First of all, let me say that if I offended anyone, I am sorry as that was
NOT my intention. If I was looking for lighting a fire under anyone, it
would be those that have changed their lives with one of the psychedelic treatments, wanting them to let others know.
Again, it was never my intent to offend, only start a healthy and productive discussion.
I do have an attitude (opinion) about this treatment, it is born of frustration as I watch people suffer with this condition. It is an opinion I have shared with the medical community. I do appreciate all the people that that have put their time and effort into finding solutions.
The quest for answers is the basis of medical advances in treatment of any condition
Yes, myself and other CBers have been know to coming off "strong".
Passion is a strong emotion and I am passionate about this Cluster Headache treatment. My passion also extends to cases where when people show up here after suffering with clusters for 15 years and not ever had oxygen prescribed. This, IMHO, is needless and only prolongs their suffering.
Evidently others feel the same when it comes to oxygen treatments, their posts could be called strong. It's a similar frustration that we feel.
If you have something that you feel will help people out of their pain...how vocal are you supposed to be? I don't apologize for passion, I admire it in others.
The legality is an understandable dilemma for many, it's this and other "roadblocks" that may keep a sufferer from trying this treatment.
I respect everyone's and anyone's choices, choices are based on their need, on their situation and their understanding.
One of the goals of ClusterBusters is to remove these barriers. It's these roadblocks that may keep someone that wants to try
it, from trying it, that makes me so passionate, and frustrated. I'm not frustrated "at" those people that can't try it, I'm frustrated
"for" these people.
In all honesty, we are out here advocating specifically for those that have these roadblocks. I've spent a good part of my life the last 6 years, fighting to remove these roadblocks so that everyone can make an informed decision, based upon their own health concerns. So have a lot of other people. Many have put their own liberty at risk. Did Nani appear in that article because it would help her? no.
This research is going off many directions. (3 institutions in the US and Europe) The goals at Clusterbusters are simple. Find something that works better than what is currently available, where ever that may lead. "Polite" doesn't always get you there, though I try to be polite I may unintentionally not always come across that way.
When you've received hundreds of emails from people that have had their lives changed because of a treatment...any treatment, you need to tell others. I'm sorry if I've lost all patience but my passion grows each day as another email arrives in my inbox.
Bobw
P.S. BobP....try crunchy this time