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Cluster Headache Help and Support >> Cluster Headache Specific >> Can consumption of sorbitol cause cluster...
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Message started by MattyAA on Nov 18th, 2012 at 7:44pm

Title: Can consumption of sorbitol cause cluster...
Post by MattyAA on Nov 18th, 2012 at 7:44pm
...headache cycloe or cause singular headaches at all?

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I am not sure, but the "Alcohol" part scared me so much, especially that I consumped it.

Title: Re: Can consumption of sorbitol cause cluster...
Post by Potter on Nov 18th, 2012 at 8:46pm
Did it give you a headache?

          Potter

Title: Re: Can consumption of sorbitol cause cluster...
Post by MattyAA on Nov 18th, 2012 at 8:53pm
Not yet, there is hope sorbitol doesnt give a headache, but thought if peeps in generals are triggered by it.

Title: Re: Can consumption of sorbitol cause cluster...
Post by Bob Johnson on Nov 19th, 2012 at 8:00am
Much confusion here on the difference between "cause" and "trigger". The CAUSE of Cluster appears to be a small part of our brain, the hypothalamus. Unless it is not working properly, we can't get Cluster.

For a large % of Cluster folks, IF you have a defective hypothalamus AND you drink alcohol, it may trigger an attack sometimes.

Alcohol is not the CAUSE of Cluster but it can allow an attack to develop. IF the hypothalmus was not defective, then alcohol could not trigger a Cluster.l

Confusion, too, because there are many kinds of alcohol. It's the kind we drink which is the largest source of attacks. So, if using sorbitol has not lead to an attack, then you don't have a problem. (Being "scared" is the bigger problem. It would be useful to learn how to block such reactions.)

Title: Re: Can consumption of sorbitol cause cluster...
Post by MattyAA on Nov 19th, 2012 at 12:44pm
Only Oxygen and LSA works for me, nothing else that I have tried with my neuro.

and yes trigger not cause, but I meant cause of a triggered attack.


Title: Re: Can consumption of sorbitol cause cluster...
Post by Melissa on Nov 25th, 2012 at 7:19am
Sorbitol is a sugar alcohol, not the kind you drink but a hydrogenated form of carbohydrate.  It could be a trigger, but I believe it's on a person by person basis (i.e. some people are triggered by certain smells, foods, and some are not).

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