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Cluster Headache Help and Support >> Medications,  Treatments,  Therapies >> Greater and Lesser Occipital Nerve Block
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Message started by ClusterEd on Oct 24th, 2012 at 12:13am

Title: Greater and Lesser Occipital Nerve Block
Post by ClusterEd on Oct 24th, 2012 at 12:13am
This afternoon I had the greater and lesser occipital nerve block procedure performed.  I was completely numb for the first 5-6 hours and shortly after that the lidocaine/bupivicaine started to wear off from a skin surface perspective.  I am still able to feel the pain although today it's not as bad.  I was told that would likely fade with the anesthetic.  I was told it was take 2-7 days for the steroid used to take effect.  At this point I have experience 2 CH attacks since the procedure, first being minimal, the second, being much closer to the pain rate before the injections.

I am very hopeful and fearful at the same time.  If this doesn't work idk what I'm going to do.  I cannot stand the amount of pain that occurs at regular intervals.  My doc is hesitant to prescribe my any pain medications at this point, I have received Tramadol 50mg tabs, to take every 8 hours PRN.  It's sort of pathetic that it's not working.

I am looking into getting a O2 tank and mask but won't be able to afford it until the end of November, so unless this 3 month cycle ends or obviously switched to chronic it may be too late or insufficient medical care.

I have an appointment in Mid-November to review and I'm going to ask for something to aid with pain relief.  After three months of little success, I'm about to freak out, however I do not want to appear drug seeking.  It's a slipper slope.  My first PCP labeled me as addiction risk because she wasn't informed of cluster headaches, and ever since then it has haunted me.   In my state doctors and view a prescription history and it's obvious that I'm not shopping around for medications. 

How do you deal with doctors when you're obviously in massive pain and they're sort of dicking you around (sorry for language; but for lack of a better work)

Thanks everyone,
Cluster Ed (Eddie/Edward)

Title: Re: Greater and Lesser Occipital Nerve Block
Post by Skyhawk5 on Oct 24th, 2012 at 1:17am
Tramadol is a pain med. Most of us have tried pain meds and most have found they don't work for CH attacks. Not even Morphine worked for me.

Everyone on this website deals with CH, some for many many years so we do know what works and what doesn't. We don't just say Narcotics don't work for the heck of it.

Fighting your CH is your battle. Using the good advice from this site can make it much easier to deal with.

Don

Title: Re: Greater and Lesser Occipital Nerve Block
Post by ClusterEd on Oct 24th, 2012 at 2:53am
When I have had to  go the ER, I usually get an injection of a pain med.  Dilaudid if my memory serves.  We've also tried Stadol, Demorol, Morphine... etc.  Not many work, but the Dilaudid injections do help to block the pain for the attack at hand, but does little for a lasting effect as it's half life is fairly small. 

I have tried other medication like Celebrex, Gabapentin, and Toradol Injections (at home).  None of them have worked and Celebrex also caused a fever for me.

I'm still up because I'm afraid to go to bed tonight, after the injections across my entire head, face, and neck.

What do you use?  The problem is that I have not found a proper abortive medication that will arrest and attack.  Triptans have also caused allergic reations so sever i would not try them again (SubQ Inj, Tablets, and IN sprays).  I have also tried the Lidocaine solution for nasal use to hit a plexus of nerves within the lining that would abort.  Did nothing but burn my nose and throat.

Title: Re: Greater and Lesser Occipital Nerve Block
Post by wimsey1 on Oct 24th, 2012 at 12:27pm
If all you say is true, then you must find a way to get O2 (a proper setup) and hit the energy drinks along with the oxygen at the first possible moment. You don't mention preventatives either except for the nerve block. It worked for me after 7 days; here's hoping it will for you, too. God bless. lance

Title: Re: Greater and Lesser Occipital Nerve Block
Post by ClusterEd on Oct 24th, 2012 at 1:50pm
My preventative meds are Topamax and Verapamil.

Title: Re: Greater and Lesser Occipital Nerve Block
Post by CDog on Oct 24th, 2012 at 11:25pm
I sent you a PM

Title: Re: Greater and Lesser Occipital Nerve Block
Post by ttnolan on Oct 26th, 2012 at 3:57am

ClusterEd wrote on Oct 24th, 2012 at 2:53am:
What do you use?  The problem is that I have not found a proper abortive medication that will arrest and attack.

Answer: Oxygen correctly administered.

Skyhawk5 wrote on Oct 24th, 2012 at 1:17am:
Fighting your CH is your battle. Using the good advice from this site can make it much easier to deal with.

Nuf said.

Title: Re: Greater and Lesser Occipital Nerve Block
Post by LasVegas on Oct 26th, 2012 at 2:58pm
Based on what you wrote in this thread and others i've read by you, o2 is your best (and only) abortive option!

-Gregg in Las Vegas

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