I’d like first to apologize for the typos I might have because English is not my mother language.

I want to tell you that I don't do drug, not even 420. But I'm so desperate right now. I've tried Verapamil method and it doesn't work for me.

I've been having CH since I was about 15 and was diagnosed as CH sufferer when I was about 20. In the past, it lasted about 90 minutes as maximum. But this week it lasts 2 - 4 hours with maximum level of pain. I feel so week and I had a thought that "I'll take death over suffering".

After doing some research I've found that some people use LSD for CH. I didn't know what is LSD so I talked to my friends and did some research myself then I found out that it's a very strong drug. At this moment, I don't care what kind of drug it is, as long as it helps I'll try it. But I don't know how should I take it and what's the amount that helps stop cluster headache.

If you've tried this method before, please please give me advise of how to use this to stop cluster headache.

Thank you in advance. I'm so desperate, please help.

There are other preventives like lithium and topamax. Have you tried those?

Have you tried vitamin D3 as a preventive? I've gone over 3 years CH pain free using it and others have gone longer (it helps over 80% of people who try it).

Have you used any abortives? Oxygen works great - START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE.

Also try injectable imitrex (imigran / sumatriptan).

I've no experience of LSD or similar.

I haven't tried what you mentioned above. I tried Verapamil because the success rate is high but it doesn't help me.

I have an appointment with my doctor tomorrow at 8am. It's gonna be my first time talk to American doctor about my cluster headache. I was diagnosed as a "clusterhead" when I was in Thailand. I was given oxygen once in the hospital but at that time I didn't know what it for. But after reading articles and posts from this website I've learned a lot more.

How to convince a doctor to prescript me oxygen? I'm gonna have to pay $150 just to visit the doctor tomorrow. I don't know how much more it's gonna cost to get oxygen prescription.

The reason I asked about LSD because it shows very high success rate and it's not gonna cost me a lot. Seeing a doctor here in USA gonna get be broke.

LSD works like magic but is a bit "big of a hammer". Terminating a cycle or preventing one from starting with LSD is called busting. I would suggest you read START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE and then go to START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE and introduce yourself there. Lots of information to offer to your doctor as well.

I would say that minority of CH patients who treat themselves with busting, use LSD. Usually the first step is LSA (found in RC seeds, HBWR seeds) almost as effective but without those undesired side effects, "tripping".

You will get more help and advice in the message board. People there saved my life.

Thank you so much for your help!

I just went to see a doctor this morning and he completely understands my situation. Now he has his team looking for an oxygen vendor for me and will give me a call back when he found one. I am so happy. He said it's gonna cost me about $60 a month, I can live with that.

Hopefully this method is going to work for me so I don't have to try LSD or LSA method.

Thanks again for your help. I really appreciate it.

I hope that your new doctor has experience and training in treating headache disorders. One of he greatest problems we face are doctor lacking knowledge about Cluser.

Print the PDF filel, below, and share it with the  doctor and you can use it to talk about various treatments.

Verapamil is often used indoses as high as 700-900mg bedfore it becomes effective.

The most commonlly used approach to treat Cluster is:

1. Prednisone used to rapidly stop attacks.
2. At the same time, starting a long acting preventive medicine such as Verapamil. (I takes seveal days to become effective an so the Prednisone gives you relief while waiting fore the Ver. to become effecive.)
3. And a fast acting abortive medicine for stop attacks which may occur even after the first 2 meds are being used.
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If you believe the new doctor is not skilled about treating Clusster, here is how to find a headache specialist.
--
LOCATING HEADACHE SPECIALIST

1. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

2.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

3. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE; On-line screen to find a physician.

4. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

5. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
        Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.
=====================================================================
WHY A HEADACHE SPECIALIST IS RECOMMENDED


Headache. 2012 Jan;52(1):99-113.
Cluster headache in the United States of America: demographics, clinical characteristics, triggers, suicidality, and personal burden.
Rozen TD, Fishman RS.

THERE REMAINS A SIGNIFICANT DIAGNOSTIC DELAY FOR CLUSTER HEADACHE PATIENTS ON AVERAGE 5+ YEARS WITH ONLY 21% RECEIVING A CORRECT DIAGNOSIS AT TIME OF INITIAL PRESENTATION.

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I would follow the link tony only posted,i am gonna check it out,but I will tell you I had success twice doing mushrooms- it works man,there is no doubt,but you cannot do it,without knowing what mushrooms,or lsd,do to you,besides work-...Psa,did nothing for me and I personally don't like what medications do to you- but i do have to say,that when i did them,I did not have the headaches,but i skipped an entire year....

to the mods,Why is my post on this subject nowhere to be found?

Hello - I've been suffering with these headaches for over five years now. I read about mushrooms, and after a year of asking around, a client (I mix music) hooked me up with a bag. It really worked for me, and I never took enough at a time to experience any of the hallucinations or other side effects other than feeling slightly warm. They totally killed most of last seasons headaches and they continue to be more mild than before.

Also the awful days of "shadows" have not been back. I hope to get more for the September through November season this year.

I would say its a 75-90% improvement for myself. And yes - this is on top of the daily D3 and vitamin K supplements.

Even at the low doses I was taking, I have a sober spotter around just to make sure.

Josh Mayer wrote on Mar 31^st, 2015 at 11:12pm:

At this moment, I don't care what kind of drug it is, as long as it helps I'll try it.

With the amount of pain this bitch of a disease brings you, many people here have said the same exact thing.  Many of us have definitely regretted it.  I greatly encourage you to research options and ask a lot of questions about any therapy you are going to try--ask your doctor, ask us here, ask clusterbusters.   To me it seems like you are on the right track, keep going the way you are and don't make any rash decisions and I bet you will get the help you need.

-Ricardo