How do I find a good neuro? I waited 4 months to get in to see my new neuro which I got from the ouch website list of doctors. And he charged me $500 and said I have cluster migraines and I said are they clusters or migraines and he told me they are the same, that clusters are migraines. Make sure I keep taking my meds as directed and oh well ur having 8 a day I can't get u in until nov 29th. In the meantime my once helpful pcp says its too complicated to try to treat me. Call the neuro. So now I literally have no helpful dr. Anyone kno eRw a doctor in or near Indiana? Help Please!

Just offhand, I'm sure U of MI in Ann Arbor has complete facilities.  Dr. Saper and others practiced there.  I know it's a ways, but pretty much a sure bet.

I had their CD and booklet laying around here for years and recently threw them away.  Someone here will have more info, I only have positive info for a Detroit area Headache Institute, they treat clusters.

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

I went to Michigan Headache & Neurological Institute (MHNI) ( mhni.com)  in Ann Arbor a couple years back after a cycle had had the best of me going on 4 months at that time.  I was seen by Dr. Gordon  who worked with Dr. Saper.  Was nice to have a doctors who actually understood what a cluster was that is for sure.  Was hospitilized at their Head Pain Unit at Chelsey Community Hospital for 4 days also, I was put on heavy doses of verapamil, Lithium, melatonin, Prednisone, and o2. Cost a fortune even with insurance and will need a doctors refferal.  Would I do it again? prob not. Think I needed it at the time maybe for mental sakes after 4 months of hits lack of sleep, lack of understanding from work and others. Did they cure me ? No still have em, did the cycle finally stop? yes. Would they of ended if I did not go? Yes, most likely they always have.
Having to attend nightly meetings at the hospital when admitted with ladies who get their period migranes  or having  a doctor telling me how to see and breath through a migrane to find a "Happy place to go to" just made me more angry.  Plus when they admitted me the nurse gave me a regular mask for my o2  with holes on both sides or a nasal canual as options (no rebreather mask even WTF had to ask for one)
Not sure what treatments you are going with now and where you are at mentally with your head  but they got me in pretty quick once I had my refferal in if you are looking for a close location to Indiana were your neighbors here in Michigan. I live 4 hours from Ann Arbor and made my appts every week for about 2 months straight at that time.  All in all I know works for me  and is all I use now is o2 for abortive,  Prednisone & mix of melatonin D3 and ROCKSTAR to break it up and give me a break in a cycle and waiting to turn 70 for a preventative.  Hope this helps and hope I do not sound to negative just been up for a month now and get cranky and need to vent when coming down from the prednisone  ;) Wishing all PFDN
Bri Bri

LOCATING HEADACHE SPECIALIST

1. Search the OUCH site (button on left) for a list of recommended M.D.s.


2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

4. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE; On-line screen to find a physician.

5. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

6. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
        Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.