalized the personal use, production and propagation of plants containing these substances. Fear of prosecution and belief in the myths surrounding them and their use have prevented most law-abiding sufferers - and their doctors, caregivers, friends and families - from paying any serious attention to the use of psychedelics in the treatment of Cluster Headache.

I know a lot of people get almost miraculous relief from hyperventilating pure oxygen. Many couldn't get through the day without Imitrex or Verapamil. But who would continue using them if they found something that provided more than short-term, superficial relief?

Far too little research has been conducted to provide anyone with a prescription giving precise instructions on using psychedelics to treat their headaches. I'm sure that will come in time. In the meantime, general guidelines are all we have and everyone to some extent is his own guinea pig. How much to take, when and how to take it, how to prepare oneself; all these things and more require individual experimentation. I'm not saying that there's no risk. There's risk in everything we do and risk induces fear - particularly when dealing with substances which have (or can have) a profound effect on our psychology. Whether the reward here is worth the risk is something that everyone must determine for themselves.

For most, the fact that these substances are illegal to possess, produce, transfer or use is enough to prevent them from even being considered. For others, the promise of a drug that can end their suffering, at dosages far below what has been used recreationally and in religious ceremonies for centuries, is worth the risk.

I may be mistaken, but as far as I can determine, this is the most widely read and posted-to Topic on this forum. I think that's as it should be. Maybe it should be required reading for anyone diagnosed with Cluster Headache.

Just my too sense,

Ron

Sorry read too fast I mean Amen Ron.

Thanks guys. I thought the post would generate more interest. I guess not.

Thank you pink floyd. I tried some mushrooms 4 days ago. Not even enough to catch much of a buzz and one of the worst cycles I've been in and was looking at another 4 or 5 weeks of it, is gone. It took 4 days to completely work. I tested it out big time by going out to a party last nite and having several beer. (MAJOR TRIGGER -normally one would be enough to trigger) I was so happy about how I wasn't feeling the headaches, I got carried away, had a few more than planned, (i think it was 7) got kind of drunk but no attack. no threat of attack no phantom. Except for the hangover this morning, no pain. I was almost happy about having a normal hangover headache.
I am an advocate here in BC Canada for Medical Cannabis and who would have thought that mushrooms would have helped me. It must have had an effect on some of my remissions without knowing, as fall or spring would be the time I usually would try them recreationaly. I know what medicine to take now.
thank you - thank you - thank you.
by the way, I've seen pink floyd 3 times now. 71, 78 + 2008

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

I don't know if this is posted elsewhere, but I just read the article about a trial using "legal" lsd in November of last year on the National Headache foundation site titled the effects of hallucinogens on cluster headaches. I am sure people are aware of this but since this thread is so long I thought I would post it.

David

Brew,

I'm in if they need volunteers, I live 3 hours from Boston, please keep us posted.

Thanks
David

Here is an update and recap to my husband's journal.

4/28 - Dose 1 - 1.5g
5/03 - Dose 2 - 1.5g
5/10 - Dose 3 - 1.5g
5/17 - Dose 4 - 1.5g
6/04 - Dose 5 - 1.5g - 18 days between dose 4 and 5

Began dosing 49 days ago. 24 days totally pain free. At 3 headaches a day, that is 72 headaches totally avoided. The rogue hits have been easily aborted with oxygen. They are more like an inconvenience now. Today is 12 days since last dose and he has only had 2 minor headaches in the last 12 days. Life is good

Wishing you all success and PFDAN.

Lee Ann

Thanks Joe.  Hope all is well with you.

Lee Ann