Amazing! So glad to have read this topic. I am just off my cycle and I'm soooo getting the seeds for my next cycle.
Bonkers, your story is heartbreaking, I keep my fingers crossed for some breakthrough.

Jure

It is generaly RC seeds, Morning Glory Seeds, Hawaian baby woodrose seeds containing LSA, or LSD, or Mushrooms with Psylocybin all in subhallucinogenic dosage.

It is because government wrong insight into problem and people who abuse it and media making it stand in dark spot.

I still wonder why cigarettes are sold legally but drugs not, I guess governments are just copying their laws from eachother.

You got me Velvet2tours; 25 I am - er. . . almost 26. Actually, my son Bonkers is 25. I'm his dad. I'm 63.

I agree, MattyAA. Sorry for the delay in responding; my computer's modem has been out since the 15th.

Michael has his ups and downs but generally I'd have to say he's better; most days he has a background headache but by itself it usually doesn't keep him in bed. He's had a few - very few - spikes; they scared him but haven't become common enough to be devastating. We gave up on the seeds. Got all the right stuff for O2 therapy which we're still experimenting with and we've started a Clustermushroom garden. Mike's pain Doc thinks at least part of his background headache is due to the Methadone he's taking which he's very gradually weaning himself from. (The more you take and the longer you've been taking it, the more difficult it is to break the habit and he's been taking a lot for a long time). All in all, I'd have to say that since the LSD Michael has become more hopeful, less bed-ridden and has had several 100% more PF days and nights. If our garden bears fruit and that fruit is as effective or even almost as effective as LSD, we'll be great!

So glad to hear that there is still some optimism there Bonkers, and I would guess (and hope!) that psilocybin will have therapeutic qualities much MUCH more like the previous successful LSD trial.

Hi everyone.  I always feel like the cluster'ers of the world are a bit of a family (although I have never met a sufferer besides me). I don't want to get involved in the name calling or hurt feelings on this thread, but want to share what has been working for me for a year now.  My c.h.'s went undiagnosed for about 20 years(long story).  A year or 2 later I found the clusterbusters website and tried it out.  Until about 7 years ago I was on a random drug screen for different piloting jobs I had had for about 15 years.  Illegal drugs were the farthest thing from my mind (I don't think  that psilocybin gets picked up on the tests??) .  BUT during my episodic cluster pain I would be willing to try anything that wouldn't seriously harm me. 

With my piloting career happily behind me I talked to my friends who have used psilocybin recreationally over the years to see how to use it safely without incident.  Seems like Phish and The Grateful Dead are popular shroom events. I have been following the busters advice and it has aborted all of my cycles this year.  1 headache snuck in and I was using the mushrooms 2 days later. 

I can find them in the wild near where I live and I have plenty of friends who can double check my species identification (be very careful if wild collecting any mushrooms of course).  I have used them for 1 1/2 years now at various doses.  they seem very promising for the long term and I would rather use a natural 'illegal' substance than a synthesized pharmaceutical, especially since I haven't heard that much good stuff about all of the prescribed medications (that's just me though, I am not telling anyone what to do).  I am also out in the woods a lot for work and dragging an oxygen bottle doesn't seem like a good option for me.  I know oxygen would work for me given my days flying fighter jets and being required to breathe pure oxygen (never seemed to get a headache while flying).

Please note the side effects of properly used psilocybin treatments: smiling, giggling, feeling good, clear head, awe of beautiful world etc etc.  Additionally there are plenty of cautions that should be adhered to with regards to dosing, frame of mind, location etc that the website covers well.

Good luck!!  If you are at your wits end with the pain, check it out, maybe it will work for you --shaggyparasol

I've been thinking; would it make any sense at all; to move this topic and all the replies to the ClusterBuster forum?

Hi All,

It's been awhile since I've posted on this forum so I thought I might update anyone interested on my son Michael's current status. He's on Social Security and Medicare and I'm retired so I can be home to take care of him. He can't work or go to school or have a social life. He's in bed, in pain, all day every day.

Michael is 25 years old and has had cluster headaches since he was 12. After a car accident about 5 years ago he became uncontrolled chronic with what we call "spikes" which build till he is unconscious, several times a day. Most of the common legal pharmaceuticals, in particular Imitrex, provided at least some relief; but even it lost all effectiveness over time. The only medication he is currently taking is Methadone, 50mg. twice a day.

About a year ago I read an article in the journal Neurology which showed that psychedelic drugs held great promise in the treatment of cluster headaches. Given its illegality and loss of favor, it took many months for me to find a single dose of LSD. Michael took a little more than half that dose and after 2 or 3 hours still didn't feel like he had taken anything - except that his headache was completely gone! And it stayed gone for five full days! They came back after that but not with the same intensity and without the "spikes." He still gets the occasional "spike," but it's rare; maybe one every couple of weeks. The source of the LSD disappeared and I haven't been able to find another one.

Then, I found this forum and all the wonderful folks that frequent it. I learned far more about cluster headaches in the next few days than I had in the past 10 years! I learned about oxygen and Rivea Corymbosa seeds. And, I learned how easy it is to grow Psilocybe mushrooms at home.

We got a prescription for O2, bought an exceptionally good mask and a regulator which allowed us to deliver a flow from 0 to wide open. We've experimented with the O2 for the past 2 months and found that for Michael it's totally ineffective. Most people get at least some benefit from O2; I'm sure that Michael is the exception rather than the rule.

Michael has taken a lot of RC seeds; from 15 to 120 at a time, doses 5 days apart, powdered in a coffee grinder and soaked for a few hours in a little water with a squirt of lemon juice. Completely ineffective. Also, probably the exception rather than the rule.

I learned about cultivating and using Psilocybe mushrooms on this and the sister site. Apparently safe and effective but illegal. I'm fumbling through my 1st crop and Michael has yet to use them, but we're very hopeful given his previous success with LSD.

We may soon be rid of this horror. Please keep your fingers crossed for us.

PF2U

Michael(Bonkers) and Ron(Dad)

Thanks for the input, MattyAA. The head trauma from Michael's accident wasn't severe; a few stitches, mild concussion. He was Medivaced from the accident scene, his car was destroyed and he arrived at the hospital bandaged up like a mummy but it wasn't nearly as bad as it looked. He was thoroughly examined; CAT scan, x-rays and EEG. All normal. A Neurologist and a pain specialist both diagnosed CH. We've seen a lot of other Dr.s. I wish it was something else but it doesn't appear to be. The spikes may be unrelated to the CH but they only appear when the CH is severe and to him they feel the same only much stronger.   

bonkers wrote on Jan 28^th, 2010 at 5:43am:


Well, what can I advice, try the shrooms, hopefuly it will have some benefit, or maybe Hawaian Baby Woodrose seeds instead RC ones?

There is always LSD, but I am not sure how to get it in USA, probably very hard, and places that you could get them is, probably Europe, Holland or maybe Czech Republic, from January 1st the law in Czech Republic allows possesion of such substances from what I heard, although its Europe, so travelling from USA to Eastern parts of Europe sure costs a lot.

Hi Bejeeber,

Please check this out:

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

We are both so happy. Thanks everybody!

Ron