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Cluster Headache Help and Support >> Medications,  Treatments,  Therapies >> Trying new neurologist tommorow
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Message started by lsarver3808 on Dec 2nd, 2015 at 6:18pm

Title: Trying new neurologist tommorow
Post by lsarver3808 on Dec 2nd, 2015 at 6:18pm
Any suggestions for treatment that won't mess my hubbys mind up?  Topamax was a nightmare for him.  Right now only on d3 and oxygen.  He was up every hour last night.

Lori

Title: Re: Trying new neurologist tommorow
Post by Bob Johnson on Dec 2nd, 2015 at 7:57pm
You have been around here long enough to know that our experience with neurologists is generally poor--UNLESS you can confirm that he has good training in treataing comples headache disorders AND much experience. You have to ask him/his office staff directly about these quesstions.

IF you don't get a good response, urge you to seek a headache specialist.
----
LOCATING HEADACHE SPECIALIST

1. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

2.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

3. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE; On-line screen to find a physician.

4. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

5. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
        Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.

Title: Re: Trying new neurologist tommorow
Post by lsarver3808 on Dec 3rd, 2015 at 7:26am
This neurologist is supposed to deal with headaches.  I made him an appointment with a headache specialist but his first available appointment was March 2nd and he will not work with our primary care until he sees him.

Title: Re: Trying new neurologist tommorow
Post by jon019 on Dec 3rd, 2015 at 5:27pm

lsarver3808 wrote on Dec 3rd, 2015 at 7:26am:
This neurologist is supposed to deal with headaches.  I made him an appointment with a headache specialist but his first available appointment was March 2nd and he will not work with our primary care until he sees him.



There is a shortage of family practice docs cuz everyone wants to be a 'specialist"...yet it takes 3 months to see one...I don't get it.

In the meantime...tell them you will be available for any cancellation they have...then do it. Once there is a relationship waits become less. The best neuro I ever had told me to be sure to mention"CLUSTER HEADACHE patient IN CYCLE" when I called and they would fit me in.... because she (and her staff) knew what THAT meant.

Make sure they hear CH LOUD AND CLEAR.....

Best

Jon

Title: Re: Trying new neurologist tommorow
Post by lsarver3808 on Dec 5th, 2015 at 8:54am

Bob Johnson wrote on Dec 2nd, 2015 at 7:57pm:
You have been around here long enough to know that our experience with neurologists is generally poor--UNLESS you can confirm that he has good training in treataing comples headache disorders AND much experience. You have to ask him/his office staff directly about these quesstions.

IF you don't get a good response, urge you to seek a headache specialist.


I know I have been around here for a while but this was only our second attempt with a neurologist.  Thought the first was bad one but maybe the second would be better.  My bad.  Didn't really think it could be much worse.  I was wrong.  Hoping yet again that this next dr is knowledgeable about cluster headache.  He was listed on one of the links you included!  I know it would help my husband to feel more comfortable in taking any advice from a dr if they have a clue what he is going through.  If you don't have confidence in your dr, you can't have confidence in the treatment plan.

Lori

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