I haven't been around for a while and didn't see this until now but I'll testify! My last cycle ended in Feb '03 and I've been dosing twice a year since and I've had NO CLUSTER HEADACHES in almost 6 years! That's by far the longest I've gone w/out dealing with it since 1985.
It's been a great pf ride and me and mine thank you for all you and yours have done Bob. 

Jim

i have read this forum every day for more than 3 years but reluctantly i
have been avoiding this thread pretty much most of the time...dunno
why...maybe im stupid...

i have to say that i dint want to get "converted" and those are my own words. i was really hoping that i could find a useful solution via the docs...although its prob only been about 4 years since my first attack ive tried almost everything in terms of drugs...and for me the side effects have been pretty bad.

worst was topamax...although it worked  maybe in cutting down my attacks 50% of the time and reducing the number by half it left me like a zombie...then it started to screw with my heart and give me major panic attacks (rare but not uncommon)

just before i continue i want to tell you about my headaches.

before i lived in japan (for about 5-6 years) and all was sweet.
then my grand father died and i came back to austraila for the funeral.
when i was in australia for the funeral i got influenza very bad. but by the time i was ready to go home it had just turned into bad sinus trouble and some headaches (little did i know....)

when i got back to japan it kept getting worse...
with each day over about a week the pain would come and go about every hour (maybe two or three if i could manage some sleep) until it got crippling.
the pain was typical cluster style (tho i didn't know it at the time) screwed up left eye, left sinus going crazy, aches down my left side, and this death bringing pain behind my left eye...

i went to the doctors and they told me (i think i went to three docs at this stage..) that i had sinus problems...

so many drugs later and  after no love the headaches dissipated...
yay!!!
a month later they are back again...
i cant really remember but without "short bullshit cures" - that i ahve tried from this site...some semi ok some resulting in nothing... i have not had a day without a headache since..
in the path of my looking for help ive been to maybe 6-8 neurologists in two countries...been fired from two jobs...lost two girlfriends...one of 5 years...lost many friends who couldnt cope with it (i dont really blame them) and made stronger friends...

one thing about these headaches are that they have taken me to the brink of suicide...ive been there ...tried it...and thanks to people that were looking out for me when i was in cycle i failed..  

ive been to hell and back...some weeks only a few times...others many times a day.

after reading all these posts in this tread i just wanna make some points..

i have no problem about taking illegal drugs to help me live....and my headaches get so bad that there is no way i can hold a job when they do get to the extreme so who cares about them....im in my "down cycle (two or three headaches a day - and maybe kip 3-5)" at the moment...there is no off or on...but when it gets to a full blown "on" cycle  i cant leave the house...there is NO work to worry about being drug tested...there is NO life...

i still consider my self episodic even tho i have had headaches pretty much every day for the last 3 years...i read these boards daily and i can understand the hell that some of the others that have no "down" time must feel...

anyway...

all that being said.

i think im starting a new cycle of "bad" headaches just this past two weeks....so...

if i can im gonna try to see if the clusterbuster stuff works for me.

the problem may be getting the stuff in Australia...i wanted to do musshies but its summer here now so it might be hard. i would rather try seeds but i really dont know again if its doable in australia...

anyone who condems what i want to try to bring a bit of life
back please read what i have written carefully...

ill try to let you know of the results if i can get the stuff together...
if not ill prob be to dead or massively  tired in the coming weeks to check whats going on....

all the best and painf free to all

cyb

Quote:


Should anyone condemn you for trying to treat CH with alternatives they will have to answer for it. Here anyway.
Good for you I hope you find relief. The seeds are the easiest to obtain and use. The shrooms are a bit more difficult, but have a higher efficacy rate.
all the best
the bb

whew...took me a few days to get through this thread...

COUNT ME IN!

What I love is how a few "concerned citizens" always want to get in a snit over the possible side effects of the psychedelics...when we KNOW what nasty havoc our prescription meds can wreak!!! 

I have been reading old journal reports from the 60s when they did all the initial testing of LSD, and from what I've read, they found NO long term side effects. 

as for legality and the workplace, you can't worry about drug-testing if you lose your job from CH!   

And let's not get too worked up about whether or not doctors are endorsing this...honestly, they can't risk their jobs by endorsing illegal drugs; I'm really pleasantly surprised that a few GP's and neuros HAVE backed up some buster's efforts.  (My doc wouldn't give it the official green light, but she's happy for me nonetheless.)

God bless you, Bob!

rc seeds and 02 are still working for me.  I do still get the occasional K7, but nothing that 02 doesn't take care of.  Life is good!!

Beth 

Shrooms and seeds both work great for me. Use them the way shared on the CB site. I will stand up and say thanks to all those who shared the information. What I learned from from CBers did me far more good than all the doctors and neros I have seen. I shared how I was using seeds with my current nero and he said " that is very interesting and it doesnt supprise me" He knew of the close door effect and said he was going to tell his other cluster paitent about it if he could figure out how with out getting in trouble. That is a shame that the legal wall still keeps so many in pain. My nero also said dont count on it being tested or becomming legal because the sad fact is there are not enough cluster sufferers to make it profitable. So my choice is to be PF legal or not.

Well, I'm not Bob, but I would let it be for a week and see how it settles in. Then go for the big dose. Dosing three times in ten days did it this time around at least for me. I had shadows for a week and a few nightimes hits but after that ...nothing. Big doses this time. 3g dry.
Keep up the good fight Phil, dont eat at least 4 hours before dosing and use the tea recipe, that will help with the nausea.
the bb

Quote:

  Tx bb 

Quote:


Couldn't have said it better myself.
Thanks for always being there to help out BB.

The tea is betetr for many people. It does help a great deal with any nausea problems and also helps get the psilocybin into the system quicker, often making the dose a bit more effective.

Bobw
P.S. Glad to hear you stuck with it Marc and are having some success.

Very interesting reading bloobrain.
I would like to see your paper should you like to share.
the bb

any fellow cluster heads in melb send me a pm.....
this cycle is getting shocking.

UnderTheRadar wrote on Jan 15^th, 2009 at 2:26pm:
I hear ya on the feeling like a 3 day bender.  I like your choice of words, LOL!

I dosed twice in December well before the next cycle which is suspose to be now and luckily I have felt no signs or early signs that a cycle is coming.  Knock on wood.  I may dose again within the next couple of weeks to keep PF days going. 

Mushies are definitely my weapon of choice.  The problem is finding them.

I'm glad you're feeling PF.  I wish it to all!

Peace,
Chad

I usually bust with shrooms, but I tried HBW seeds this time.  4 seeds on Jan 8 and 6 on the 13th.  I had harsh HA's after both treatments.  3-4hr bouts(kip 7-8) with 30 min breaks in between.  I have had only one HA since, and that was brought about by my own stupidity.  I thought I would see if I could handle a few Guinness.  Even that HA was very slight KIP 4, and was easily aborted by a Red Bull in about 20 mins.  All in all, I've only had minor twinges over the past few days.  I think I might be o the mend.  Knocking on every Fn piece of wood in the joint.  Cheers to all who gave me advise.