Hi Fanchesco, welcome back!  Your post was fine.  We speak broken English here  ; 

PF Wishes to you too.

-Dennis-

Hello All,

I found this board a few years ago and posted here and there but never formally introduced myself.  My name is Brian and I'm a 30 year old Episodic Clusterhead from Sherman Oaks, CA.  I started getting these suckers in my late teens and was diagnosed in 2003. 

This board and the ClusterBusters site has been a godsend.  I used to have 3 terrible cycles per year that would last 1.5-2 months.  Had mixed results with the shrooms but I've had great success with the seeds starting at the end of last year.  This has been the most pain free year I've had in years.

I am currently in the midst of a bad cycle that started a little over a week ago but I hope to bust it with a 3rd dose of 65 seeds this Sunday.  I recently decided to go back to school for a 2nd career and I plan on applying to medical school in a couple years.  I was cruising along this semester until this cycle derailed it a bit but hopefully I can push through it and get back on track.

A couple days ago, I finally got a prescription for O2 and hope to have that up and running within the week.  Too bad the Clustermasx processing is down at the moment.  Anybody have an extra to sell?

Anyway, hope to meet y'all some day.   

PF wishes to everyone.

Hi Trigeminus,

                If it's support your looking for you came to the rite place. You will meet many new friends,see you just met one.


               You haven't mentioned any medications. What are you taking for prevent? And also for abortive? Do you have a neurologist yet? Let us know,remember the more questions you ask the more answers you get. This site is all about learning about other peoples experiences (the way they handled them mite help one of us)meeting new people,getting helpful advise,and making lots and lots of the worlds coolest friends.So good lock to ya.


      To get the best results start a new thread under Cluster Headache Specific and ask away.





Dave

Welcome Chris!  It's about time you found us.  There are lots of helpful folks who know first hand what you are going through.  It sounds like you have a good support system though and that is worth a lot.

Tell us something about what works for you and what doesn't.  That is how good info gets shared around here.  Collective experience is the name of the game  ;

I'm a Father too so I know how hard it can be on the family.  Sometimes I think it hurts me more to see the pain through their eyes.

You aren't alone, in fact you never were.  Welcome home clusterbrother.

-Dennis-

Hello,

I'm from south Jersey.  I've had them for about 7 years now but was just diagnosed a year ago.  I'm fortunate in that mine are episodic.  As I've read other posts I have to steal what seems to be the mantra of, "I can't believe how many people get these and sorry for everyone that has to go through this." 

It's a wonderful thing that has been done with the site.  To be able to correspond with people who understand is amazing.  My family and friends try but you know in your heart they truly have no idea. 

Thank you to all of those that have posted as I have already learned more from this site then I have in the past 7 years. 

Good luck, hang on, and remember that if you got through it yesterday then you can get through it today.  At least that's how I get by.

When I figure out how to insert a pic I will.


Brian

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or
Been getting nailed for 32 years. New to ch.com but not to clusters. I'm episodic, 2 months on, 4-12 months off.  Front line is oxygen, imitrex injections, amerge (naratriptan), and I find opiates and muscle relaxers will keep the shadows just lurking when I need to go "cheap"... I have no insurance... double ouch!!

DennisM1045 wrote on Dec 6^th, 2007 at 4:28pm:

Dennis thank you for the warm welcome...

     Chris

Hi Everyone,

Found this site in 2000 just after being diagnosed. Have posted a few times, but mostly I just come here and gather info.

Am a chronic clusterhead originally from Vncouver, Canada, now living in Maui. Semi-retired mom to 4, stepmom to 3, grandma to 1.

I love reggae music, tennis, traveling and am learning to play golf...argh!

What keeps me sane is my amazing husband and the support of my family, my 4-legged familiar Buddha, this website, a great sense of humour and a wicked attitude... 8)

Here's a pic pf me hamming it up in front of Lulu, my car and another of Buddha at the beach getting his swim on  ;

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

PFDAN to us all!

Hello all! 1st off, let me extend a heartfelt (and headfelt) "thank you" to each and everyone of you that have posted here. The information here has been a Godsend for me and my wife.

Also, thanks to my loving wife who found this website (you know us bullheaded males) and MADE me read it 

I'll try to keep this as short and informational as possible. I'm 54, happily married with 2 great kids, one grandson and another grandchild on the way  ; We live about an hour north of Milwaukee, Wisconsin.

I'm eposodic. At least I think I am. This cycle has me very worried. The beast has been visiting me for about 8 years now. I was diagnosed about 5 years ago. My hits start in early to mid October. Typically, once we get several killing frosts, about the 1st week in November, my cycle ends. This current cyle began in mid October and continues to this day 

Up until I found this site, I downed Ibuprofen hoping for relief. Sometimes it came, sometimes I danced for frickin' hours at a time. Lol, and yes, my language gets VERY colorful to say the least. I now use energy drinks (Red Bull, Rip It, etc.) and 4 Way nasal spray as abortives and I take 10mg of Melatonin daily as a preventative. My hits are now lasting anywhere between 5 mintues and an hour. In looking at all the other alternatives everyone else is using, I consider myself to be very, very lucky.  If I have to resort to using prescription drugs and O2 I will definitely do that.

A couple of weeks ago, I was so exhausted from several weeks of continuous hits, I more or less collapsed on our livingroom couch and didn't wake up untill the next day. Keeping my fingers crossed, but since I've started taking the 10mg of Melatonin, I've had 5 days of PF nights  ;  ;

If I or the wife can be of any help to anyone, please let us know. It's the least we can for our fellow CH'ers.

I'd be more than happy to post a picture of the wife and I with our Grandson on our Harely if someone would be willing to help me out. Just IM me and I'll send the picture to you.

Best wishes to you all for many PFNaD's!!

hdrider (Ron)

Hey, thanks for the warm welcome Guiseppi, I appreciate it!

As is typical for me, after I posted I wanted to add a few things, mostly for the newbies here, so they may not feel so alone or maybe even embarassed.

The beast resides in the left side of my head, face and jaw. Ever since the 1st hit, it seems to end up in a tooth on the upper, left, back side. To this day, because I'm getting non-CH headaces or shadows in this area, I'm bound and determined to have the SOB pulled. When I do, I'll come back and report what happened.

Also, my hits are easily 9's or 10's. They always come about 1 to 2 hours after going to bed. I've since learned, beating my head on the walls or floor, pulling my hair out or crying like a baby doesn't do me any good. So, for now, when the beast visits, it's total isolation from anybody, including my wife, total darkness, no lights and definitely no being around other people.....period! Just me suffering through these damn things and then silently, carefully, crawling back into bed, praying for a few hours of sleep.

During my cyles I have shadows that range from 3's to 7's.  I've found a quick slam of 8oz to 16oz of energy drink works wonders. Damn, I would've never figured that out on my own Oh, yeah, we buy the Rip It products at our local Dollar Store, it's 75% less than the Red Bull at our local grocery store and it works just fine  ;

Again, good luck all CH'ers and if I've done my homework properly, special thanks to Annette. Too bad our numbers aren't great enough to warrant some well funded, well researched scientific studies. Let's hang in there, together. Who knows what we can come up with?

Merry Christmas and Happy Holidays to you all!

hdrider (Ron)

I'm sorry, folks, I really am...My cycle ended a few months back, thank God, and I haven't been around since, but I haven't forgotten all of you for your support during the cycle.  I feel guilty that I haven't been around to offer support to you guys.  My thoughts are with each of you, and to you newcomers, you're in the right place for a fabulous support group!

Here's me and my babies!
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

Helen, you're so sweet!  You have a good holiday, too...I'll be around more.  I'm just feeling very blessed to have been pain free for months now.  I finally got an appointment with a neuro (three weeks after the cycle ended) but at least he knows I exist, so next time he'll be able to get me right in.  I had to wait three weeks to see him (after seeing my GP who had no clue what was going on, and kept prescribing vicodin)...Reading this board made me remember going to see the doc and crying saying over & over how I was afraid to go to sleep at night. 

Have a good Christmas, too!  I can't believe it's only a few days away...

xoxo,

Jess

Now that I found the hello newbie form, hello everyone, my name is Mike.  I've been suffering with these since 1988.  They really sux.  My family and me have learned to deal with them.  Leave me alone, and I'll be back in about 1 to 2 hours.  I just started my cycle last week, they are mild so far (my mild would kill the average person if you know what I mean). 

During the day I slam some caffine and it helps.  Night times scare me.  The fear of the midnight onslaught.

Thanks for being there!!