New CH.com Forum | |
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl
Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Why did my D levels drop so much? http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1403615923 Message started by Rumeke on Jun 24th, 2014 at 9:18am |
Title: Why did my D levels drop so much? Post by Rumeke on Jun 24th, 2014 at 9:18am
My D25(OH) in December was 89 ng/ml and this was after loading doses to kill my cycle. I went back to 10,000 IU a day along with the rest of the factors (except for calcium which seemed to interfere with my verapamil.
I started getting shadows in April so my Dr retested my D levels and they were at 65 ng/ml. I increased by dose to 20,000 a day for 2 weeks and they stopped. Back on 10,000 a day and no shadows. My question is why did my levels drop so much? I do have psoriasis so I guess that is an inflammation that might use up the D. Any ideas? Judy |
Title: Re: Why did my D levels drop so much? Post by Rumeke on Jun 25th, 2014 at 11:30am
Thanks for the response Batch! My PHP kept telling me to keep up the calcium citrate supplements since I was at the upper range. Finally told him I hadn't taken them in ages, he laughed and said well if that works...keep not taking them!
I did notice when I upped my D3 in April..my psoriasis cleared up somewhat. Seems like everyday we are finding some medical condition that D3 effects. My next blood test is the end of July...will be interesting to see where my D is. Thanks again! Judy |
Title: Re: Why did my D levels drop so much? Post by Ricardo on Jul 18th, 2014 at 10:08am
This has been a question I have had for quite a while. Why do all these Cluster heads have such low Vitamin D levels? Has anyone taken any sort of absorption test to see how much of the D they are really taking in? I've seen so many people that have had so many health problems that have cleared up once they figured out certain foods that they were allergic to that it makes me wonder if the same kind of thing could be involved here. One big thing that can happen with food allergies is not absorbing enough nutrition in your gut. To be clear, I really do not think food allergies are CAUSING the clusters, but I wonder if non-absorption of nutrients could be a player in low D levels, and I wonder if that could be triggering them.
-Ricardo |
Title: Re: Why did my D levels drop so much? Post by feisty on Jul 21st, 2014 at 1:46pm
The topic of the intersection of vitamin D-allergy-clusters interests me very much. My husband doesn't normally get a cycle in the summer but he started one a month ago. We wonder if it was triggered by a bad bout of allergies? He doesn't normally have issues with that in the summer but this year they have been bothering him.
mechanism?: more pollen -> allergy bout -> DEPLETION OF VIT D -> allergies worse -> inflammation -> cluster headache cycle initiated I found this interesting article: Allergy sufferers face little reprieve this year {sorry I guess I am not allowed to post links yet?} Quote:
Quote:
I've just started my husband on vitamins, but still acquiring the right supplements and tweaking doses. |
Title: Re: Why did my D levels drop so much? Post by Batch on Jul 21st, 2014 at 8:48pm
Ricardo,
You bring up a couple good points... For starters, there's nothing special about the cluster headache disorder that leads to a low or deficient vitamin D3 status... Better than 60% of the US population has a 25(OH)D serum concentration below 30 ng/mL and better than 95% are below 60 ng/mL... The simple reason for this is we don't spend much time out in the sun clad in a bathing suit without any sunblock... so we don't make enough cutaneous vitamin D3... Cutaneous vitamin D3 is made when the UVB in direct sunlight strikes cholesterol in the skin... It goes directly into the bloodstream so absorption is not an issue. The second point deals with allergic reactions... By definition, allergic reactions involve inflammation regardless of the type of allergen... As the body's defense against inflammation is based on the vitamin D3 metabolites 25(OH)D and 1,25(OH)2D3, the active hormonal form of vitamin D3, these metabolites get consumed a much higher rates if inflammation is present from any source or reason including trauma and surgery. If the body's overall vitamin D3 status as measured by serum concentrations of 25(OH)D is deficient... and you're a CCH'er or ECH'er in cycle... you'll get hit. Moreover... you'll keep getting hit until your serum 25(OH)D stays consistently around 80 ng/mL... That will take a sustained dose of at least 10,000 IU/day vitamin D3. Even at this dose, it can take over a month and up to two months to elevate serum 25(OH)D to 80 ng/mL. The best course of action is to go on a vitamin D3 loading schedule to elevate your serum 25(OH)D as fast as possible. People with malabsorption issues usually suffer from a lot of other medical conditions and some of these conditions go full circle causing continued malabsorption. In short, keeping the body healthy and the 25(OH)D serum concentration around 80 ng/mL, 200 nmol/L) is one of the best, safest, and least expensive ways of preventing CH... Take care, V/R, Batch |
Title: Re: Why did my D levels drop so much? Post by Bethyj on Sep 8th, 2014 at 3:50pm
I'm new to this site but find this theory extremely interesting. I suffered from CH for 7 1/2 years and was recently diagnosed correctly. I am at the end of a 6 day cycle, again. I was diagnosed with UCTD several years ago and have always connected the headaches with this autoimmune condition. With UCTD, I must stay out of the sun. It causes severe rashing, itching etc. My D3 levels are always very low. None of my docs have connected the dots on this one, yet. I had added D3 to my morning routine, but quit not long ago. I was probably not taking enough. I have several doctors that are new to my condition, so I have to go over it again and again. I just requested an appointment with my neurologist because my headaches are becoming more severe again. I will be bringing up the low D3 issue and see what he says. In the meantime, I will be getting back on D3.
|
Title: Re: Why did my D levels drop so much? Post by Rumeke on Sep 8th, 2014 at 8:27pm
Bethyj...I think you are right about your auto immune disease depleting your D reserves. I still take 10,000 iu of D3 a day and am staying about 65 ng/ml. My Dr however has asked me to go back to 5,000 iu a day because my "levels are too high". I asked him why he thought they were high when the 'acceptable' range is 40 - 100. So be aware most PCP have no clue.
Two of my daughters have chronic lyme with very low D levels and take 15,000 a day. Others have chimed in with auto immune diseases that have found they have low D...I believe you are on the right track. You may want to PM Batch with your story and what your latest D25(OH) levels are and he can help you take the correct dosage. You might as well do the whole regimen and get full benefit from the D3. Good luck with the neurologist...make sure you get a RX for O2! |
New CH.com Forum » Powered by YaBB 2.4! YaBB © 2000-2009. All Rights Reserved. |