I'm doing good.  I have not had any real shadows for about 4 days now.  I didn't need the O2 but I do have two E tanks on hand with my own regulator. I did find a place that will allow me to self pay for two M tanks and two E tanks just in case I need them but that was not easy to get. Doctor gave me what ever I needed the Companies were the problem.  I have applied for and was accepted into the patient assistance with the Imitrex so I will be getting 18 nasal sprays every 3 months for free  However I only asked my Doctor for 18 with one refill.  I will also have them on hand in case.   The program is good for 1 yr then you need to reapply.  They allow 18 every 3 months.

GlaxoSmithKline (START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE) (1-866-728-4268)  You can read more about it on the website.

I have always taken D3 @ 5000 ui and Omega 3 @ 1200, Magnesium I've taken about 1200 mgs.  What I have done when I read the Batch regiment was up my Vitamin D3 to 10,000 Omega to 2400 and my Magnesium at night to 1600.  I also did a Steriod dose pack for 6 days and I seem to be good.  No root canal needed.

I'm due for full blood work on Feb 5th which my Vitamin D3 will be part of that along with B12 due to using Metformin which depletes B12  I will need my A1c and my thyroid levels done also, full chem panel and DHEA levels.  I will report back what my levels are to see if maybe I got my levels up to the correct level.

I have stocked up on the D3 and the Omega 3 @ Costco since it has instance rebates last month and will continue with this.   I never have gotten a flu shoot and rely on the D3 to help with my immune system anyway.

I think what I had were just Migraines which lasted over a week but I knew for sure when they hit the right side It was not my normal cluster cycle Kips only around 3-4. They have stopped also and did not need to take any abortive meds other then the steroids.

Damn, you've got your ducks in a row, way to be your own best advocate. [smiley=thumbup.gif] Thanks for the info on the med assistance, hopefully others can take advantage of it.

Joe

Hi Joe,

I hope the info can help someone else.  Many don't realize there is help out there.

That is good news, but one question. Why the nasal spray? Would it apply to the autoinjectors as well? lance

Hi Lance,  I prefer the nasal and that Is the only drug they cover.  I already take 2 shots a day of Byetta so I really didn't want to and another shot in the mix.

Hi Lance,  I prefer the nasal and that Is the only drug they cover.  I already take 2 shots a day of Byetta so I really didn't want to add another shot in the mix.

Hi, I haven't been on this site for a couple of years. I've had clusters 33 years, but have know gone 5 years with no clusters. THANK GOD! But I have been starting to feel like they are trying to come back. I've been getting this slight pain in the side of my head that the pain allways starts. Over the years I've tryed everything and the only thing that works is Imitrex injections. does anyone know long Imitrex is good after it has expired? I know it's good for at least 6 months after, but I have about 12 left that expired back in 2008. I hate to waste them, but I don't know if they are good or safe. Also where do I apply for the Imitrex program? Thank you so much for being here.   Bob :-?

As long as they're not contaminated, the only thing they might be is slightly less effective.

Welcome back Bob, please take a minute and read this new regimen. If it works as well for you as it has for 81% of the people trying it, you won't need the imitrex:

Follow this link to the medications section of this board and read the post 

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

It’s a vitamin/mineral/fish oil supplement, all over the counter stuff. It’s up to an 81% success rate of those who try it and respond to the survey so you’re just shooting yourself in the foot if you don’t give it a shot. I’m 3 years pain free on it after a 30 plus year track record with episodic CH. Best of all, it’s healthy for you even without CH!


Joe