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Cluster Headache Help and Support >> Cluster Headache Specific >> Social Isolation and CH? http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1348353991 Message started by idorko on Sep 22nd, 2012 at 6:46pm |
Title: Social Isolation and CH? Post by idorko on Sep 22nd, 2012 at 6:46pm
Do you guys ever feel like CH has made you socially isolated? I've never been big into hanging out with people or having many friends, and sense I was diagnosised, I've just dropped off the face of the earth socially. It's the last thing I want to worry about during my cycle, because I have to be home or near my oxygen tanks 3 times a day, which doesn't give me much time for other activities.
Anyone else feel this way? I guess what I'm asking does anybody feel like CH gets in their way? If so, how do you make it so it isn't in your way? |
Title: Re: Social Isolation and CH? Post by coach_bill on Sep 22nd, 2012 at 8:57pm
Dork,
You got to get back in the game kid. When your in your PF hours, pick up the phone and make some calls. Live in between the hits. Coach Bill |
Title: Re: Social Isolation and CH? Post by idorko on Sep 23rd, 2012 at 6:29am
I just feel so washed out after most attacks, and the times when I don't, everyone is busy. :/
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Title: Re: Social Isolation and CH? Post by idorko on Sep 23rd, 2012 at 10:33am
"Not found" came up when I clicked that link
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Title: Re: Social Isolation and CH? Post by Kevin_M on Sep 23rd, 2012 at 11:42am
Playing closer to the vest socially when CHs are occupying thoughts can happen, you have to be cautious and prepared among different company. The freedom is appreciated to be more carefree at other times. There's naturally times of more and times of less socializing in most lives.
Quote:
Quote:
Where are you? Should we send Lassie? ;) |
Title: Re: Social Isolation and CH? Post by idorko on Sep 23rd, 2012 at 2:39pm Kevin_M wrote on Sep 23rd, 2012 at 11:42am:
Where are you? Should we send Lassie? ;) [/quote] I think I found my way baaa-ck Thanks for the article. That certainly helped a lot. |
Title: Re: Social Isolation and CH? Post by Cupper on Sep 23rd, 2012 at 10:55pm
I answer a strong yes to this question! Fear of a public attack when I'm near or in cycle has made me a hermit. And it goes the same at work too.
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Title: Re: Social Isolation and CH? Post by wimsey1 on Sep 24th, 2012 at 11:18am
There is a difference between anticipating (and thus preparing for) something bad to happen when there is a real and high probability it might happen, and anticipating with anxiety an event that is either not likely or so unlikely it reaches the stars in probability. For example, I think anticipating and worrying over a zombie apocalypse is so out of the realm of probability, that an examination of underlying beliefs is more helpful than stocking up on anti-zombie pills, or whatever.
But the likelihood I will experience a cluster in public...nearly 100% And it does cause me to be very cautious about where I go and with whom. Taking the necessary steps to deal with an attack quickly and efficiently help a lot. So, I carry imitrex injections whereever I go, and pack a portable O2 tank in my car, and look for means of quick egress so I can deal with what comes. I find taking simple and practical measures to deal with real events (pleasant or unpleasant) goes a long way to easing my mind and setting me free from anxiety. God bless. lance |
Title: Re: Social Isolation and CH? Post by Guiseppi on Sep 24th, 2012 at 6:44pm
I think anticipating and worrying over a zombie apocalypse is so out of the realm of probability, that an examination of underlying beliefs is more helpful than stocking up on anti-zombie pills, or whatever
Okay Lance, we'll just have to agree to disagree here...... but beyond that, your advice is spot on. Bob's posted his article a time or two in the past and I couldn't agree more. You can do serious damage to yourself constantly worrying about the possibilities of attacks. Staying prepared, ALWAYS having abortives at the ready and living it between the hits. Joe |
Title: Re: Social Isolation and CH? Post by AppleNutClusters on Sep 24th, 2012 at 7:37pm
Idorko, you ask a very relevant question to all of us. And I think, everyone has their own personal way of dealing with this reality. Yup, any chronic illness can cause social isolation. If I know I can't drink after work with my co-workers, that I could get a CH even without drinking, then it would be natural to limit hanging out with my co-workers, much as I love them.
For me, I have a small social circle. Part of this (definitely not all) is due to having CH, and not being able to hit the bars after work. So for my work friends? I just shifted my lifestyle. I don't hang out at those bars anymore. Instead, I just hang out with my good friends on an individual basis, one on one. We'll catch a movie (or whatever) instead, and if I happen to cancel because of CH, they understand. And to be honest, this method helps ensure that I'm surrounded by good friends. If they understand immediately when I text and say, "Gotta cancel, headache" then they are a keeper. :-* |
Title: Re: Social Isolation and CH? Post by Skyhawk5 on Sep 25th, 2012 at 2:14am
Has CH caused me to isolate myself? Yes. I have missed important functions due to CH. From what I've learned on this website I now have much better control over my CH and this is a much smaller problem.
I keep this in mind, 'nothing works for everyone, but something works for most everyone.' Finding that something for each of us requires us knowing what the best treatments are. They are right here in front of us. Don |
Title: Re: Social Isolation and CH? Post by Bob Johnson on Sep 25th, 2012 at 9:33am
Joe, be gentle with Lance. I know that he and I, coming from a shared work background, share the theme of my article.
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Title: Re: Social Isolation and CH? Post by wimsey1 on Sep 25th, 2012 at 11:23am Guiseppi wrote on Sep 24th, 2012 at 6:44pm:
Funny, we don't usually miss each other like that. You see, I thought I was saying the same thing you said, but in quoting me, you left off: Quote:
The second part you say you agree with. I do too, obviously. I meant to say that taking certain well planned preventative measures can go a long way to easing the anxiety we feel when real circumstances press upon us. The zombie stuff was just a way of saying don't worry about stuff that isn't real or worth worrying about. It will only bring about more pain. There. I think we can agree what I was trying to say was an epic fail. For that I am sorry. :-[ God bless. lance |
Title: Re: Social Isolation and CH? Post by Kevin_M on Sep 25th, 2012 at 2:36pm
I thought Joe was disagreeing because he believes there IS going to be a zombie apocalypse.
Don't worry Jezep, I do too. Haven't a date on the calender yet, but October 31st is looking probable. ;) |
Title: Re: Social Isolation and CH? Post by Guiseppi on Sep 25th, 2012 at 6:30pm
Yeah my humnor missed the mark....I copied and bold printed the zombie part as my wife and I are actively preparing for the zombie apocalypse.....shame on you who are ignoring this pending horror!!! ;)
The rest of his post, as usual, I whole heartedly agreed with. Apologies to Bob and Lance for missing my mark......you know I love you guys! :) Joe |
Title: Re: Social Isolation and CH? Post by bluenz on Sep 25th, 2012 at 11:11pm
Thanks for this post........................nods
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Title: Re: Social Isolation and CH? Post by wimsey1 on Sep 26th, 2012 at 7:57am
Garsh, is my face red! And there I went and ruined a perfectly good zombie thread.... :( But if they do come around, it's good to know we've got a few of us armed and ready...Joe's got the West coast; I've got the East Coast; Kevin's got the...? He's got it covered. blessings. lance
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Title: Re: Social Isolation and CH? Post by japanzaman on Sep 26th, 2012 at 10:19am
You hit on probably the most dreadful aspect of clusters -at least for me anyway. Obviously the pain is nasty, and for some who suffer multiple hits a day chronically I can totally understand the pain being the primary cause for distress.
For me though, it's the chaos it wrecks on your life and the lives of those around you that makes it such a scary thing. You've got to get some people into your corner to help you fight this thing- even if it's just a doctor who you trust. The people on this site are also fellow war travelers who understand your situation. Hang tough. |
Title: Re: Social Isolation and CH? Post by slacker032 on Oct 23rd, 2012 at 2:52pm
I can definitely relate to this. While I'm in the peak of a bad cycle, I rarely want to leave the house unless it's for a quick errand. Just a few months ago, I planned a vacation to Sedona with a big group of friends but I had to flake out due to starting a cycle.
I've got a good core of friends who are very sympathetic but it's impossible for them to truly understand unless they've experienced it or been around it extensively. |
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