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Cluster Headache Help and Support >> Cluster Headache Specific >> Introduction http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1360341817 Message started by BeatTheBeast on Feb 8th, 2013 at 11:43am |
Title: Introduction Post by BeatTheBeast on Feb 8th, 2013 at 11:43am
Hello all,
First post, but I have lurked for a couple of years now. A little about me: - 32 yrs of age - Episodic - Cycles used to be every 24 months from oct - dec but recently changed (I believe) to every 12 months Jan as of last year. - Have been suffering from clusters for roughly 10 years, but didn't know I had clusters until around 4 years ago. - I normally get CH every other night when I hit REM sleep and shadow the day following CH. - Triggers I know affect me - Alcohol, 5-HTP, Opiates (lortab), MSG - Current abortives - red bull, coffee, oxygen (had to get welding tank as my neuro wouldn't prescribe O2). This is my first time using O2 and it has worked wonders! - No other meds taken, just doing the D3 regimen and some busting with seeds. I am on week 6 of my current cycle and I believe it is dying down. I got hit with one of the worst attacks in my 10 years on Jan. 28 (Kip 10). At this time I did not have O2 and suffered for a good 3 hours. I was able to get O2 this week and although I seem to be on my way to beating the beast, I had a couple of small hits where the O2 aborted in 5 minutes or less. Thank you to all on this site who have given us knowledge and information on the powers of O2. I will now have it in my arsenal going forward. The D3 regimen seems to be working well and honestly, I haven't felt this good in a long time. Not sure what my thoughts are on the busting at this time. Anyways, I just wanted to introduce myself and thank all of you who have put this site together and contributed to make it what it is. I went a long 6 years before self diagnosing myself after many doctors and medications failed. See you around! Jonathan |
Title: Re: Introduction Post by BobG on Feb 8th, 2013 at 6:11pm
Welcome to the board jonathan.
You say you are self-diagnosed and, to me, your description sounds like clusters. It might be a good idea to find a doctor who agrees and get it in writing and in your medical records "just because" for any future need such as insurance or getting fired from a job. |
Title: Re: Introduction Post by Samiam on Feb 11th, 2013 at 7:39am
Welcome, Sorry that you have to go through these but at least now you have a place for support and to receive the latest information to help get you through the cycle. I have had them for over 30 yrs from the age of 17 on. You will learn that your cycles can change at any time without notice. I also like you learned that anything that messes with Serotonin will trigger me. 5http is just one of them.
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