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The dumbest things non-ch's have said about CH (Read 10478 times)
AussieBrian
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Re: The dumbest things non-ch's have said about CH
Reply #25 - Jun 22nd, 2008 at 10:45am
 
Chappy wrote on Jun 22nd, 2008 at 1:08am:
I've often wondered why CH was more deserving of the nickname Suicide Headaches, when in my experience homicidal thoughts are more common.

I'll drink with you, Chappy.  Name your poison and it's my shout.
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Re: The dumbest things non-ch's have said about CH
Reply #26 - Jun 22nd, 2008 at 11:23pm
 
Chappy - That bit about the homicidal vs. suicidal is classic!  Dead on!  haha

Best for me was when I was at a headache specialist (whom I truly hold in the highest regard), and I think he thought I was describing maybe ice pick headaches (those very brief stabs that people who have migraine commonly get).  I had described to him my 2 hours of sleep a night for a few months, the attacks, severity, etc, and he said, "There is no point in trying to treat or abort those headaches."

Now, it's funny.  At the time, I thought I'd died and gone to hell.  haha

Hugz,
Carrie Smiley
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Re: The dumbest things non-ch's have said about CH
Reply #27 - Aug 1st, 2008 at 2:13pm
 
I got a new one.... You just want attention!!! No friggin way I want to be left alone with these.
And yesterdays was.... I dont see why your headaches interfere with your studies. Take and aspirin and then you can study. I bit my tounge and walked away to go give myself an Imitrex injection. I think next time I will do it in class. GRRRR!!!!
Sophia
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Re: The dumbest things non-ch's have said about CH
Reply #28 - Aug 2nd, 2008 at 7:41am
 
The best one came from my dearly departed mother, a former hairdresser.  

My hair was quite long at the time.  She told me that if I cut my hair, and removed all that weight from my head, and QUIT going to those silly nudist places, my headaches would stop.

So the "cure" is short hair, and keeping your clothes on ... (Well, I guess I will never be cured, then!)

Thanks Mom!

Chuck
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Re: The dumbest things non-ch's have said about CH
Reply #29 - Aug 2nd, 2008 at 9:33am
 
That story from your mom still makes me laugh Chuck.

My mominlaw was a registered nurse and said that ch is just another headache and no needs for either sick leave or medication,ans she did believed that until her dying day.

Now i am using her example of attitude in some of my speeches over here.Specially when its doctors and nurses present in the auditorium


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Re: The dumbest things non-ch's have said about CH
Reply #30 - Aug 2nd, 2008 at 12:28pm
 
I've heard this one more than a few times...it actually helps since it induces what is the "supposed "cause..

Latest, at a party for a resigning colleague, the commentor, drunk on her lips and so assured I refrained from comment and went to the chip bar..."Sthressh, yup, that's why you get these head thingies, too mush shtressh..."
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Re: The dumbest things non-ch's have said about CH
Reply #31 - Aug 8th, 2008 at 3:30pm
 
My husband laughS and makes fun of the term CH. ....But the usual line he gives is " It's a made up illness". Oh Oh...and he says "Those people online ( here at CH) are bullshitting.

Great support I get! here's something for you ..."hon"
Smiley
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Re: The dumbest things non-ch's have said about CH
Reply #32 - Aug 8th, 2008 at 4:50pm
 
Mom said " You need to get a grip on these headaches" 
WTF is that suppose to mean. 

I had to convince my wife's friend that she did not have clusterheadaches and she got all mad at me.  She should be happy.

I thinks its george with the picture of that eye apparatus when a doctor told him it was an eye problem.  George ...if thats you, please post that again.  I laughed my ass off!!!
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Re: The dumbest things non-ch's have said about CH
Reply #33 - Aug 8th, 2008 at 8:20pm
 
"I had a clusterheadache once"  I just let that one go...........not gonna argue.
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Re: The dumbest things non-ch's have said about CH
Reply #34 - Aug 10th, 2008 at 4:20am
 
About three years ago I was in the control room at work with 6 other guys, two whom I knew very well, two that i knew fairly well, and two that were new employees and didnt know at all. I was explaining to one of the guys that I knew very well about CH, and one of the new guys says," oh i get those too".  I said "really"? " ever been to the doctor about them?" and he says,"naw". I said, " ever see a neurologist"? and he says, "humph, hell no". and I said, ( in a slightly, just slightly mind you, IRATE tone,  " Ever been standing in your darkened living room at three A.M. holding a loaded .357 magnum at your head with 2.99 pounds of pressure on a trigger with a 3.00 pound trigger-pull, and the only reason you didnt flinch and do the deed was because your wife was crying her eyes out and begging,"PLEASE,PLEASE for Gods sake dont do it"????????     Well,, after that fifteen seconds of VERY uncomfortable and COMPLETE  silence in the room, the guy says," Uhh, maybe I dont have that after all".  When me and the other guys look back on that, we crack up and laugh about it. I still dont really care for that guy though!!!!    Tuck
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Re: The dumbest things non-ch's have said about CH
Reply #35 - Aug 10th, 2008 at 12:48pm
 
After spending a year in 2003-04 getting my daughter, Lisa's asthma under control she had 2 years of a comfortable life with minimal asthma then the clusters set it. Her asthma/allergy doctor recently said "I don't know much about cluster headaches but is it possible that now that the asthma is under control she may have created this rare condition??? He even saw an attack in his office last summer from the beginning to the end. I don't think he's reading the links I've told him to!

Charlotte
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Re: The dumbest things non-ch's have said about CH
Reply #36 - Aug 13th, 2008 at 3:55pm
 
it has been a about 4 years since i've visited this site... but the first post belongs to humor....its good to be back!

i live in a small southeast alaskan island town, and i don't get to chat with any other clusterheads but here.  so, the non-ch chatter in my life is quite funny to me and my husband.

the most often said is:   "do they know what is causing it yet?"

i had to go to the ER the on sunday morning to get an imitrex injection, because they didn't have anymore refills at the pharmacy on friday and i had to wait till monday for them to order and then tuesday for them to come on the airlines (gee whiz)! but, the nurses at the end of hall took their merry time to come find out why i am making such a fuss. they thought i was a drunk person... thanks girls.

angela
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Re: The dumbest things non-ch's have said about CH
Reply #37 - Aug 14th, 2008 at 3:10pm
 
Now that enough of my friends know about CH, particularly some running buddies, they keep an eye on me after running. If I get hit it becomes like that "Bud" commercial when they see my eye all f*&$ed up and they say, "Oh, dude".

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« Last Edit: Aug 14th, 2008 at 3:18pm by seasonalboomer »  

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Re: The dumbest things non-ch's have said about CH
Reply #38 - Aug 15th, 2008 at 11:24am
 
The first time to the Chiropractor office.  I asked the doc, "have you even heard of CH"?  She said "yes, but wasn't that familiar with them".

She said "the treatments could possibly heal it".  That one moment of inspiration only lasted about 1 hour.  After they do that neck snap at the end, I felt worse.  What bunch of crap!
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Re: The dumbest things non-ch's have said about CH
Reply #39 - Aug 16th, 2008 at 5:11pm
 
Chuck,

My late great mum used to say that: it's coz of you sporting your hair long! Love her for so many reasons, but she was wrong on this one.

Speaking to a woman recently got me remembering this one, from the good old nineties:
Why, you're wearing all those piercings and earrings... they must be causing your headaches, as they interfere with your ''balance kinda thingies'' (or something  Grin).

Yeah that's it. I've gotten rid of most of my piercings (except for a nosering and a sh-tload of earrings ), but ya know what? Still get them f-ckers.
So much for that acupunctural new age blah blah.

Regards, Pascal.
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Re: The dumbest things non-ch's have said about CH
Reply #40 - Aug 19th, 2008 at 7:24pm
 
ClusterChuck wrote on Aug 2nd, 2008 at 7:41am:
The best one came from my dearly departed mother, a former hairdresser.  

My hair was quite long at the time.  She told me that if I cut my hair, and removed all that weight from my head, and QUIT going to those silly nudist places, my headaches would stop.

So the "cure" is short hair, and keeping your clothes on ... (Well, I guess I will never be cured, then!)

Thanks Mom!

Chuck


I had a NEUROLOGIST tell me the 'haircut' solution. It was for INCREASED INTRACRANIAL PRESSURE. He was convinced that if I just had my hair cut? I'd feel OH SO MUCH BETTER. And my migraines and seizures would go away. We were all sitting there considering injuring the man. He already had tried to convince the other doctors to hospitalize me in the mental ward and failed.

Other incredibly stupid thing from a neurologist "Just go to the ER every day if you have to until we can see you again. We're not going to prescribe you anything and your primary care physician has to request the oxygen orders from us."
"They already did."
"Have them request it again."

1 week later my Mom calls again.

"One ER is refusing to treat my daughter. What do I do? She wants to kill herself during these headaches!"
"Go to another one, oh, and request their neurologist on call."
"So, if we come to YOUR hospital, which is 2 hours away, to the ER, and request the neurologist on call, they will bring one of the neurology departments doctors to us?"
"UM UM UM, that's up to the descretion of the doctor who sees her in the ER."

He was lucky I didn't see him when I had to go in, because I was going to grab him by the balls and inform him "Your pain ends when mine does!" >_>;
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Re: The dumbest things non-ch's have said about CH
Reply #41 - Aug 21st, 2008 at 9:03pm
 
Neighbor once said "Well I sometimes see you up at all hours of the night ,paceing around, like you don't know where you're going or what you 're doing; why don't you go to bed and get your rest like everyone else..then they will probably stop.  I couldn't help but think "whata f'in retard".....and apparently a VERY NOSEY RETARD at that....lol
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Re: The dumbest things non-ch's have said about CH
Reply #42 - Aug 21st, 2008 at 10:13pm
 
Boss said the pollen count is really up there today you must have a sinus problem would make your ""eye"" water too. NO I dont. The end.
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Re: The dumbest things non-ch's have said about CH
Reply #43 - Aug 30th, 2008 at 4:46am
 
Regarding "Homicidal Headaches" Oh thats cluster headaches.... My boyfriend keeps shoving opiates down my throat (he waits for a scream and pokes them in so far I either swallow them or choke. What a guy I am going to hide the tablets today. I know he means well but I may kill him. Anyway a 19 year old at danish class said to stop drinking coffee and my headaches would go away. GRRRRRR!!!!! I am 20 years older than her, 15 kilos heavier and one he** of a lot meaner and she was lucky I didnt do more than tell her no thanks. Good God no coffee and cluster headaches!!!!! A fate worse than death! Sophia
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Re: The dumbest things non-ch's have said about CH
Reply #44 - Aug 31st, 2008 at 5:51pm
 
My fav is it is all in your head lol
another one i love is i hate having a headache just try to sleep it helps me

and yet another from my mother Your are over reacting watch you dont get dependant on that o2 try some painkillers.

To be fair though since then my mother has read up on it and lost a nights sleep worring although she never spoke to me about it she spoke to my sister, me and my mother are to much alike so we find it hard to show eachother our feelings so i will just say it here
"I Love You Mum"

Regards
Brian
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Re: The dumbest things non-ch's have said about CH
Reply #45 - Aug 31st, 2008 at 8:03pm
 
I've gotten a lot of the "Oh, I sometimes get those, I have to lie down in a dark room until it goes away"...I try to politely explain the difference between clusters and migraines, but it rarely works.

What's more interesting are the comments from the few people at work who've seen me pacing around with an actual headache...From the girl across the hall, when I had a full-blown kip 8 complete with the crazy eye:

"OH MY GOD! Are you having a stroke?!?!"
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Re: The dumbest things non-ch's have said about CH
Reply #46 - Sep 23rd, 2009 at 12:14pm
 
Chappy wrote on Jun 22nd, 2008 at 1:08am:
I've often wondered why CH was more deserving of the nickname Suicide Headaches, when in my experience homicidal thoughts are more common.
Tongue


Absolutely true.  I hate well-meaning, ignorant pests during my hits. 

Personally, I hate the migraine sufferers trying to relate:  "You should really stop pacing, it makes migraines worse.  Lie down, and sleep it off".

"Wow, thanks! all the doctor's I've seen only tried smashing my head with a hammer.  I'll try it next time!"

I'd give anything to be able to 'sleep it off'  I hate the sleep it off comment!!  Like I'd choose to remain concious during the most painful moments in my life if it was a choice.
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Re: The dumbest things non-ch's have said about CH
Reply #47 - Sep 23rd, 2009 at 9:21pm
 
"Oh I get Migraines Too!" or "My 'fill in the blank gets migraines too!"  or "I've had those before."
Roll Eyes Roll Eyes Roll Eyes Roll Eyes Roll Eyes Roll Eyes Roll Eyes

Given the number of times I've heard this response when  specifically stating CH, not just H or MH, and the number of times I've tried to explain it and people JUST DON'T F-ing get it, I've Given up explaining it at all.
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Re: The dumbest things non-ch's have said about CH
Reply #48 - Sep 23rd, 2009 at 9:26pm
 
P.S. I was going to edit my post to add the following but the option went poof (?)

P.P.S.
Another one once said to me "Oh you just need to learn to control it." 

Here's what I wanted to reply:
Come here let me stick a fork in your eye and watch you control that pain!!!   Angry

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Re: The dumbest things non-ch's have said about CH
Reply #49 - Sep 24th, 2009 at 3:53am
 
For me, it isn't just what they say, it's what they do.

First..."Why is your eye doing that? Open it!"

Second: "Okay, we're going to FORCE your eye open. Now look at the light."

THIS COMES FROM DOCTORS. ARRRRRRRRRRRRRRRRRRGHHHHHHHHHHLDKJSDHSAFJHSAHJAKHGHJSFFHKH

It doesn't matter if I'm at the ER for another chronic condition or a severe allergic reaction gone wrong. They fixate on my fucking eye.

I had one godforsaken neuro-opth in Houston FORCE it open then tell me to read a fucking EYE CHART.

WHAT.THE.FUCK???

I know Brew said once it was a test to see if I'm a homocidal maniac. I pass the test, but my Mother is to the point she's about to start snapping at people who do this to me. The stupidity dumbfounds us.
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As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

It's saved my life.
 
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