I think we should be more public than we are. Facebook, Ch.com...this is not going to get us the help we need! I'm in Tallahassee Florida and I work across the street from the Capitol. Let's all go to our respective capitals and notify your local news. We have to make some noise people! >:(

While I appreciate your enthusiasm, we don't represent a high enough percentage of the voting population to get the attention of any politician.  About the only way you could get a politician to in some way support CH sufferers is if he/she had them or was related to somebody with the condition.

We also don't represent enough money for big pharma to get involved.  Pretty much all progress we make will be through grassroots efforts, Doctors and researchers who take an interest in the condition, and charity.

Just my $0.02

Some of us have been making noise for awhile.

The following link has all the details and registration information for this year's trip to Washington DC.


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BobW

"HEADACHE ON THE HILL"

April 8 & 9, 2013

CLUSTERBUSTERS

We're asking US citizens to participate in this event. Change for all cluster headache patients, worldwide, is our motivation!  In 2012, twelve cluster headache patient/support persons joined our DC Advocacy team.  Let's double that number in 2013!

Visit Our Website!
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         CLUSTER HEADACHE SUFFERERS,

JOIN US IN WASHINGTON, D.C.
Making Our Voices Heard in D.C.

We NEED more cluster headache research and more effective medical treatments!  Clusterbusters will be returning to Washington with The Alliance for Headache Disorders Advocacy for our second year to meet with congressional leaders on April 8-9, 2013.  Together we will push for senate hearings on the need for increased funding for headache research.

  Three Ways That YOU Can Make a Difference!

1.   JOIN OUR ADVOCACY TEAM IN WASHINGTON

Make YOUR voice heard!   We need people from as many states as possible to join us in D.C.. Do you think we need more reasearch and better treatment options for cluster headaches? We are inviting people with a with a story to tell and a passion for making a difference in the lives of cluster headache sufferers to join us in D.C..

Hurry!  Deadline to register to participate in "Headache on the Hill" is March 8th, 2013!  This is to allow ample time to schedule appointments with congressmen and senators. 

The Alliance for Headache Disorders Advocacy is offering one night of FREE lodging per participant.  In addition, a limited number of partial travel scholarships for the "Headache on the Hill" event are being made available to specifically get a cluster headache patient or support persons "voice" on the team to D.C.!   

2.  WRITE TO YOUR REPRESENTATIVES

Watch for our event updates to participate in the "Advocacy Letter" campaign.  We urge everyone to participate! . Our goal is to send a strong message to all representatives, nationwide.  We hope to flood the capital with thousands of on-time letters supporting "Headache on the Hill"!


3.  SEND A DONATION

Your tax deductible donations are not only appreciated, but essential to our continuous research, education and advocacy efforts.  Clusterbusters works hard to advocate on behalf of ALL cluster headache sufferers - regardless of their method of treatment.  Thank you for supporting our efforts!

REGISTRATION

After receipt of your information, our Advocacy Team will email you additional trip details.  Remember, there are 2 registration forms.  One with Clusterbusters AND with The Alliance.  We look forward to another great trip with you!

 
Register Now!


Questions? Email us at clusterheadache@ymail.com