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Cluster Headache Help and Support >> Cluster Headache Specific >> question about weird pain http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1364717690 Message started by huntinator27 on Mar 31st, 2013 at 4:14am |
Title: question about weird pain Post by huntinator27 on Mar 31st, 2013 at 4:14am
Ok first off this is my first post and seemingly first "cycle", although, its been 8 months, and so im still a bit skeptical about it being cluster headache, even though I seem to respond to regular abortives and i get the classic, intense, skull crushing pain, partially because of the events leading up to getting these headaches (knocked out with concussion and whiplash 2 years ago) and because I have a few other painful symptoms that I havent been able to find any info on and I was wondering if anyone can testify as to whether this is just unrelated, or is a good sign that i do or dont have cluster headaches would be greatly appreciated. Sorry for the long intro, but anyways, I get this pain in my nostril of the same side as I get my headaches and it makes it very painful to wiggle my nose or breath in through my nose even. Any information would be greatly appreciated, if not, another thing, what pain do you guys get that you think isn't a common symptom of cluster headaches? Also ive tried searching the forum for any info on this and I couldnt find any so im sorry in advance if theres already anither thread on this
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Title: Re: question about weird pain Post by AussieBrian on Mar 31st, 2013 at 5:38am
G'day Huntinator, and welcome. First and important, have you been geniunely diagnosed with Cluster Headaches? We ask only to ensure that any advice we offer doesn't serve only to mask something more serious.
As to the hose in the nose, I've had different times where I swear a burning pencil is being pushed into my top palate, straight through the old shnozz and directly into my eye. Can even feel the bump in the roof of my mouth! There's no two of us the same but keep asking questions. We'll help as much as we can. |
Title: Re: question about weird pain Post by huntinator27 on Mar 31st, 2013 at 12:41pm
Hey again, thanks all for the quick responses and advice. I have seen multiple doctors. The first one thought it was trigeminal neuralgia and prescribed gabapentin, which actually helped some at first but slowly became useless. The second was my general practitioner and he still doesnt know the difference between a migraine and a tension headache even, so I saw a neurologist who was pretty quick with the diagnosis of cluster headache, but hes skeptical about it too. I got an mri and a small white mass came up in the back of my skull and he said it looked related to an injury. The only problem is, ive never been hit in the back of the head in a serious way (i was punched in the temple, which knocked me out for a good 30), so im getting another mri in a couple months to see if its cancerous. All that aside, my neuro thinks the mass provably isnt related and that I should keep taking the medicine which has helped quite a bit. Another reason I believe it to be cluster is that my mother also has had a few cycles in the past so im thinkibg theres probably some hereditary connection.
Anyways, personal story aside, thanks for the input. I get that same stabbing feeling from my nose all the way up into my eye. It makes my nose very sensitive to touch. Thanks again for all the great responses, and happy Easter. |
Title: Re: question about weird pain Post by Bob Johnson on Mar 31st, 2013 at 5:39pm
Your last message is a clear statement of why seeking a headache specialist is indicated. The docs are guessing (try this in hope it works) or "I don't know...".
If you can accept your situation, because the attacks are not too frequent and/or severe, then it's your call. On the other hand, there are a number of disorders which mimic Cluster, which only a skilled doc can consider. See, Link to: cluster-LIKE headache. Section, "Medications, Treatments, Therapies --> "Important Topics" --> "Cluster-LIKE headache" |
Title: Re: question about weird pain Post by huntinator27 on Apr 1st, 2013 at 8:53pm
Woops, sorry about the crazy late repost, but anyways thanks for everyone showing me all these awesome threads with great information. Ill check them out in a little once I get the time but im a little busy.
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Title: Re: question about weird pain Post by huntinator27 on Apr 1st, 2013 at 8:57pm
O also, dont know why this slipped my mind but, im on verapamil and sumatriptan which make a world of difference, but not quite a satisfying amount, which im sure all of you can agree with. Ive always wondered about o2 im going to look into that link. Thanks for the post.
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Title: Re: question about weird pain Post by wimsey1 on Apr 2nd, 2013 at 8:04am
O2, as described in the link, along with chugging an energy drink is a powerful and consistent abortive. Go with it! blessings. lance
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Title: Re: question about weird pain Post by apo8863 on Apr 6th, 2013 at 12:27am
As far as your question about the pain in your nose, I get the same thing frequently with my cluster headaches. Most descriptions seem to focus on the excruciating pain behind and around the eye, which I always experience, but I haven't read as much about pain in other areas. For me, these forms of pain are a burning in the nostril on the same side of my face as the headache and incredible pressure and pain along my cheekbone as if it is being shattered. Sometimes the pain even radiates into my jaw, again on the same side as the pain around my eye. Two of my neurologists have assured me that these aren't uncommon traits of cluster headaches, just as in addition to swelling around the eyelid and corner of the eye, you can get swelling along your cheekbone. I do and have considered more than once dusting some purple, brown, and green eye shadow over those areas as it looks like I've gotten into quite a bar fight, which makes for a better story than an explanation of what the heck a cluster headache is as it doesn't sound nearly as scary as it is.
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