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Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Pregnant clusterhead http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1435503914 Message started by Jua82 on Jun 28th, 2015 at 11:05am |
Title: Pregnant clusterhead Post by Jua82 on Jun 28th, 2015 at 11:05am
I've been a cluster head for about five years. I am one of the "lucky" ones because I received a correct diagnosis within a week of my first attack and the first treatment I was prescribed (Verapamil) worked wonders. However, I felt like my luck finally ran out two weeks ago when I started a new cycle while 28 weeks pregnant. No drugs for me, especially when my midwife looked at me blankly and said take Tylenol and lay down. :'(. However, after spending some time on ch.com ;D I ran to the nearest urgent care armed with my research and begged for oxygen.
After the initial "you can't have CH, you're not a man" runaround I finally persuaded the Dr. to prescribe the oxygen. It was delivered two days ago and let's just say the oxygen delivery man has replaced the epidural delivery man as my new best friend. :D The first night I had two attacks that oxygen aborted within two minutes. Last night I had three. Two were gone in two minutes but the last was stronger and took ten minutes, although the pain never got above a 4-5 on the Kip scale. Compared to my usual hour at a 9, I'll take it!! I know many people have praised the powers of oxygen, but I just wanted to add my testimonial, especially for pregnant cluster headache sufferers with no other choice. And be prepared to push for a prescription. I'm not a very aggressive person, but the beast brought it out in me and I wasn't leaving that office without my prescription. By way of practical information, I live in Kansas City, MO and Apria Health is charging me $168 a month for oxygen. It is covered 100% by insurance after meeting my deductible. I haven't yet, but if we have to restructure our entire budget to make it work, that's what we will do. My husband is behind me completely. He has held me while I cried for too many nights to not be first in line to pay the bill. |
Title: Re: Pregnant clusterhead Post by Potter on Jun 28th, 2015 at 11:45am Jua82 wrote on Jun 28th, 2015 at 11:05am:
Great post. Potter |
Title: Re: Pregnant clusterhead Post by Robincw66 on Aug 5th, 2015 at 12:53pm
I was in cycle while pregnant, and eventually my Doctors put me on Namenda as its a class B drug and they felt better for the baby than the stress of the clusters. I was Headache free until about 10 weeks after delivery :)
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Title: Re: Pregnant clusterhead Post by Mike NZ on Aug 7th, 2015 at 7:18pm
Hi Robin and welcome
What are you using now as a preventive and do you have CH abortives available? |
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