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Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Go back up to loading dose of D3? http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1471445424 Message started by amandabe on Aug 17th, 2016 at 10:50am |
Title: Go back up to loading dose of D3? Post by amandabe on Aug 17th, 2016 at 10:50am
Hello Batch,
This is Amanda here, my best friend suffers from CH - Iīve been on the forums some years ago and got so much help for her from the D3 regime. She is 3 weeks into a cycle right now. We did the two week loading dose and there was very minimal pain - better than ever I think. Now she is down on 10,000 IU per day and the pain seems to be getting stronger. She had a couple of nights with 3 pains. I know the only way to know anything for sure is through a blood test - she lives in remote Mexico and doing a test right now isnīt possible. Based on your experience, could it be that she needs to increase her IUīs of D again? What would be best to go back up to? Thanks so much for your help - for this forum and all the work. Itīs been a lifesaver. Many thanks, Amanda |
Title: Re: Go back up to loading dose of D3? Post by amandabe on Aug 19th, 2016 at 12:22pm
Iīve had no response to this...
Really hoping for someone insight... Anyone?? |
Title: Re: Go back up to loading dose of D3? Post by Peter510 on Aug 19th, 2016 at 1:20pm
Amanda,
It's hard to say without the blood test. Has she been experiencing any allergies (pollen for example) or has she had any other illnesses, even a common cold, in the last week or two?? Regards, Peter. |
Title: Re: Go back up to loading dose of D3? Post by amandabe on Aug 19th, 2016 at 8:20pm
Hi Peter,
Thanks for getting back to me - nope, no colds, allergies or anything like that... She had to strong nights of pain and last night was less again. Have you ever heard of anyone needing more d3 than the loading dose provides to get in the right range? Peace, Amanda |
Title: Re: Go back up to loading dose of D3? Post by Peter510 on Aug 20th, 2016 at 5:36am
Amanda,
Batch is the Maestro when it comes to the D3 Regimen, so follow his advice diligently. We forgot to mention how much we love CH supporters here. Many of us might not be around today if it wasn't for the support of family and friends, so a huge thank you to you for supporting your friend. Support like yours gives real meaning to the term "best friend". Peter. |
Title: Re: Go back up to loading dose of D3? Post by amandabe on Aug 21st, 2016 at 8:33pm
Thank you so much for getting back to us Batch - also Peter for your help here.
Iīve passed all this info onto my friend (I am in Canada at the moment and she in Mexico). Yes, Peter, I totally agree about "best friend" when someone really helps! I have my 2 closest friends in the village I live in with serious headaches. One has Clusterheadaches - and the other closest friend with trigeminal neuralgia which is almost constant. When the beast comes I am usually the only one with the ability to look online, research, etc. My friend with the cluster headaches is doing so much better and this regime seems to really be the hero of the story. So my gratitude is huge! She asked me about taking year round - I know she needs a blood test - but is wondering in general are people who are on maintenance doses year round always taking all the cofactors? She is a little concerned about taking that many vitamins throughout the whole year as she feels it could be hard on the system in other ways. In her case she only gets cluster headaches every 2 years and they last for 6 weeks. They come only in the night and peak at 3 weeks in. When I wrote the question about going up on the loading dose she had a couple of harder nights (also around the full moon) but it seems now this was the peak of the cycle and it has gone back down now. Without question this D3 Regime has been extraordinarily helpful - so we are very very thankful. She will take another 50,000 tomorrow and go to a maintenance dose of 20,000 (her pills are in 10,000 and are the kind you canīt cut)... hope itīs ok! Thank you again! |
Title: Re: Go back up to loading dose of D3? Post by Peter510 on Aug 22nd, 2016 at 6:12am
Amanda,
I too suffered my CH episodically for many years until I turned chronic about 3 years ago. This means that I suffer attacks daily, all year round. Consequently I take the D3 and all cofactors with my main meal as part of my daily routine. My wife suffers severe anaemia since she had serious intestinal surgery back in 2013/2014 and also takes the full regime daily for general health. Having taken a fall in 2015 and breaking her leg, her orthopaedic surgeon was amazed at her speed of recovery. The regime is excellent for post surgery recovery. My brother, recently deceased, was taking it full time following removal of half his liver due to cancer and we believe, as does his oncologist, that he survived a full year after the surgery due to D3. Other, comparative cases, did not have the same outcome. Like Batch, I too have small grandchildren taking it (in reduced doses, of course) and they are fine, healthy children. SO......we have experienced nothing but good health from taking D3 and all the cofactors all year round. Best regards, Peter |
Title: Re: Go back up to loading dose of D3? Post by amandabe on Aug 22nd, 2016 at 6:12pm
Thanks again Batch and Peter.
Iīm glad to hear that so many are taking these with such a positive effect all year round. So here is just one other question: Itīs super hard to get citrates in Mexico (calcium and magnesium) although places like iherb do "ship" to Mexico we have had so many issues of being caught by customs itīs ridiculous and they simply wonīt let the package through. Vitamin K is also hard, but we do get the cheese. I will try to drive a good amount across the border when I drive down soon to stock up... But wondering then: of all the co-factors are there any that are most essential for taking year round? For example if just one thing canīt be obtained will it mess with the whole cocktail? Finally - I have heard that this works well for Trigeminal Neuralgia as well... is that true? I would also like to get my other close friend on this regime. As I said - I have a strange karma with these head pains... I am totally free of them myself, the only headaches I ever get are from occasional hangovers.... but 2 of the people I love most in the world who are both in a little village in Mexico have these pains... I have to find solutions! :) |
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