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Cluster Headache Help and Support >> Getting to Know Ya >> New from Montreal, Canada
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Message started by PatrickMtl on Oct 17th, 2012 at 11:11am

Title: New from Montreal, Canada
Post by PatrickMtl on Oct 17th, 2012 at 11:11am
Hi there,

been browsing the site for a few days now, following a new episode of headaches, first in 2.5 years if I can remember well.

If I recall, my first encounter with those was in my early 20s (am now 42) and initially I thought they were just really bad headaches.  Eventually got some Imitrex which seem to work to some extent.  My episodes have usually been fairly distanced (2-3 years apart) and last a couple of weeks from what I remember.  I think most of the episodes were in the period between October and January time of the year. 

Most recent episode started about 10 days ago, I seem to have one CH every other day with some 'warnings' in between but not the full fledged thing.  Just got a new prescription of Zomig and tried that last night.  Went away after 30 minutes.

Am trying to get an appointment with a neuro here in Montreal to have a better diagnostic something more effective than the Zomig.

Fortunately, from what I can read my CHs are not as bad as a lot of you on this forum, but they do ruin my nights and the following mornings... 

Thanks for reading
Looking to hear from anyone here in Montreal or around


Title: Re: New from Montreal, Canada
Post by ttnolan on Oct 17th, 2012 at 2:18pm
Welcome to the board Patrick. Sorry you have to be here.
I would suggest oxygen if you don't have it, follow the oxygen info link to the left. For most of us this is the best abortive out there, 5-10 minutes and it is gone, no side effects.
As for the zomig, pills are usually too little too late for us, the Imitrex injections work well. The triptan nasil sprays also work, just not as fast.
Melatonin for the night hits, 9-12mg usually helps.
You will want to look for a preventative medication also, verapamil, lithium, topomax are common ones.
Read all you can here and ask lots of questions, knowledge is power against the beast.

Title: Re: New from Montreal, Canada
Post by Bob Johnson on Oct 17th, 2012 at 4:18pm
The PDF file, below, is useful as a tool to discuss options with your doc and it gives the most recent evaluations of effectiveness.

Print the whole thing; study it before the visit so that you can ask some specific questions.
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=downloadfile;file=THERAPIES-_Headache_2011.pdf (96 KB | 16 )

Title: Re: New from Montreal, Canada
Post by Guiseppi on Oct 17th, 2012 at 6:46pm
Welcome to the board, ditto the advice from above, second the motion to check out the oxygen link. I go from onset of attack to pain free in about 6-8 minutes. It must be used correctly or it's worthless so take a second and check out the link.

Joe

Title: Re: New from Montreal, Canada
Post by Skyhawk5 on Oct 18th, 2012 at 10:12pm
Welcome to CH.com Patrick,

The number one abortive for CH is Imitrex injections, the inhaler is next number two is pure Oxygen from tanks and specific equipment. CH is a very rare condition, so most Doctors know very little about proper treatments. This requires we learn what the proper treatments are, ourselves.

Most of us end up teaching our Doctor's. CH demands our attention so you must teach yourself to be sure you're getting proper treatment. The best treatments are not common medical knowledge, and many of us have taken some if not all of our treatment into our own hands.

Good Luck, Don

Title: Re: New from Montreal, Canada
Post by PatrickMtl on Oct 19th, 2012 at 8:37am
Hi, thanks for your replies.

Ended up at the hospital yesterday as I just could not handle the crisis that started around 7pm.  First time it is so bad for me.  Bad news is I had to suffer through it and by the time I saw a doctor the worst was over.  Good news is I should get some follow up by a neurologist along with a CT scan soon.

Doctor I saw says that I should see the neuro before getting  prescription for Imitrex injections or some O2 at home.  In the meantime, I have the Zomig nasal

Have a good day all

Title: Re: New from Montreal, Canada
Post by PatrickMtl on Oct 26th, 2012 at 9:00am
Coincidence or not ?

I started the Vitamin D (3000-4000 / day) + Cal/Mag on October 18th.  Worst attack was that same day at night and I ended up at the emergency.  Amazingly, since then I only had 1 significant attack which lasted only 30 minutes (took 1 Red Bull and was about to use the Zomig Nasal Spray for the 1st time when the attach stopped).  Since then (5 days now), I have had nothing to report expect some mild headaches and shadows.

Have a 1st appointment with the Neuro on Nov 5th.  Will discuss Vit D and Oxygen with him, curious to see what he thinks

Have a good day

Title: Re: New from Montreal, Canada
Post by Skyhawk5 on Oct 28th, 2012 at 1:11am
Even if things are getting a little better, I would still keep that Neuro appt. Sounds like the Vit. D may be helping. Good Luck..

Don

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