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Cluster Headache Help and Support >> Getting to Know Ya >> Hi everyone
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Message started by PeacefulChaos on Oct 20th, 2012 at 7:10pm

Title: Hi everyone
Post by PeacefulChaos on Oct 20th, 2012 at 7:10pm
Hello everyone. Let me start by saying that I have never met another CH and was taken back by the existence of this community.
I have suffered since I was 18 for 10 years now and am luckily episodic. As a younger man I was not properly diagnosed and could not afford treatment. Somehow I made it this far and am fortunate to have an ample supply of Maxalt-MLT that generally works "if" taken in time but have tried everything from a-z (amitryptaline to zomig) and everything in between. Ive replaced punching myself and headbanging with brisk cardio (bike or eliptical) and am grateful that it usually helps.
When I began reading other peoples experience I wanted to cry because I knew exactly how they felt and that I was not alone.
Anyways, I am happy to be here and am generally looking for the positive sides of being a "survivor" if you will, of what we go through.

Title: Re: Hi everyone
Post by AussieBrian on Oct 20th, 2012 at 9:38pm
G'day PeacefulChaos and welcome home. Alone you ain't.

Title: Re: Hi everyone
Post by Bob Johnson on Oct 21st, 2012 at 11:15am
Please tell us where you live. Follow the next line to a message which explains why knowing your location and your medical history will help us to help you.

                       CLUSTER HEADACHE HELP AND SUPPORT › GETTING TO KNOW YA › NEWBIES, HELP US...HELP YOU
==================================

If you are asking for suggestions re. treatment, etc., please give us a history of past treatments: med, dose, duration of use, outcome, etc.

Explore the butttons, left.

Title: Re: Hi everyone
Post by ttnolan on Oct 23rd, 2012 at 4:27pm
It doesn't sound like you have found effective treatment for your CH? I would trade in the brisk cardio for a good oxygen set-up. Read the oxygen info link on the left. And Maxalt... pretty much useless for CH. If pursuing relief with triptans, in general pills are useless... it is too little too late. Imitrex injections, or something in a nasal spray will work better.
As Bob said, if looking for help/suggestions, tell us a little more about yourself, doctor and treatments tried.

Title: Re: Hi everyone
Post by wimsey1 on Oct 24th, 2012 at 12:20pm
For what it's worth, dittos to the welcome and the advice above. No, you are not alone, and we do understand. You won't hear us say "yeah, I got migraines too, that's when I started sniffing banana peels. You oughta try it!" But do feel free to ask any questions you might have. God bless. lance

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