the thing is sometimes i would like those that take c.h lightly ..i would like to posses my buddy at the tip of my finger and when they play c.h down , i could therefore touch there heads and let them play with my buddy for a minute or 2 lol ...no i wouldnt really i wouldnt wish my buddy on my worst enemy ...i written a song that describe the alienistic character of my feelings towards c.h and it is as follows...
My coldest winters are felt in the summer heat.
A hot day in December im exposed tryna catch a breeze.
Cloudless skies still im immersed on dry land.
The ground i walk upon at times like quick sand.
It slowly pervades as my barricades disinclined.
Nothing left to say when its out of sight out of mind.
I stay eager for the fray like an axe to the grind.
Then we split and part ways a new path i must find.

keep calm carry on through our burdened load my friends ...trials and tribulations and indeed we are tested more than most but less than some ...we are here when we need each other ...stay strong

I've wanted to do it before to migraine sufferers and those other people who don't believe. I would want them to go through quite what we do, but a "taste" I feel would do wonders for the non-believers. No, I would never wish them onto to people to to have cycles. Its just too much pain to wish on anyone. And of course, I'd never want my supporters to feel it. I'd just rather them to have to take my word for it.

I think a minute at K8 would be enough to get the point across.

japanzaman wrote on Dec 16^th, 2012 at 8:43am:

I think a minute at K8 would be enough to get the point across.

Maybe this is something neurologists should experience during their training. The change in attitude would be amazing, like not making people wait months for a CH related appointment.

I kicked this idea around in my head many times. It wasn't until I replied the other day did I actually put some real thought into it. For most of us, dealing with the pain is only really 70% of our nurden. Fearing our next attack is harsh. These people to "test drive" a CH would need them for atleast a week. To know what its like to be on your 3rd night of non-sleep and being terrified to lay down the next night of fear of the hour or two shortly after you fall asleep. To know what its like to be caught out somewhere that its impossible to brace yourself for the one that's beginning to shadow you. To know how it feels to be between two towns on the interstate, pulled over on the side of the road bending your steering wheel in the midst of a K-8 when a state trooper pulls behind you and begins to ask you questions (that you MUST answer. How when you tell him that you get cluster headaches, he only demands for you to get out of the car for a field soberiety test. As he shines his flash light in your eyes and demands you to not lean against the vehicle. All the time forcing you to answer his questions. Yeah these are really fun times, but after careful reconsideration.....I'd like to retract my comment to a HELL NO I wouldn't. The only way people would really understand is through a tough cycle. One that puts a lot of bearing on your life like you have never imagined. Then, maybe they would understand.

Quote:

let them play with my buddy for a minute or 2 lol ...no i wouldnt really i wouldnt wish my buddy on my worst enemy

Yes, I would. There was a guy in Connecticut I'd wish your buddy on. But, he took the coward's way out.

Yeah, I don't think so.  The only benefit is for me to feel better about what someone else thinks of me.  That is going to happen in life no matter what we are talking about when only side is experiencing something.  Not to mention we all handle things differently.  Would it change things for us if they felt what we fell and still felt like we were overreacting?  I know it wouldn't change things for me.

That being said, I have considered if there would be a benefit to letting people see a full K10 hit, but if someone doubts what we are going through, then they are going to doubt what they see too.  That is what makes our supports so special.  They feel it with us and it comes from what they feel for us.

If given the power to make the decision of letting somebody else experience CH's...Yes I would! 

-Gregg in Las Vegas

The only way people would really understand is through a tough cycle. One that puts a lot of bearing on your life like you have never imagined. Then, maybe they would understand. [/quote]

this is soo true what would a quick flirt with the beast accomplish?? nothing exactly good point...but still it would be great haha ...when people who get migrains say oh ...i get them ...or those that say ...you should lay off the coffee....for that split second ....i had this one friend that was in a car crash and to get maximum compensation he started saying he suffered cluster headaches ....after actin all friendly and acting like he actually gave a damn about my diseace..when he was asking me i told him what it was like the pain involved everything...when he told me i said to him dont take this disease lightly ....and made him aware of his ignorance ...but sure i would have liked him to dance with the devil...pure ignorance though...i couldnt believe it..!!

Ive been lucky with doctors.  Many of my friends here have NOT. i think a 30 seond KIP 10 would help them be better doctors.

I have found, when I call them "suicide headaches", or the worst pain known to medical science, they either want to know more or shut up.

Another description, any other way to feel this much pain would make you unconscious. I believe that.

Don