I'm 10 days into this hell.  I haven't had these things since 1998.   >:(

I've got the big O2 tank by the bed and the little one goes with me everywhere in my truck.  I've had pretty good luck with the O2, it'll take them out in 30 minutes if I catch them in time.  If not it's hell for at least two hours.  no amount of painkillers help.

This time around seems to be the worst ever.  Either that or my memory is going bad.  I had 5 in one day this past monday which is a record.  I woke up with one so bad this morning that the outside of my head hurts.  It's very sensitive to touch.  the right side of my brain feels like jello with about 50 psi applied to it.  and that's all 4 hours after I got rid of the headache.

Anyways,
Hi All, It's great to be back ::)

I couldn't get my OLD old login to work so I had to make a new one.

Welcome back Eric, sorry beasty found you again. Check out one of our more recent discoveries  called "The Batch Regimen" Go to the medications section and check out the thread "123 pain free days and I think I know why" A simple vitamin/mineral/anti inflammatory regimen that's healthy for you even without CH, and is helping lessen and even stop a lot of peoples cycles. pennies a day, good for you, worth a shot.

Have you visited clusterbusters.com yet? alternative treatments that are kicking some serious beasty butt....

Joe

Guiseppi wrote on Sep 27^th, 2012 at 5:06pm:

Welcome back Eric, sorry beasty found you again. Check out one of our more recent discoveries  called "The Batch Regimen" Go to the medications section and check out the thread "123 pain free days and I think I know why" A simple vitamin/mineral/anti inflammatory regimen that's healthy for you even without CH, and is helping lessen and even stop a lot of peoples cycles. pennies a day, good for you, worth a shot. Have you visited clusterbusters.com yet? alternative treatments that are kicking some serious beasty butt.... Joe

Thanks Joe,

I started the D3, Fish Oil overdose yesterday when I read that thread.  My fingers are crossed.

No more tripping for me man.  I did too much of that back in the Grateful Dead concert days.  I used it recreationally back then, but at one music festival, some a**hole dropped a bunch in my bottle of wine.  No more after that nightmare experience.  Imagine coming home to a house you don't quite recognize.  :o  Ever since then, even low doses get really bad, fast.

I've always had good luck with O2 and it works well enough if I catch them in time.

30 min to abort with O2 tells me you may not have the best mask and/or regulator. A non-rebreather mask with a bag on it and no open holes on the side with a regulator that goes to at least 15LPM. No nasal canula's.

In case you haven't already read it, I've posted our "oxygen info". I highly recommend you purchase the O2pti mask available here at the CH.com store. Made just for CH.

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Don

I also am wondering about the 30 minute abort time. I am able to get relief in 5-10 minutes... again look into the optimask and flow rates of 25lpm are usual for clusters, especially when trying to keep up with the initial hyperventilation caused by the pain. Others here also use breathing techniques, like intentional hyperventilation, making sure to empty the lungs completely and breathe deeply. With these simple changes people have been able to significantly reduce their abort times. Check out the oxygen info link.

30 minutes is probably the worst case scenereo for aborting.  If I can get to the O2 the second that I feel one starting, I can kill it in about 5-10 minutes as well.

Thanks for all of the info.