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Cluster Headache Help and Support >> Medications,  Treatments,  Therapies >> Topimax and Depakote Failure
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Message started by Clusterman59 on Oct 12th, 2012 at 12:39pm

Title: Topimax and Depakote Failure
Post by Clusterman59 on Oct 12th, 2012 at 12:39pm
It is with great disappointment that I am going to give up on the Depakote and Topamax as the Depakote proved to be to much and just knocked the tar out of me. I was taking 1500mg daily along with 400mg daily of Topamax but had taken the Topamax for about a year on its own without good results.
At this point I think I am going to detox my system and treat my CH with an abortive approach using Oxygen and energy drinks. After detox I am going to give vitamin D3 a shot and see how that works.
That is the plan at this moment anyway?.....Johnny

Title: Re: Topimax and Depakote Failure
Post by Guiseppi on Oct 12th, 2012 at 12:50pm
Sounds like an okay plan! Down the road take a look at Lithium. It's been my primary prevent for well over 20 years. Currently blocks about 60-70% of my attacks. What I like about it is the lack of any side effects.

On the other hand, I started the original D-3 Regimen during a horrible cycle about 2.5 years ago when even oxygen was failing me. I've modified it as Batch has changed it and have been cycle free for about 2.5 years. Maybe it's coincidence, but I aint about to stop taking it. Hope it works as well for you.

Joe

Title: Re: Topimax and Depakote Failure
Post by lydia nichole on Oct 12th, 2012 at 1:01pm
After Topamax, Lithium, Verapamil, Neuronton and cymbalta <--- i know thats a wierd one failed and i couldnt take triptains, I was having over 30 CH a month for yearssss ! Chronic fpr yearssss ! i finally can control. i am on no prevenatives but i can control and that is cutting down on  my attacks. I use Nasal Lidocain spray 2% 2 sprays on side where i have pain, zofran, 1mg Xanax (helps calm me down being i feel like im being stabbed) and then while waiting for Xanax to kick in i have the numbing already in effect i start my oxygen. if i cannot get it under control with the oxygen after 15 -20 and im at a 7+in pain i take a 2mg dilaudid very rarely though. i cannot take triptains. I think a anti-anxiety may help alot of people. i think me going into panic mode during the begging of my CH attacks would make them worse and longer.

Title: Re: Topimax and Depakote Failure
Post by lydia nichole on Oct 12th, 2012 at 1:02pm
good luck i hope your plan works=) best wishes for PF days !

Title: Re: Topimax and Depakote Failure
Post by ttnolan on Oct 12th, 2012 at 4:06pm
Sorry to hear the latest treatment plan tanked... just a few more drugs you can take off the list now. If you get tired of the pharma, or you get to the end of the list with no results... check out clusterbusters.com

Title: Re: Topimax and Depakote Failure
Post by Kevin_M on Oct 12th, 2012 at 11:45pm

Clusterman59 wrote on Oct 12th, 2012 at 12:39pm:
It is with great disappointment that I am going to give up on the Depakote and Topamax as the Depakote proved to be to much and just knocked the tar out of me. I was taking 1500mg daily along with 400mg daily of Topamax but had taken the Topamax for about a year on its own without good results.


Careful and slowly when decreasing your dosages from these levels, under a doc's guidance is helpful. 

Preventive treatments are great when they work, if not, back away slowly.

Difficult experience you've had, Johnny.  Time you got on a righter road.  Happy trails.   :) 

Title: Re: Topimax and Depakote Failure
Post by japanzaman on Oct 13th, 2012 at 8:18am
I had the same nasty experience with Depakote. Never did a damn thing for me, and I felt like I actually got more headaches when on that stuff. Things improved rapidly after I kicked it to the curb. 8-)

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