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Cluster Headache Help and Support >> Getting to Know Ya >> So now I have cluster headaches? Seriously? http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1351165678 Message started by Larkspur111 on Oct 25th, 2012 at 7:47am |
Title: So now I have cluster headaches? Seriously? Post by Larkspur111 on Oct 25th, 2012 at 7:47am
Hello!
I'm living in Offenbach, Germany via Montreal Canada via Ottawa Canada. I had my first headache at the age of 4 which was diagnosed as migranes with aphasia (I can't speak or write in any language but I can hear and understand clearly). I don't remember my first migrane headache but later I can say that they also came with some numbness. I would have them once or twice a month. At first, doctors thought they might be seisures but the brain scans have been and are clear. I was perscribed Imatrix when I turned 19 but was too afraid to use it (I have allergies to Opiates and ASA) plus I'm pretty good at stopping them before it all goes wrong and I end up at a hospital because some well meaning person thinks I'm having a stroke. Avoiding the hospital when you can't speak and have drug allergies is vital because no one ever checks your medic alert. My migrains all but dissapeared in my early 20ies (I still do get them but very rarely). After a killer headache that wouldn't go away back in August that lasted about 4 hours, I decided to see a doctor. Naturally, being a migraine sufferer for so long I choose to see an eye doctor. Well the headaches weren't quite like my migraines and they started with left eye pain, then my eye would get red and swell, then my left nostal would stuff up and finally swelling at the base of my scull. So it must have been my eye glass perscription was off. We had a nice chat and he sent me to the neuro with a note about cluster headaches. I will say I'd never heard of cluster headaches before and I seriouosly dislike neuros as drugs and scans are not my first choice for controlling anything. This morning I saw the Neuro and he said cluster headaches and now I have a perscription for the scary drug Imitrex and Lidocain. After reading a bit this morning, I can accept that. I can clearly remember my first cluster headache as they are newly called. I was 21 and sitting with my neighbour watching tv. I had a sudden headache and touched the back of my neck as it was suddenly warm and found a tennis ball size lump. My neighbour insisted on taking me to the hospital. We walked as at the time I was a poor student in Montreal. In the emergency I saw a neuro who said he had no idea what it was as I was probably stressed and to go home and take a tylenol because they weren't going to give me anything stronger. I had mild headaches on and off for nearly a month after. I remember it really well because it was the last time I went to the hospital for a headache. They made me feel like a junkie. That was 14 years ago. I'm at a loss of what to do next as I told the neuro I get these headaches 2 times a year for 2 weeks at a time in the fall and spring. But this is only somewhat true as I get really, really, really bad headaches twice a year. I get what I would consider mild headaches with confusion on and off for two weeks a month. For them 1000mg of Tylenol keeps them at bay. after 31 years of headaches I don't know if what I consider mild is actually the case. My husband had his first migrane last week and all I could think was 'man we're going to the hospital for a little headache'. When the doctor talked with me he made it seem like it was pretty serious. So now I'm wondering if maybe I should re-evaluate how bad my headaches are. My questions are: with cluster headaches is there a way to be pain free? Is there anything non-drug related that I can do for prevention? Are there triggers with CH like migranes (the doctor said no, but I'd like to hear real suffers on the issue)? Besides the typical CH stuff, I get some speech problems too, anyone else? Man that was long. Thanks for reading my babblings. PS it felt good to get it out, I've actually talked to anyone besides a doctor about it. |
Title: Re: So now I have cluster headaches? Seriously? Post by ttnolan on Oct 26th, 2012 at 2:56am
Yes there is a way to kill the pain, easy and drug free like you want. Read up on the oxygen info link on the left. I agree with Bob, your headache period is realitively brief, so this good abortive may satisfy your needs.
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