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WPWaterrose

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The dumbest things non-ch's have said about CH
May 27^th, 2008 at 2:05am

Greetings CH Team,
I understand that people who are not educated with our condition mean well, and want to help us. But has anyone else wanted to choke someone for making the dumbest remarks every heard to us about how to handle our condition>? I figured I would vent on the message board so I can have more patience to educate and teach understanding about Clusters in the real world.

True comment from a fellow grad student to me.

Her: "Where have you been? WHy did you miss class?"
Me: "I suffer from Cluster Headaches and am going through a bad cycle. It's all good though."
Her: "Oh.. You want to talk about bad headaches. I ...get bad headaches.!!! (she laughed at me at this point). Mine are so bad that I take exedrine Migrain. Not just two .. but three pills sometimes!"
(Stunned silence)
Me: ..... "You know what? Your right.. that is bad. Poor girl"
and i walked away...

sigh... it is funny now. But WOW, I wanted to go Homer Simpson on her! (can I blame the Prednisone?)

I am curious to hear any similar comments... they always crack me u, AFTER... the fact... lol

Hang in there people!

William

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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: The dumbest things non-ch's have said about CH Reply #1 - May 28^th, 2008 at 12:12am "It's all in your head."
Back to top	My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com IP Logged

Charlotte CH.com Alumnus Offline Posts: 2385 Patterson,California Gender:	Re: The dumbest things non-ch's have said about CH Reply #2 - May 28^th, 2008 at 1:11am "I had one of those once."
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WPWaterrose CH.com Newbie Offline I Love CH.com! Posts: 10	Re: The dumbest things non-ch's have said about CH Reply #3 - May 28^th, 2008 at 1:36am Awesome...
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Barry_T_Coles CH.com Alumnus Offline Posts: 2073 Karratha\|,West_Australia Gender:	Re: The dumbest things non-ch's have said about CH Reply #4 - May 28^th, 2008 at 3:38am I just have a nice cupa tea & a little lay down NO PROBS
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seasonalboomer

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Re: The dumbest things non-ch's have said about CH
Reply #5 - May 29^th, 2008 at 5:25pm

I love my wife, and she's a pretty good supporter most of the time, and I know I've said some stupid stuff over the years, but she's had a few doozies in this department....

"Will this TV, being on, bother you?"
"Those tanks make it seem like 'old people' live here - can we not hide them somewhere?"
"Maybe if you just didn't think about them as much as you do, you might be less inclined for them to come on."

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Scott

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mezza CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 415 north carolina Gender:	Re: The dumbest things non-ch's have said about CH Reply #6 - May 29^th, 2008 at 11:38pm from my Mom : " oooh i get headaches too sometimes.... take a st. joesph baby aspirin everyday, I never get sick anymore" you know those orange chewable things!!!!!!!! I didn't even know they made those things anymore- she probably has them leftover from when i was a kid
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sandie99 CH.com Hall of Famer Offline Wish it, dream it, do it - inspite the pain! Posts: 11975 Finland Gender:	Re: The dumbest things non-ch's have said about CH Reply #7 - May 30^th, 2008 at 12:21pm Well, my aunt said that I'm "imagining" all of my hits and my mother suggested that I should have donuts for "treatment". This world has lost two medical experts in them... Sanna
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aprilbee CH.com Alumnus Offline Ain't I a stinkah!! Posts: 1507 Warr Acres, Oklahoma Gender:	Re: The dumbest things non-ch's have said about CH Reply #8 - May 30^th, 2008 at 4:51pm a co-worker once told me, Oh, I have migraines too, just take an Advil and drink a coke, it works for me!! BARF... I just wanted to smack her! they can't help it though, they TRULY have no idea...
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CostaRicaKris

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Re: The dumbest things non-ch's have said about CH
Reply #9 - May 31^st, 2008 at 12:06pm

The guy from Apria that delivers my O2 told me "I had one of those once. I got in the back of the truck and tried the O2."

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Vida

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icedragon Ex Member	Re: The dumbest things non-ch's have said about CH Reply #10 - Jun 1^st, 2008 at 2:16pm This one is directly from Google Health: "Cluster headaches are a fairly common form of chronic, recurrent headache." Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or The site also has a list of meds that is good for a chuckle...
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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: The dumbest things non-ch's have said about CH Reply #11 - Jun 2^nd, 2008 at 3:14pm I also have heard the "Maybe if you didn't think about them so much you wouldn't get them!" Got to love it!
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WPWaterrose

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Re: The dumbest things non-ch's have said about CH
Reply #12 - Jun 4^th, 2008 at 11:37pm

I have two good comments in two days for this thread.

Yesterday I got: "Have you tried going to a specialist?"

Today: "If you soak your feet in hot water, like in the tub...that will do the trick."

Sigh, they just do not understand...

Thank God for everyone in the CH family that does understand!

You know.. one of these days.. one of these remedies is going to work.. lol....and I shall apologies!

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maalstroom

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Re: The dumbest things non-ch's have said about CH
Reply #13 - Jun 9^th, 2008 at 3:29am

"Have you ever tried (insert any alternative therapy like a health stone, herbals etc), they helped (insert name) to get rid of his/her headaches."

"You have been awfully busy lately, no wonder you get headaches."

"It's all that coffee you start your day with."

"All that pacing can't do any good. With a headache yuo should lie down."

"Have you been worrying?"

"I hate having a headache too."

They all mean well, ya gotta give em that, but it'll only make us homicidal even more...LOL!

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...AND AS A FINISHING TOUCH, GOD CREATED THE DUTCH.

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seasonalboomer CH.com Hall of Famer Offline CH messes with my isness Posts: 2517 Charlotte, NC Gender:	Re: The dumbest things non-ch's have said about CH Reply #14 - Jun 10^th, 2008 at 10:06am "A friend of mine got rid of his headaches with his chiropractor, you should try that."
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Redd CH.com Sponsor Offline Posts: 8457 Stevens Point USA Wisconsin Gender:	Re: The dumbest things non-ch's have said about CH Reply #15 - Jun 10^th, 2008 at 8:50pm This is Ironic, because since the divorce, he too is now a supposed clusterhead. But before this, and before I was correctly Dx, and after my first imitrex injection, he said to the babysitter after the trip to the doctor. "She was jumping around like a whimp. Jeeze it's just a headache."
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Sophia CH.com Veteran Offline I Love CH.com! Posts: 139	Re: The dumbest things non-ch's have said about CH Reply #16 - Jun 11^th, 2008 at 10:35am Just this week in Danish class on break I was pacing the hallway and chugging coffee when a lady told me I should have an enema and that would clear out the problem. I told her my headache was at the other end. She went away confused. I wonder why.
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Barry_T_Coles

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Re: The dumbest things non-ch's have said about CH
Reply #17 - Jun 11^th, 2008 at 10:57pm

Sophia wrote on Jun 11^th, 2008 at 10:35am:

Just this week in Danish class on break I was pacing the hallway and chugging coffee when a lady told me I should have an enema and that would clear out the problem.
I told her my headache was at the other end. She went away confused. I wonder why. Roll Eyes

One could guess that Lady does most of her talking from the other end; the sort of person you would nickname Moses cos every time they open thier mouth the Bull rushes out.

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Of all the things i've lost in life the thing i miss most is my mind.

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George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: The dumbest things non-ch's have said about CH Reply #18 - Jun 13^th, 2008 at 2:27am Eyestrain. It was a diagnosis from my optometrist, when I was a kid. He's dead now. I didn't have anything to do with that, by the way. Best, George
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Ray CH.com Alumnus Offline Ray Posts: 1996 Columbus, Ohio Gender:	Re: The dumbest things non-ch's have said about CH Reply #19 - Jun 14^th, 2008 at 6:46pm When I started getting cluster headaches, my EX was pregnant with our first child. She said it was psychosomatic because I was jealous of her pregnancy. Sheyeah Right! Ray
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thebbz Ex Member	Re: The dumbest things non-ch's have said about CH Reply #20 - Jun 15^th, 2008 at 12:45am This wouldn't be funny but I was looking the neurologist in his face when he told me,"Take an aspirin and drink a coke". I can laugh now. thebb
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JimLaff CH.com Veteran Offline OH CRAP!!!!! Posts: 146 x1\|Springfield\|USA\|usa\|486\|122\|PA,Pennsylvania Gender:	Re: The dumbest things non-ch's have said about CH Reply #21 - Jun 18^th, 2008 at 4:35pm "Maybe if you just didn't think about them as much as you do, you might be less inclined for them to come on." - I hate that one, but my #1 came from my father. Ready??? "Just bite on a bullet and get over it" I told him I was about to eat a bullet
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Sophia

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Re: The dumbest things non-ch's have said about CH
Reply #22 - Jun 19^th, 2008 at 10:53am

Glad you didnt eat that bullet but I have sure wanted to plant some buckshot in a few behinds over stuff like that. I was told today by a *friend* that I was addicted to pain meds and that was why I had so many headaches. Uh gee if I was addicted I wouldnt have been able to stop taking them 48 days ago. And twice a week does not a dope fiend make. Where are these people coming from? Huh

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Melvyn

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Re: The dumbest things non-ch's have said about CH
Reply #23 - Jun 20^th, 2008 at 3:30pm

When I went to my doctor to ask for O2 and verapamil - I saw a new lady doctor - she refused the Verap and O2 - but said - 'I see from your notes that you are a smoker - I'm sure giving up smokoing would help'

My hands seemed to take on a life of their own - I could feel them stretching out for her throat -- I wanted to wipe that supercilious smile of her face - I managed to control myself. I would never wish a CH on anybody!! - well maybe just one doctor - sorry God I didn't mean it.

regards and PF days,

Melvyn

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Melvyn

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Chappy CH.com Veteran Offline __ Posts: 117 Tucson, AZ Gender:	Re: The dumbest things non-ch's have said about CH Reply #24 - Jun 22^nd, 2008 at 1:08am I've often wondered why CH was more deserving of the nickname Suicide Headaches, when in my experience homicidal thoughts are more common.
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